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Thread: surgery injury

  1. #1

    surgery injury

    3 months ago, I had sacroilliac/pelvis fusion. 3 screws plus donor bone were used. When i came round from anesthesia I was in agony down my right leg and top half my left. I had surgery 2 days later to reposition 2 of the screws which looked 'questionable'. No relief, back to surgery, to remove them entirely, leaving me with 1 screw. I left the hospital with numbness and paraylsis (although I don't know if this is due to muscular weakness). I can't lift my right heel off the floor. I have sensation on half of my vagina and anus (sounds weird I know) I don't know if I have gas or a bm. I can't 'sqeeze' very well, this makes me nervous in public I don't have the ability to have a normal bm, I have to do it manually I can't feel when my bladder is full, and when i do empty it, I get an electrical shock through my foot, which lasts until i have finished When i left the hospital, both my legs were flaccid, my left has since regained some tone.

    I had to be non weight bearing for 3 months, still have 3 wks to go, so i don't know how well I can walk. My right leg muscles are unresponsive to electrical stimulation. I had a recent emg test which showed I had axonotmesis at the S1 L5 level. The dr who did it told me 'I have big problems.' All the problems I had when i left the hospital, i still have. No one wants to answer my questions, and although I have been very proactive, I'm not sure how things are going to turn out for me .

  2. #2
    What types of physicians have you seen? Neurosurgeon? Neurologist? Urologist? Physiatrist? Have you sought second opinions?

    You may also need to see an attorney (in which case you should not be posting anything on the internet). I will ask Dr. Young to review your post.

    (KLD)

  3. #3
    I am still seeing the surgeon since I'm still under his care concerning the original problem of my si fusion. I am also seeing a physiatrist, but I think he is hesitating to make his mind up until he sees how I progress with my PT. I haven't seen any of the other specialists you mentioned but I will be looking at my options in the near future. I don't know much about how doctors handle other doctor's errors on this scale, but my personal feelings are that is the reason why no one wants to answer questions at this stage, they protect one another. I'm seeing the surgeon in a few weeks for a followup on my surgery. I'm having a 3D CT of my pelvis and another EMG before I see him later on that day, and that is when I'm going to present him with my list of questions. Fortunately I will know the results of my EMG before I see him, so he won't be able to play it down. I felt he wanted us to believe my injury was neuropraxic (first level nerve injury) and not axonotmesis (second level). I didn't actually see the report of the first EMG, I'm going on what the doctor told me at the time he did it. I will be requesting a copy of that report at my next appointment with the surgeon so i can understand the absolute fact and not heresay.
    The bills are piling up and obviously I'm unable to run my business but I have not considered sueing because I think it would be in my benefit right now to maintain my relationship with the surgeon as he is a highly regarded expert in the field of sacroilliac disorders. ( they are hard to find, this one is a 14 hr round trip from where I live.) This type of injury, as all others, hit you so unexpectedly, it takes a while to get your head around it all and know what to do. Its only been 10 weeks. I feel so inadequate talking about my problem when I read about others on this forum. For that reason I hesitated to post my story.

  4. #4
    Welcome to CareCure, 61lorraine, and I hope you will eventually see a great deal of improvement. In the meantime, as SCI nurse has indicated, be aware that anything posted on the Internet becomes part of the public record - these are still early days in your treatment, so it's wise to be very circumspect about whatever is said here. Difficult and exasperating as it is, it would be a good idea to get an independent second - even third - medical opinion (since time is of the essence in SCI); an attorney could explain patients' rights and options, without committing you to a course of action. As you say, what has happened is unexpected and shocking and it's hard to get your head around it - so it's important to get the right kinds of professional assistance and advice at the outset. Best wishes to you.

  5. #5
    Senior Member fromnwmont's Avatar
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    61: 11yrs ago I had surgery to "fix" nerve damage from a vascectomy when I woke up I had simular issues (except male parts were numb) I had to re-learn to walk because of numb left leg to have "normal " bowl movements and needed a Cathy to urinate all I wanted was to be "fixed" never talked lawsuit thinking Dr would be more willing to see me but in the end my body compensated and no Dr fixed me I waited to long and should have sought legal help ASAP prior to falling and fracturing t-11 n t12 I suffered the same pain I awoke with... everyone is different but that's my story...

  6. #6
    I'm so sorry to hear what happened to you. You know, I think we have this 'blind, trust,(at least at first) thinking that they want to, or can, fix us but in the end its up to us. My problem is, no one knows for certain, so no one wants to say, OK, you need rehab, because this is the way you are going to be for the rest of your life. The general concenus is my nerve will take 2.5 yrs to regenerate but that's only a guess. I don't want to just wait and hope that with PT alone I will be just fine at the end of that time. I feel like I'm stuck in no ones land. People who have lived with disabilities for a while have walked this road, new ly injured ppl want to do whats right but feel terribly confused and don't know how or where to proceed.

  7. #7
    Quote Originally Posted by 61lorraine View Post
    3 months ago, I had sacroilliac/pelvis fusion. 3 screws plus donor bone were used. When i came round from anesthesia I was in agony down my right leg and top half my left. I had surgery 2 days later to reposition 2 of the screws which looked 'questionable'. No relief, back to surgery, to remove them entirely, leaving me with 1 screw. I left the hospital with numbness and paraylsis (although I don't know if this is due to muscular weakness). I can't lift my right heel off the floor. I have sensation on half of my vagina and anus (sounds weird I know) I don't know if I have gas or a bm. I can't 'sqeeze' very well, this makes me nervous in public I don't have the ability to have a normal bm, I have to do it manually I can't feel when my bladder is full, and when i do empty it, I get an electrical shock through my foot, which lasts until i have finished When i left the hospital, both my legs were flaccid, my left has since regained some tone.

    I had to be non weight bearing for 3 months, still have 3 wks to go, so i don't know how well I can walk. My right leg muscles are unresponsive to electrical stimulation. I had a recent emg test which showed I had axonotmesis at the S1 L5 level. The dr who did it told me 'I have big problems.' All the problems I had when i left the hospital, i still have. No one wants to answer my questions, and although I have been very proactive, I'm not sure how things are going to turn out for me .
    It sounds as if your symptoms are caused by the surgery. I don't hear in your description anything that may be causing the symptoms that you describe. You need a second opinion and an experienced doctor to evaluate your situation.

    Wise.

  8. #8
    What does it indicate if you are unable to lift the heel and, to have no muscular response to e stem (sp)? Its like my leg muscles are just plan 'dead'!

  9. #9
    Senior Member fromnwmont's Avatar
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    I finally had something confirmed that i always suspected, my cousins husband is fresh out of medical school (neurologist) he said there is still way more they do not know then they do.. He is a very smart individual and i believe him.. We want to trust they are going to help us, we hope they can and like you say in the beginning blindly trust a little to much..

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