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Thread: Neuropathic pains, Medication advice.

  1. #11
    I tried Lyrica 100x4. Worked great tor me, a friend supplied. The Doc put me on Gabapentin, up to 1800mg(600x3) as of yet no joy, I'll be working on the Doc to switch to Lyrica. Keep trying Lyrica. I'm post 5 years,
    T12 incomplete.

  2. #12
    Senior Member SuprSi's Avatar
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    Smile

    Thanks for all your help and advice!

    After taking the Lyrica 3x daily instead of twice daily for a week now, the pain seems to be easing. I need to get myself into a good routine of getting to bed on time now, was out partying til 3am the other night and I paid the price the next day, it was excrutiating. Was worth it to get out and have a good time I think.

    I still need to talk to my doctor about Oxycodone, might be tricky getting it in the UK. Also a friend is getting me some erm.. herbal stuff :P to try! Got a few ex-friends that went way overboard with that so gonna be careful and use only when needed.

    On a side note I've spent a lot of time down the gym to vent my frustration and my upper body is coming along nicely and i'm back up to 11 stone (went down to 9 stone in hospital and was 13 stone before accident) Need to give floor to chair transfers another go me thinks.
    T11 Asia A after near-fatal bike crash.. Just happy to still be here

    No, I didn't loose my mind... It got scared and ran away!!

  3. #13
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    Quote Originally Posted by TM Girl View Post
    I used to take Tramadol (both extend and immediate release types) but now use oxys. The Tramadol was a great mix with the Pregabalin (Lyrica) but it is not a good idea to take it with Amitriptyline (possible serotonin syndrome problems). Keep on asking to try different combinations of medications until you find the one that works for you. We are all different. All the best.
    Lu
    I have taken an 60mg SSRI and Tramadol for years. My doctor and
    said you have to take a high dose of it to get Serotonin Syndrome.

    http://www.pharmacologyweekly.com/co...tonin-syndrome

    Tramadol is very good when combined with an SSRI but mine has ceased to work over the last year. .

    I will see what combination, I come home with on the 27th as I am going to have to change my regimen due to increase in Central pain this last year.

    I think you can get to the point where you develop a tolerance for all drugs. It has been that way with bladder meds.

    What is strange is that the first 15 years of my injury, I was able to just bare the Central Pain and now I can't. The last 8 have been a steady increase in pain and a decrease in my tolerance level to pain. I don't even feel ear infections so I know I have a high pain tolerance. It takes my concentration away and I have become more forgetful. It is hard to explain that to family. I don't talk to anyone in my family about pain but they have all noticed the changes in my ability to remember and concentrate. I had a high stress job that I have been doing off and on the last 17 years and I gave that up because I just could not concentrate enough to manage my employees.
    Last edited by darkeyed_daisy; 01-16-2012 at 03:22 PM.
    T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

    My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

  4. #14
    Senior Member SuprSi's Avatar
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    Does anyone have any info or links on good meditation techniques? A quick google search just threw up a lot of sites offering personal tuition for a fee, which I may be prepared to resort to if it's worth doing.

    Edit: Well the weed didn't work so well. I guess because it was my first time I had a very intense high that wasn't particularly pleasant and the nerve pains soon returned after it wore off. I think I'd prefer to have a clear head and deal with the pain rather than getting high all the time.
    Last edited by SuprSi; 01-25-2012 at 09:23 PM.
    T11 Asia A after near-fatal bike crash.. Just happy to still be here

    No, I didn't loose my mind... It got scared and ran away!!

  5. #15

    Neurological Pain - 10 yrs relief with Tramadol

    I'm new to this site. But I was interested in the pain comments. I've been a complete C-6, C-7 quad for 36 years after being hurt in a car accident. My pain started slowly after 5 years. At first, working on my MBA and then my CFP and my own Registered Investment Advisory (RIA) firm; I kept my mind off it.

    But, it got worse and worse to where I couldn't ignore it any longer. I tried everything except medication. Acupressure, acupuncture, massage therapy, hot mineral baths, Chiropractic, electrical stimulation, hyperbaric oxygen therapy, allergy treatments, treatment for yeast infection, I've taken every herb including pot, eaten and not eaten and drank everything, I have a colostomy because I thought the pain was related to bowl programs and finally ... I had a major 10 hour long decompression spinal surgery. Although every specialist in each of these areas assured me they could get rid of my "internal burning/cold needles type pain" nothing really helped the pain. Thank God at least nothing hurt me.

    I'm married, my wife (of 32 years) has done my care for me every day for 36 years (yes, social workers that does work) we were "going out" before I got hurt. I own 5 businesses and run 3 day to day, I work 12 hour days plus and haven't even had even a bladder infection in 15 years. We have two adopted children 9 and 15. Enough of my background … let’s move on to pain medication.

    One day when my daughter was five or six, she wanted to go outside to play. It was a cold day (with the burning pain, cold makes it twice as intense) and I made up an excuse why I couldn't go play with her. I realized that now the pain was effecting her life; the next day I saw my Doctor and said, "I'm ready to try some pain medication ... but no addictive stuff." He tried a number of things including nutropin(sp). Nothing worked at all.

    A salesman left him some new Ultram (Tramadol) samples. He said, "Try these, they are a new type pain killer and they aren't supposed to be addictive." This stuff worked amazingly well. I couldn't even believe it. I started taking a half of one a day ... if I took a whole one it kept me awake. How could a pain pill keep you awake? My theory was that I had gained a huge amount of energy because I wasn't fighting pain all day. If I took a whole one, even though I was awake, I enjoyed it because I could relax without pain. It wasn't 100% gone but it was 80%-90% gone, the intensity was gone and it was so, so much more tolerable.
    I learned over time it works best to take the Tramadol regularly. Taking after pain starts doesn't work nearly as well. At first they make you a bit loopy. But that wares off over time. Also, over time, I had to take more and more of it for it to keep working. It probably took two to three years to slowly get to a level dose. Now I take 2 at 8am - 2 at noon - 2 at 4-5pm and 1.5 at 10-12pm. By-the-way, the loopy feeling goes away once you level out at the right dose for managing your pain. As a side note Tramadol never gave me constipation ... and normally, I'm very sensitive to constipation.

    Now I've been at the same dose for 7 or more years. My pain is under control and I have no problem working ... where my decisions can mean a lot of money. But, the drug rep was wrong about one thing ... Tramadol is addictive and if you get too far past your next dose you'll know what withdrawals feel like (not a good thing). Interestingly, the longer my dose has been level ... withdrawal symptoms seem to be going away. I don't think it would be very hard to quit Tramadol. The pain coming back would be worse than the withdrawals.

  6. #16
    Senior Member ~Lin's Avatar
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    I'm glad you've had such good experience with tramadol. I've also been taking it for 10 years, but it hasn't been enough relief alone for most of that. I'm currently trying to get to a point with narcotics where I can stop it. It does still help a little, but not enough to be worth the amount of pills a day as I'm trying to condense.

    Anything can be addictive, as addiction is quite a bit psychological. Physically there is a difference between addiction and tolerance. Experiencing withdrawal as you describe is not a sign of addiction but a sign of tolerance. I wish more people (drs and patients alike) understood the difference between tolerance and addiction. Tolerance is a normal part of a pain management program and not something to be afraid of. Tolerance exists in addiction, but alone is not a sign or precursor to addiction as many believe. I experience tolerance to a good deal of my medications but I don't fear becoming addicted to my pain medication any more than my heart medication. Both are needed for my health and functionality, but that's nothing to be afraid or ashamed about.

    I hope tramadol continues to work so well for you for a long time to come!
    Board Member of Assistance Dog Advocacy Project working in Education. Feel free to ask me any service dog questions!

    I am not paralyzed. I have a genetic connective tissue disorder with neuro complications and a movement disorder.

  7. #17
    Tramadol seems to be an all or nothing drug -- if it works for you, it works really well, but otherwise it does nothing at any dose. I tried it a few years back; it did nothing. I do, however, get some pain relief from toradol, the IV version of the drug, if my pain isn't too severe.

    I'm also taking a cocktail of pain meds -- methadone, amitriptyline, and gabapentin -- to help me manage a combination of central and nociceptive pain. The methadone is a miracle drug as it helps on both fronts. I deeply regret that my fear of the drug kept me from trying methadone for so many years. I spent at least a decade in much more pain that I needed to endure and spent thousands and thousands of dollars taking a narcotic that was much less effective and ten times more expensive.
    It is easier to find men who will volunteer to die, than to find those who are willing to endure pain with patience.

    ~Julius Caesar


  8. #18
    Senior Member ~Lin's Avatar
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    Quote Originally Posted by thehipcrip View Post
    I do, however, get some pain relief from toradol, the IV version of the drug, if my pain isn't too severe.
    Did you mistype somewhere? Toradol is a completely different drug from tramadol. Its available both IV and in pill form, but cannot be taken long term. Its only for acute pain and short term use. Its a powerful NSAID.
    Board Member of Assistance Dog Advocacy Project working in Education. Feel free to ask me any service dog questions!

    I am not paralyzed. I have a genetic connective tissue disorder with neuro complications and a movement disorder.

  9. #19
    Senior Member SuprSi's Avatar
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    Thanks for sharing your experience with Tramadol Vern, that's very helpful. A lot of people at the rehab I went too had the "loopy" experience you mentioned when they first started it! I can handle my current level of pain, and I'll probably increase the lyrica as the next step if the pain becomes worse, that seems to be working pretty well at the moment. Hopefully I can avoid strong opiods, but methadone does look promising if/when I need it. (thanks hipcrip)

    Lin, did you mean physical dependance rather than tolerance?

    Thanks,
    Si
    T11 Asia A after near-fatal bike crash.. Just happy to still be here

    No, I didn't loose my mind... It got scared and ran away!!

  10. #20
    ~Lin, sure did! Good catch. Further proof that I should always delete and start over rather than trying to convert a sentence on one topic into a sentence about something completely different. Especially when writing after 10p. ~lol~

    SuprSi, I do think ~Lin was talking about dependence rather than tolerance.
    It is easier to find men who will volunteer to die, than to find those who are willing to endure pain with patience.

    ~Julius Caesar


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