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Thread: My first visit to a pain clinic

  1. #31
    Maybe we should start a sticky of pain clinics we go to where we live. I'll bet that would help out newcomers quite a bit. I was going to the Mayo clinic hospital where they worked with my pain and my baclofen pump. I found out some information about another doctor in town to help me and started going to her. I was really overweight when I started going and she brought me to the idea that my testosterone was really low and my body was having a hard time using the food I ate. Wouldn't you know it, I've lost 90 pounds since then. She also helped with my pain and is very understanding. I still have it pretty bad, but it's a lot better than it used to be.

    Dr. Lisa Stearns, Virginia C Piper center located in Scottsdale Arizona. Her phone number is 480-889-0180.
    C-5/6, 7-9-2000
    Scottsdale, AZ

    Make the best out of today because yesterday is gone and tomorrow may never come. Nobody knows that better than those of us that have almost died from spinal cord injury.

  2. #32
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    So last week was my second visit with this doctor. I was elated to have found someone that I thought "understood" chronic burning pain like we experience. I had three appointment scheduled this day as when you go, you pay $8.00 to park and I had them schedule all my visits on the same day. Well I missed the first one because they scheduled the pain clinic too close to get a mammogram done so I proceed to my 10AM clinic appointment. At 11:30, I am still sitting in the waiting area. At 11:35, I am taken back where Dr Ives is rushing his nurse to do her job because he has a 12:00 appointment to get to across campus. I never said a word. He comes into the room, asked me about my pain levels. Naturally, he would love to see a 5 but I am not going to see that until I get the new braces and more than likely an injection in my left hip which I tried to explain to him. Without batting an eye, he changes my current drugs to 15mg of ER OxyContin twice a day. I told him I was uncomfortable with this change and he smirked at me saying my pain levels were going up and down. I said yes technically they are but now that the burning is somewhat controlled I am happy with what I have and would like to continue until I get my braces which are ordered and I am just waiting for them.

    He handed me the prescriptions and left the room. I went to the pharmacy and talked to the pharmacist and came back for my afternoon appointment.

    I then requested to speak to someone in Dr Ives office as he was gone for the day (figures). I then talked to the Care Coordinator that I spent the two hours with the first appointment who asked me all kinds of questions as to "why" I did not feel I could take what Dr Ives prescribed. I won't go into detail on what I finally told her but I ended up saying I had taken it before and it made me dizzy and caused me to fall.

    My beliefs are that Morphine is a drug of last resort....I am not there yet. I am miserable yes and have been but what I am currently doing NOW is managing it since January of this year. I have had to see 8 doctors here to get a prescription and cast for my braces that took three months. My neuro pain is controlled with Topamax but not gone. I am able to focus. I am able to plan outside activities again and look forward to them. I am enjoying my hobbies again. It does not mean that I do not live my life in pain. It simply means that I am living in spite of pain which I was not doing last year.

    I am deeply upset with this doctor and his inability to hear my worries. He never looked at one of my old records. He knows absolutely nothing about me.

    So I retract my earlier statements.... There are many many places who do things right and in my heart, I don't believe this is one of them. I have had many doctors and worked with many doctors who do it right.

    I was told later on in the day that this is the "state of healthcare" that the patient has to be his own advocate. A patient in chronic pain can only answer the question he/she is asked. When asked a pain scale, you answer, so what do they expect?
    T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

    My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

  3. #33

    Cool

    Quote Originally Posted by darkeyed_daisy View Post
    Its inside the Internal Medicine Clinic on the campus of UNC-Chapel Hill

    http://medicine.med.unc.edu/im/patients

    http://findadoc.unchealthcare.org/di...ict_id=0003030

    I had not looked him up until today. I was referred by my physician in the Internal Med Clinic.


    Arndog he upped my Topamax to three times a day and the Ultram ER 200 mg to 100mg twice a day. He also put me on Buspar for anxiety not an anti-depressant. I take 5mg Oxy for break through but that will lessen when I get my braces adjusted. I won't settle for anything less than townsends and I had to send the last ones back. So I am just waiting on a referral. Yes he did mention biofeedback and some other things. I don't want to be on medicine forever. I am hopeful the other person I am scheduled with will offer more as in teaching me how to relax and mind body skills. I think this kind of thing below will be an option as it is listed on their patient website. I know they have a faculty version for their students/

    http://www.med.unc.edu/phyrehab/news...skills-program
    Sorry to resurrect an old thread but have a question.

    Daisy: Do you live near UNC or did you travel? I am about 6 Hours away from UNC but have had several people recommend them to me. Just wondering if I should try another pain mgmt PMR doc before traveling? If i travel, we'd get a hotel but would like to get as much stuff done while I'm up there as possible so we wouldn't have to commute so much.

    Thx
    Jason

  4. #34
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    Quote Originally Posted by jbridges9 View Post
    Sorry to resurrect an old thread but have a question.

    Daisy: Do you live near UNC or did you travel? I am about 6 Hours away from UNC but have had several people recommend them to me. Just wondering if I should try another pain mgmt PMR doc before traveling? If i travel, we'd get a hotel but would like to get as much stuff done while I'm up there as possible so we wouldn't have to commute so much.

    Thx
    Jason
    Hey Jason

    I live in Durham right now. I started out at UNC but ended up at Duke.

    I had a few issues with UNC after I posted this thread. I have been in the Pain Management program at Duke for almost a year now. When comparing the two...UNC is like a pill mill or to me it is. I think UNC has several pain management practices under the heading of UNC Healthcare. I did not want someone to just throw pills at me so I did not like the doctors I had there. My Primary Care physician at UNC just did not meet my expectations either. It is a huge clinic on the backside of the University. I just felt that my concerns were not being taken very seriously.

    https://www.unchealthcare.org/site/h...painmanagement

    If you do choose UNC...this is the doctor or someone who works with him that you want to see:

    http://health.usnews.com/top-doctors...ist-12CC000491

    I did not see this group and once I got in with the clinic that I was in, they were hesitant to let me switch. So I ended up at Duke.

    Did you try Emory? One of their doctors is listed as one of US news top doctors for pain management.

    http://health.usnews.com/top-doctors...ist-24CC000082

    http://health.usnews.com/top-doctors...ist-16CC003328

    http://health.usnews.com/top-doctors...ist-24CC000083

    I see this group of doctors:

    http://www.dukehealth.org/services/pain_disorders/about

    I have seen three physicians within this practice as they treat the chronic pain and the mind. I have had biofeedback and learned Cognitive Behavioral Therapy. They treat the whole person not just the pain.

    I have never been told before my treatment at Duke that I had "Complex Regional Pain Syndrome". All my other doctors were not knowledgeable in the area of pain. Dr Dianne Scott is my primary pain Management doctor but I haven't seen one in the whole practice that I didn't like.

    http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0004456/

    http://www.ninds.nih.gov/disorders/r..._dystrophy.htm

    If I were you, I would try the doctors above in Atlanta before traveling this far East. Duke does have a very good program though.
    Last edited by darkeyed_daisy; 04-08-2013 at 08:12 PM.
    T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

    My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

  5. #35
    Quote Originally Posted by darkeyed_daisy View Post
    Hey Jason

    I live in Durham right now. I started out at UNC but ended up at Duke.

    I had a few issues with UNC after I posted this thread. I have been in the Pain Management program at Duke for almost a year now. When comparing the two...UNC is like a pill mill or to me it is. I think UNC has several pain management practices under the heading of UNC Healthcare. I did not want someone to just throw pills at me so I did not like the doctors I had there. My Primary Care physician at UNC just did not meet my expectations either. It is a huge clinic on the backside of the University. I just felt that my concerns were not being taken very seriously.

    https://www.unchealthcare.org/site/h...painmanagement

    If you do choose UNC...this is the doctor or someone who works with him that you want to see:

    http://health.usnews.com/top-doctors...ist-12CC000491

    I did not see this group and once I got in with the clinic that I was in, they were hesitant to let me switch. So I ended up at Duke.

    Did you try Emory? One of their doctors is listed as one of US news top doctors for pain management.

    http://health.usnews.com/top-doctors...ist-24CC000082

    http://health.usnews.com/top-doctors...ist-16CC003328

    http://health.usnews.com/top-doctors...ist-24CC000083

    I see this group of doctors:

    http://www.dukehealth.org/services/pain_disorders/about

    I have seen three physicians within this practice as they treat the chronic pain and the mind. I have had biofeedback and learned Cognitive Behavioral Therapy. They treat the whole person not just the pain.

    I have never been told before my treatment at Duke that I had "Complex Regional Pain Syndrome". All my other doctors were not knowledgeable in the area of pain. Dr Dianne Scott is my primary pain Management doctor but I haven't seen one in the whole practice that I didn't like.

    http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0004456/

    http://www.ninds.nih.gov/disorders/r..._dystrophy.htm
    Thanks for the info. What meds are you taking? Do they work?

    This is the group of Doctors I was planning on seeing.. what do you think?

    http://www.attackback.com/

  6. #36
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    Quote Originally Posted by jbridges9 View Post
    Thanks for the info. What meds are you taking? Do they work?

    This is the group of Doctors I was planning on seeing.. what do you think?

    http://www.attackback.com/
    So this is a practice of Physiatrists or appears to be from the website. I do like Osteopathic Doctors. I have in the past seen two that were excellent.

    The only concern I have is that there is no psychiatrist/psychology involved in this practice.

    Pain does all sorts of things to the mind including depression and anxiety. There is a connection between chronic pain and depression/stress.

    For me, it was important for the doctor to at least acknowledge that the chronic pain was effecting so many things in daily life.

    I do believe in Cognitive Behavioral Therapy. Nothing will ever make the pain go completely away but it helps to know ways to relax yourself and do other things to get your mind off of the pain.

    There may never be anything to completely take away all your pain. That is a scary thought but I just do everything possible just to make it tolerable.

    I would try this group and if you don't like them, then you can always try one of the others. I struggled for the last couple of years trying to find doctors who would fit my needs. You have to find one that you are comfortable with and that listens to you. The doctors availability of healthcare were actually why I chose Durham to live.

    Over the last 10 years(injured 24 years), I have tried all the medicines normally tried for the neuropathic pain. None of them worked or they stopped working or the side effects were worse than their benefit. I take Amityptiline and oxycodone and Ultram currently.
    Last edited by darkeyed_daisy; 04-08-2013 at 10:33 PM.
    T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

    My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

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