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Thread: Stem Cell Institute in Panama

  1. #51
    Quote Originally Posted by Christopher Paddon View Post
    Miami Group has referred patients there! Have they done a rigorous study of the place or is that just irresponsible?

    I'm interested in the guy who now walks very well with arm crutches after two treatments at XCell. Was he an Asia A injury do you know? I mean if this is true then his recovery is remarkable.
    @Christopher - I'm not sure about either of your questions. I would love to know more about the thought process of the people at the Miami Project, but I don't have any contacts there - hoping Wise chimes in on this.

    I didn't meet the guy I referred to yesterday - my mom and brother did, and they didn't interrogate him the way I would have Hopefully we run into him again, and I'll ask him more about his pre-treatment status.

  2. #52
    Quote Originally Posted by Wise Young View Post
    intheknowstemcells,

    Before you claim that I was incorrect in my response, you should take a look at the date of my post. I posted it in 9/30/2010. It was about one and a half years ago. At the time that I looked at the web site, they were offering only autologous cells (bone marrow and fat cells). Since I work on umbilical cord blood cells, if they had offered such cells, I would have noticed and commented on that.

    I have recently talked to a father of a spinal-injured person who went and visited this group in Panama. It is true that Miami Project has been referring some patients to them. I learned from this father that they are not using HLA-matched umbilical cord blood cells and that the umbilical cord blood cells are obtained locally in Panama rather than a certified cord blood bank.

    Before anybody agrees to the transplants, they should find out what tests were done to rule out infections. For example, people should ask whether they tested the mother for sexually transmitted diseases such as AIDS and syphilis, as well as common viruses such as cytomegalovirus and hepatitis? It is not enough to test the cells. The mother must be tested.

    I wonder what criteria they are using to isolate so-called mesenchymal stem cells from bone marrow and umbilical cord blood? At the time of my last comment in 2010, I pointed out if this group has a GTP facility, this would be better than most of the other places. However, I wonder who gave them this certification. I doubt that they have a US FDA certified GTP facility.

    They will be injecting the cells intravenously or intrathecally, not into the spinal cord. Many animal studies have shown that few or no cells will enter the spinal cord injury site (particularly in chronic spinal cord injury) from intravenous or intrathecal injections. Be skeptical if they are claiming that the cells will get into spinal cord through these two routes of administration.

    Several groups have injected bone marrow cells intrathecally into several hundred patients, for example in Bombay and Cairo. I don't think that the results from these studies have been sufficiently impressive to claim that the treatment has restored significant function in even a small minority of patients. It would be important to ask them to indicate how many of their patients recovered how much motor and sensory function.

    Wise.
    Hello Wise. Thank you for responding and clearing that up. I can only read what they have on the site as of today. I did do some searching about cord blood HLA matching and would like to know your opinion on this: http://www.translational-medicine.com/content/5/1/8

    Thank you.

  3. #53
    Quote Originally Posted by Christopher Paddon View Post
    Miami Group has referred patients there! Have they done a rigorous study of the place or is that just irresponsible?
    The Miami Project and Medistem Panama (aka Stem Cell Institute Panama) announced a collaboration last year. I believe the agreement was for The Miami Project to screen a cohort of SCI patients to undertake a clinical trial using Medistem's technology. The role of the Miami Project was to collect the appropriate clinical data for this 'trial'.

    btw I personally know an individual who was part of that cohort.

    I'm not sure what has happened since but the collaboration was abandoned halfway through and the data has not been published.

    I did ask Dr Dalton Dietrich (Miami Project) about this but he was cagey about the reasons for the collaboration ending.

    So, in answer to your question Christopher, I think it was intended to perform a rigorous study but unfortunately for some reason it was not completed.

    That is all I know.
    Fly Pelican Fly

  4. #54
    @FlyPelican - very interesting. I would love to know more about that. The reps here did tell me when I visited in June 2011 that they were involved in trials with the Miami Project. This is the first external confirmation I've gotten of that - though it does make me wonder what happened.

  5. #55
    Rahilka. Has your brother received any injections yet ?

  6. #56
    Yes, he has. Last week he got one injection via IV, and two into his spinal canal. He has the same schedule for this upcoming week - one more via IV, and two more into his spinal canal. No signs of anything happening yet

  7. #57
    Senior Member rdf's Avatar
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    Hi rahilka. Is your brother getting sick or having any side effects from the stem cells, or is all good in that area? I wish you all the best of luck.
    Quote Originally Posted by rahilka View Post
    Yes, he has. Last week he got one injection via IV, and two into his spinal canal. He has the same schedule for this upcoming week - one more via IV, and two more into his spinal canal. No signs of anything happening yet
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  8. #58
    Holy shit people, we all want a chance for some/any return but this is NOT the way. Is it worth removing yourself from all future trials - those that have been proven safe and have undergone peer-reviewed scrutiny?

    We need a thread devoted to those who have wasted money chasing this.
    I know at least 2 people that spent $$$ - one to China and the other to Brazil. Know what they got for their money??? NOTHING! About 30k each!

    Realize that for that kind of money you could go for a glider and an FES bike. Own and utilize those two pieces of equipment and you're better off than 70% of the SCI community.

    Get your diet right, exercise, weight bear, put yourself in the best position so you can be a great candidate when chronic trials come around. This isn't a sprint people, it's a marathon. A long, uphill, pita marathon.
    And the truth shall set you free.

  9. #59

  10. #60
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    i agree with colin83
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