I have had a C5/6 injury since 1998. I read about the Mitrofanoff procedure here on Spinewire and I thought it would help my Mom and I (because she is my main caregiver that helps me with my intermittent catheterization) so I found a pediatric urologist and an urologist who would do the surgery in Minnesota. I had the surgery up in Minneapolis using only my appendix (I didn't need an augmentation and my bladder tested well in the urodynamics) and everything seemed ok except some lingering pain.
The first time we tried to catheterize through the Mitrofanoff was on November 23. A few days later I started having UTI symptoms. On November 28 I was diagnosed with the first of 5 infections all with the bacteria Enterococcus faecalis (which I had never had before my surgery.)
My UTI symptoms include having a fever, severe AD, increased spasticity, increased pain, urgency, pain and burning in both my natural urethra and my Mitrofanoff stoma, etc. After the infections started we decided to only use my natural urethra and not the Mitrofanoff, but every few weeks we ended up trying to use the Mitrofanoff to keep it from closing.
Except for using the Mitrofanoff those few times we have been doing everything the same as we had been for the last couple years. (natural urethra, new catheter each time, gloves, benzalkonium chloride wipes, etc.)
I took a specimen in this past week so I'm not sure which bug I have yet (we always do a culture and a sensitivity test to make sure I get the correct antibiotic and I take 10 - 14 days worth of the correct one) but I have a feeling it is the same bug. The Enterococcus faecalis only responds to Ampicillin instead of my usual Cipro sensitive bugs. I also had an ultrasound to check for a stone, but none were present and my bladder checked out as functioning normally. I am also still taking the Detrol I’ve been on since my accident.
The surgeon and nurse mentioned after the surgery that the appendix could get some bacteria in the bladder (they never mentioned it before the surgery) so I am worried that the Mitrofanoff is causing the problem.
Is it even possible for a Mitrofanoff to cause a UTI? If it is not, I'm totally lost as to what could be the problem as nothing else has changed.
I would appreciate any ideas on what I should ask about or try to do. I am at my wits end and I am really regretting the surgery because things were going well with my bladder before I had it. I don’t want to scare anyone away from this surgery as a bunch of the girls here really seem to like their Mitrofanoff surgeries, but I would really like to know if anyone else had this problem after their surgery.
Thanks for your help. Melissa
P.S. I think I’m going to have to try using Microcyn/Vetericyn, so if anyone has used it with their Mitrofanoff I would appreciate knowing if they tried cleaning their stoma and/or flushing the length of their Mitrofanoff/appendix with it. (I feel like the appendix must be full of bacteria so I keep thinking I should basically rinse the length of it with Microcyn/Vetericyn.)