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Thread: My first visit to a pain clinic

  1. #1
    Senior Member
    Join Date
    May 2006
    Somewhere in the Rocky Mountains

    My first visit to a pain clinic

    I had my first visit with a pain clinic on Wednesday. I was not expecting to be impressed. I have been passed around this group of doctors since December now and none of them really seem to know the difference between an acute spinal cord injury and a chronic injury. I was amazingly surprised. I have never been to a pain clinic before. I have never been to a doctor who wasn't pushing anti-depressants at me either.

    My first visit consisted of talking to a care coordinator for two hours about three weeks ago. I can't even remember most of that conversation. Wednesday's visit involved talking to a 4th year resident along with the pharmacist who re-arranaged some of the meds I was already taking and added a couple of drugs none of which are anti-depressants. I can email this Care coordinator at anytime and I am expected to.I have never had that kind of patient/provider relationship.

    I am set up to have an MRi on Friday because it has been 9 years since I have had any scans and I am also referred to a physiatrist who specializes in chronic aging spinal cord injuries as well as a counselor who specializes in people with chronic pain who can in the doctors words "connect me to the applicable community resources that I need". That will also include appointments with an orthotist and a urologist.

    I had so much anxiety and worry over this appointment. I had to sign a contract that I would only see that practice and they would prescribe my meds and I would use only one pharmacy. They drug test every time I go. I really don't mind this now that I have met the Pharm D running the program and know that his goals and my goals are the same.

    I think for me him just saying "I get it" meant alot. I did not have to explain in detail what being on fire meant and he did not ask me to describe it.

    The night before my appointment I had not slept at all. We had storms and my legs were on fire all night long. So I was tearful and very truthful with him as to how the pain has effected my quality of life. I am not usually that open even with my doctors and maybe that is part of my problem....
    T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

    My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

  2. #2
    Member ~Maria's Avatar
    Join Date
    Feb 2012
    Atlanta, GA
    I'm impressed and currently in search of this type clinic. So far my experiences of getting the urine test, blood pressure, weigh me and ask questions. I had all my CAT, MRI, and X-rays with me, he didn't look at them. Lot's more, but anyway, I am happy for you, I hope this turns out to be your tiny sanctuary.

    Is it named a pain management clinic, or are they calling themselves something else? I would love to find what you have.

  3. #3
    Senior Member lynnifer's Avatar
    Join Date
    Aug 2002
    Windsor ON Canada
    That sounds great Tonja ... your post even sounds relieved!

    We will not be 'felled' in '2012!' (I know - I've been trying to think of something inspirational that will rhyme with 12 .. lol).
    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

  4. #4
    That's a pretty amazing pain clinic! Hope it keeps surprising and impressing you - it did me just from reading your post!
    Reality is merely an illusion, albeit a very persistent one.
    - Albert Einstein

  5. #5
    Sounds similar to mine T. I hope they continue the good treatment. It sounds like you found a good one. My pain clinic was the first place I did'nt have to explain in detail what I meant about burning etc. They knew what I was talking about, and even knew about burning more when the weather got bad.

  6. #6
    D D - can you share what meds they finally put you on to get things started? Do they have or recommend any biofeedback services?

  7. #7
    Senior Member
    Join Date
    Aug 2007
    last house on the left
    That sounds great. It is so important to have people who "get it." It is also such a relief when you are able to find someone who does. I hope this is just the start of a productive relationship that lessens your pain levels.

  8. #8
    It sounds great. Can you share the name and location of the clinic?
    You will find a guide to preserving shoulder function @

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  9. #9
    Senior Member
    Join Date
    May 2006
    Somewhere in the Rocky Mountains
    Its inside the Internal Medicine Clinic on the campus of UNC-Chapel Hill

    I had not looked him up until today. I was referred by my physician in the Internal Med Clinic.

    Arndog he upped my Topamax to three times a day and the Ultram ER 200 mg to 100mg twice a day. He also put me on Buspar for anxiety not an anti-depressant. I take 5mg Oxy for break through but that will lessen when I get my braces adjusted. I won't settle for anything less than townsends and I had to send the last ones back. So I am just waiting on a referral. Yes he did mention biofeedback and some other things. I don't want to be on medicine forever. I am hopeful the other person I am scheduled with will offer more as in teaching me how to relax and mind body skills. I think this kind of thing below will be an option as it is listed on their patient website. I know they have a faculty version for their students/
    Last edited by darkeyed_daisy; 02-25-2012 at 05:15 PM. Reason: add info about my braces
    T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

    My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

  10. #10
    I'm really glad that you found a pain clinic where they not only listen, but get it! What a relief it will be, not having to reinvent the wheel at every appointment.

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