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Thread: SP Constant Clogging with proteus mirabilis

  1. #31
    Quote Originally Posted by thehipcrip View Post
    There's at least part of the problem -- your doctor is treating you as though you're an AB, not someone with a neurogenic bladder. For those of us with SCI/D, every symptomatic UTI should be treated as ''complex'', which means 10-14 days of antibiotics rather than the 5-7 day course of treatment recommended for ''simple'' UTIs.

    Do yourself a favor and download this booklet about bladder management and give it to your doctor.
    Hello hipcrip

    I have a question regarding bladder infection treatment, I am AB and have had urinary retention since the birth of my daughter in 1991, was finally diagnosed after years of problems and the near lose of my kidneys in 1996.

    I've been reading this web site trying to learn how to manage my UTI's since I am now either allergic or immune to all oral antibiotics except macrobid.

    I just recently changed urologist and he recommends only 5 days of antibiotic treatment for any infections. I self cath but am AB, I do not want to create resistant bugs in you opinion or any one else will to chime in is 5 days sufficient.

    I have been doing really well keeping infections at bay, but in the last year I am fine with neg cultures but then once I have a problem it's like a merry-go-round.
    I get cloudy urine, burning and spasms
    I go into combat mode and within 12 hours the urine is clear but my uretha is RAW from all the cathing.
    I drop off a urine with in a day or 2 to be sure and it comes back neg no growth.
    But my uretha just doesn't feel right nor does my whole perineum area, I would think maybe it was yeast but I have been to the gyno and had my vagina cultured for yeast and bacteria all neg.

    HOwever if I slack off on my drinking routine I get the symptoms back, but not as bad as the 1st time.

    The last time this happened (8 months ago), and after 2 months of this I drop off the cloudy urine it came back >100,000 ecoli and than later in the day after combat I dropped off another urine which came back negative. for growth.

    The Doc was shocked and put me on 10 days macrobid yuck it mad me so sick. But I stayed clear or 8 months.

    during that time I had alot of cultures done and always the same cloudy comes back + Ecoli clear comes back - no growth and the new doc feels they were new infections and did a Sonogram and said I have no stones.

    Sorry this is so long but here are my questions

    1 Is 5 days of antibiotic enough for someone in my situation.

    2 I have been using veterycin before cathing and on my caths and it has helpd but one day I slacked and did get a return of symptoms.

    3 I see people using "V wound & INFECTION care" Veterycin's web site and my local pet store carry "V wound & SKIN care" whats the difference

    Thanks so much I have learn so much from this site and realize I have to be my own advocate.

    The Doc is talking hospitalization and IV antibiotics in the future under a infectious disease specialists, that scares me.

    PS I also had a culture done when I have the irritated feeling in my uretha and it came back Neg.

    Thanks Diane

  2. #32
    Quote Originally Posted by Hope1111 View Post
    Hello hipcrip

    I have a question regarding bladder infection treatment, I am AB and have had urinary retention since the birth of my daughter in 1991, was finally diagnosed after years of problems and the near lose of my kidneys in 1996.

    I've been reading this web site trying to learn how to manage my UTI's since I am now either allergic or immune to all oral antibiotics except macrobid.

    I just recently changed urologist and he recommends only 5 days of antibiotic treatment for any infections. I self cath but am AB, I do not want to create resistant bugs in you opinion or any one else will to chime in is 5 days sufficient.

    I have been doing really well keeping infections at bay, but in the last year I am fine with neg cultures but then once I have a problem it's like a merry-go-round.
    I get cloudy urine, burning and spasms
    I go into combat mode and within 12 hours the urine is clear but my uretha is RAW from all the cathing. When this happens, you may want to ask your urologist about wearing an indwelling foley catheter for a couple of weeks to help your urethra heal.
    I drop off a urine with in a day or 2 to be sure and it comes back neg no growth.
    But my uretha just doesn't feel right nor does my whole perineum area, I would think maybe it was yeast but I have been to the gyno and had my vagina cultured for yeast and bacteria all neg.

    HOwever if I slack off on my drinking routine I get the symptoms back, but not as bad as the 1st time.

    The last time this happened (8 months ago), and after 2 months of this I drop off the cloudy urine it came back >100,000 ecoli If you are having a lot of ecoli UTIs you may want to consider trying d-Mannose in either powder, tablet, or capsule form. d-Mannose works to help prevent ecoli (not other bacteria that cause UTI) bacteria from sticking to the bladder walls and causing infection.and than later in the day after combat I dropped off another urine which came back negative. for growth.

    The Doc was shocked and put me on 10 days macrobid yuck it mad me so sick. But I stayed clear or 8 months.

    during that time I had alot of cultures done and always the same cloudy comes back + Ecoli clear comes back - no growth and the new doc feels they were new infections and did a Sonogram and said I have no stones.

    Sorry this is so long but here are my questions

    1 Is 5 days of antibiotic enough for someone in my situation. If you have a neurogenic bladder (spinal cord injury), it is recommended that you take antibiotics for urinary tract infections for 10 to 14 days. Since you are able bodied, I can't speak to recommendations for that. You might try researching this question in a search engine for general recommendations the the length of a course of antibiotics for urinary tract infections.

    2 I have been using veterycin before cathing and on my caths and it has helpd but one day I slacked and did get a return of symptoms. Do you instill and retain Vetericyn in your bladder or do you just spray the labia and urethral opening and spray your catheter before insertion?

    3 I see people using "V wound & INFECTION care" Veterycin's web site and my local pet store carry "V wound & SKIN care" whats the difference

    Vetericyn Wound and Skin Care - Blue transparent bottle
    Ingredients: Vetericyn® Wound & Infection Treatment contains Electrolyzed Water (H2O) (99.97%), Sodium Chloride (NaCI) (0.023%), Sodium Hypochlorite (NaOCI) (0.004%), & Hypochlorous Acid (HOCI)(0.003%).

    Vetericyn Wound and Infection Care - Blue transparent bottle
    Ingredients: Electrolyzed water (99.97%), sodium chloride (0.23%), sodium hypochlorite (0.004%), hypochlorous acid (0.003%)

    Vetericyn VF Wound and Infection Care - White opaque bottle
    Ingredients:
    Electrolyzed Water 99.816%, Sodium Chloride 0.023%, Sodium Phosphate 0.015%, Hypochlorous Acid 0.011%.


    Thanks so much I have learn so much from this site and realize I have to be my own advocate.

    The Doc is talking hospitalization and IV antibiotics in the future under a infectious disease specialists, that scares me. When urinary tract infections (UTI) become frequent, recurring and complicated, it is a good idea to consult an infectious disease doctor. These infections do not always mean a hospital stay on antibiotics. A few years ago when I was having chronic UTIs, I consulted an infectious disease doctor and he prescribed at home self administered IV antibiotics using elastomeric pumps like the ones described on the following website: http://www.hrmedical.com/pharmacy-it...ric-pumps.html

    PS I also had a culture done when I have the irritated feeling in my uretha and it came back Neg.

    Thanks Diane
    Hello Diane,
    Unfortunately, I haven't seen "Hipcrip" post much lately. I hope I can address some of your questions. I've typed my answers highlighted in blue within your post.

    All the best,
    GJ

  3. #33
    Super Moderator Sue Pendleton's Avatar
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    Quote Originally Posted by gjnl View Post
    Hello Diane,
    Unfortunately, I haven't seen "Hipcrip" post much lately. I hope I can address some of your questions. I've typed my answers highlighted in blue within your post.

    All the best,
    GJ
    Diane, combat? You were in the military and cathing? If so I would see an infectious disease specialist. Make sue the doctor knows which areas of the world you've been in, any other problems that may be clues and all vaccines you've had and when. And yes, if you are cathing regularly you probably should be taking a longer course of antibiotics than normally. In my experience, once a specimen is in you can cut down on the burning and pain by taking plain Alka-Seltzer. It is not a folk cure of anything. It does get to the bladder in stronger concentrations quicker than taking asprin or Tylenol in other forms. But up the liquids too and skip cranberry and sodas or anything else that causes more burning once you already have an infection. Cranberries/juice do not help once infected they just cause more pain.
    Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

    Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

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