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Thread: Millions of Americans Living With Paralysis Provided Hope with the Introduction of the Christopher Reeve Paralysis Act of 2003

  1. #51
    If there are any members from New Hampshire, it would be very helpful if you could write a letter to Senator Judd Gregg to urge his support of the Christopher Reeve Paralysis Bill. See the following topic for more information.

  2. #52
    I just received a personal letter from Michael Bilirakis. Here's the gist of what he said:

    May 29, 2003

    Thank you for contacting me to express your support for H.R.1998, the Christopher Reeve Paralysis Act. I appreciate hearing from you.

    You will be pleased to know that I introduced H.R.1998 on May 7, 2003. I introduced this bipartisan legislation because I felt it was important to enhance our focus on paralysis research, particularly as it relates to paralysis caused by central nervous system trauma and stroke. My bill will help focus research, rehabilitation, and quality of life initiatives supported by the Department of Health and Human Services and the Department of Veterans Affairs.

    This bill has been referred to the Energy and Commerce Sunbcommittee on Health, of which I am Chairman. You may rest assured that I will continue working with my colleagues on a bipartisan basis to secure the enactment of this important legislation into law....

  3. #53
    Senior Member Leo's Avatar
    Join Date
    Jul 2001
    Yankton, South Dakota
    Here's the latest and time to take action. Take 30 minutes each time you log in, contact a couple of these folks, you'll have it done in a couple weeks. The impact will be great.

    Please find below a list of Health, Education, Labor, and Pensions (HELP) Committee Members (Republicans and Democrats); as well as members of the Health Subcommittee of the House Energy and Commerce Committee. We are targeting both Committees for co-sponsorship.

    IF ANY OF YOUR REPRESENTATIVES ARE ON THESE LISTS, PLEASE WRITE TO THEM ASKING FOR THEIR SUPPORT OF THE CHRISTOPHER REEVE PARALYSIS ACT. (If they are listed as co-sponsors, then write to thank them for their support.) After that, write as many more letters as you have time. Thanks!

    In the House of Representatives: HR1998
    In the Senate: S1010

    Senate HELP Committee

    Judd Gregg (R-NH)
    Bill Frist (R-TN)
    Michael Enzi (R-WY)
    Lamar Alexander (R-TN)
    Christopher Bond(R-MO)
    Mike DeWine (R-OH)
    Pat Roberts(R-KS)
    Jeff Sessions (R-AL)
    John Ensign(R-NV)
    Lindsey Graham (R-SC) -- co-sponsor of CRPA,
    John Warner (R-VA)
    (202) 224-2023
    (202) 224-6295 FAX

    Edward Kennedy (D-MA) -- co-sponsor of CRPA
    Christopher Dodd (D-CT) -- co-sponsor of CRPA
    Tom Harkin (D-IA) -- co-sponsor of CRPA
    Barbara Mikulski (D-MD)
    Jeff Bingaman (D-NM)
    Patty Murray (D-WA)
    Jack Reed (D-RI)
    John Edwards (D-NC)
    Hillary Rodham Clinton (D-NY)
    James Jeffords (I-VT) -- co-sponsor of CRPA

    House Health Subcommittee (Energy and Commerce Committee)

    Michael Bilirakis (R-FL) -- co-sponsor of CRPA
    Joe Barton (R-TX)
    Fred Upton (D-MI)

    Jim Greenwood (R-PA) -- co-sponsor of CRPA
    Nathan Deal (R-GA) -- co-sponsor of CRPA
    Richard Burr (R-NC)

    Edward Whitfield (R-KY)
    Charles Norwood (R-GA)

    Barbara Cubin (R-WY)
    Heather Wilson (R-NM)
    John Shadegg (R-AZ)
    Charles Pickering (R-MS)

    Steve Buyer (R-IN)

    Joseph Pitts (R-PA)
    Ernest Lee Fletcher (R-KY)

    Michael Ferguson (R-NJ)

    Michael Rogers (R-MI)

    Sherrod Brown (D-OH) -- co-sponsor of CRPA
    Henry Waxman (D-CA) -- co-sponsor of CRPA
    Ralph Hall (D-TX)
    Edolphus Towns (D-NY) -- co-sponsor of CRPA
    Frank Pallone (D-NJ)
    Bart Gordon (D-TN) -- co-sponsor of CRPA

    Anna Eshoo (D-CA) -- co-sponsor of CRPA
    Bart Stupak (D-MI)
    Eliot Engel (D-NY) -- co-sponsor of CRPA
    Gene Green (D-TX) -- co-sponsor of CRPA
    Ted Strickland (D-OH) -- co-sponsor of CRPA

    Diana DeGette (D-CO)

    Lois Capps (D-CA)

    Chris John (D-LA)

    Thanks Patricia and all.

    [This message was edited by Leo on 06-18-03 at 05:19 PM.]

    [This message was edited by Leo on 06-18-03 at 07:24 PM.]

    [This message was edited by Leo on 06-29-03 at 01:47 PM.]

    [This message was edited by Leo on 06-29-03 at 01:51 PM.]

    [This message was edited by Leo on 06-29-03 at 01:56 PM.]

    [This message was edited by Leo on 07-28-03 at 06:06 PM.]

  4. #54
    Senior Member Leo's Avatar
    Join Date
    Jul 2001
    Yankton, South Dakota
    Cure's Now

    [This message was edited by Leo on 06-29-03 at 01:53 PM.]

  5. #55
    Banned Acid's Avatar
    Join Date
    Dec 2002
    Bent, maybe it's just stupid thoughts of me,
    but somehow with eyes and stemcells I'd be some less worried with "mutations".

    With the eyes (or nearby there) there seems no vital system nearby.
    Alone with C1 the brainstem would be straight next, not that I am sure a mutating cell can spread it's kind into there, to wildly proliferate in there, too.

    But I get the criticism concerning double standards.

    (With eyes I am also not sure, if there are other methods ...
    as with spine glial stuff, or that Isreali method.

    Although I heard an eerie story / rumour in context with organ theft in India, of someone sort of having his eyes stolen and them used for transplant.
    Though I ain't know how much there was to that.)

  6. #56
    Senior Member Leo's Avatar
    Join Date
    Jul 2001
    Yankton, South Dakota
    Got Senate contact info done, now it's so easy a gimp can do it.

  7. #57
    Senior Member kilgore's Avatar
    Join Date
    Jul 2001
    Madison, WI USA
    Hey, Leo
    My email and letter to Senator Gregg were both sent back to me because I didn't have a New Hampshire address. Actually, if I were a senator I'd probably do the same. But you seem to have gotten through to some people. What's your secret?

  8. #58
    I am shocked that they sent the letter back. That is so strange. After all, he is a senator that is deciding on legislation that affects all Americans. How in the world can they return mail when it is not from his state? Wise.

  9. #59
    Senior Member Leo's Avatar
    Join Date
    Jul 2001
    Yankton, South Dakota
    Hi Kilgore,

    Here's an email address that might work. I would bet though if we are not from his state that we'll get a reply. But he will get the message.

    Here's his web form comment page,

    I just sent one to him we'll see if I get confirmation.

  10. #60
    Senior Member kilgore's Avatar
    Join Date
    Jul 2001
    Madison, WI USA
    That's where I sent it and this is what I got:

    "Thank you for contacting my office. I appreciate the opportunity to respond individually to every letter, phone call and e-mail message sent to my office by residents of New Hampshire. My office has a policy of sending a prompt postal response to New Hampshire residents. Your message was not received by my office due to a missing postal address.
    Please resubmit the original text of your message with a New Hampshire postal address included at the top of the body of the message."

    Maybe he's the only one ignoring out-of-staters. Have you gotten through to anybody else?

    By the way, I talked to someone on my Representative's staff. He looked at the sponsors said he'd never seen such diverse support for a bill.

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