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Thread: I am losing my mind from this constant pain!!

  1. #11
    Member ~Maria's Avatar
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    Becky, I feel for you and empathize. I can’t imagine having to sit in a classroom all day, be in pain and having zero to little sleep doesn’t help --it’s got to be hard to concentrate.

    It’s funny you mentioned being put into a coma, I was thinking that this weekend, I suffer from chronic insomnia and it has been a life long struggle to get adequate sleep. I would go for days with no sleep, literally up all night. When I was younger I could cope, now that I’m getting older my body is rebelling and as of the past few years depression has set in. Now on top of the insomnia I am in constant pain, more often than not I twist and turn in bed trying to get comfortable and if I managed to fall asleep the pain wakes me up. Most days I wake-up exhausted, tired, and beat before I even start my day. I rarely dream and the thought of knowing I’m not going to sleep is stressful. I alternate between Ambien CR (weekdays) and Trazadone (weekends), over the years have tried tons of meds and these two seem to be the best ‘fall back” for me.

    Hang in there and good luck!

  2. #12
    Quote Originally Posted by Eileen View Post
    You definitely need a good pain specialist Becky. Don't settle for someone who tells you about all the downsides of meds. They don't usually live this shit.
    Exactly! I felt the same way when a doctor lectured me on using Phenergan for even mild nausea. I'm thinking, "What the fuck? I'm crippled. What more harm could pills do?"

  3. #13
    Quote Originally Posted by Le Type Fran├žais View Post
    Exactly! I felt the same way when a doctor lectured me on using Phenergan for even mild nausea. I'm thinking, "What the fuck? I'm crippled. What more harm could pills do?"
    You took the words right out of my mouth...

    It especially bothers me that their biggest concern is that I might get addicted. So what the withdrawals from an opiate don't even compare to the pain I feel without them. I would like to withdraw from opiates every day for the rest of my life rather than experience the incredible pain I feel instead...

  4. #14
    Senior Member ~Lin's Avatar
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    Quote Originally Posted by Le Type Fran├žais View Post
    Exactly! I felt the same way when a doctor lectured me on using Phenergan for even mild nausea. I'm thinking, "What the fuck? I'm crippled. What more harm could pills do?"
    Seriously? Daammnnn. I've been taking phenergan for nausea for 8 years. I don't take it daily, but about half the days a week. I've never had a dr question it or lecture me. The only meds I've been lectured on were narcotics before I started taking them. Now I get a "you're not taking x right?" when Drs other than my primary and my pain specialist look at my med history, but I tell them YES I am for chronic pain.
    Board Member of Assistance Dog Advocacy Project working in Education. Feel free to ask me any service dog questions!

    I am not paralyzed. I have a genetic connective tissue disorder with neuro complications and a movement disorder.

  5. #15
    Just reading this, thank you both for backing me. My thoughts exactly!

  6. #16
    my 2 cents: a good doctor sends you to a pain management clinic where they know their stuff and aren't afraid of their own meds. Also,it's important to know what kind of pain is troubling you. Usually neurogenic pain doesn't respond much to traditional painkillers, opioids- synthetic or natural. Some class of anti-epileptic is the usual choice.

  7. #17
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    Most people can't understand chronic neurogenic pain and may say things like "Oh but you don't want to be on more meds".... When the pain is really bad I want to say...YES I do "want to be on more meds"!

  8. #18
    Senior Member ~Lin's Avatar
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    Quote Originally Posted by KyleP2112 View Post
    Most people can't understand chronic neurogenic pain and may say things like "Oh but you don't want to be on more meds".... When the pain is really bad I want to say...YES I do "want to be on more meds"!
    For real. Most of the issues I've had with Drs balking at my meds were because of my age. Pain Drs that give me the "you've got a lifetime of pain management ahead of you, lets not use up meds now" and primary drs going "you're on quite a lot of medication for someone your age..."

    Well, of COURSE I don't 'want' to be on more meds. And of COURSE I would like to take less meds. But if its between more meds and the daily pain, I'll take more meds every fucking time. And I don't give a shit about where I'm going to be in 10 years right now. Because if my pain doesn't stay under control, I won't MAKE it to 10 years from now! Let me worry about 10 years from now in 10 years. Isn't my age all the more reason to allow me to be more functional while I can? Especially because my disability is progressive, so while I have the function I have get this pain under control so I can USE it!

    And luckily, I finally found a Dr that agrees with me about 9 months ago. If he moves away I think I'll stalk him.
    Board Member of Assistance Dog Advocacy Project working in Education. Feel free to ask me any service dog questions!

    I am not paralyzed. I have a genetic connective tissue disorder with neuro complications and a movement disorder.

  9. #19
    Senior Member alan's Avatar
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    I want to be able to project my sensations to others. I'd use the power wisely.
    Alan

    Proofread carefully to see if you any words out.

  10. #20
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    Doctors can really drive a person nuts when it comes to addressing pain. So to say the least the key is to find the right doctor who can address your pain problems...it's easier said than done.

    The specialist doc who follows my spinal cord injury is good for some things but terrible when it comes to addressing my chronic neurogenic pain as he has a very conservatve approach to trying new meds. It's somewhat good in that I'm not going around like a zombie on lots of meds but my severe pain is going untreated.

    Anybody else have similar experiences?

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