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Thread: Millions of Americans Living With Paralysis Provided Hope with the Introduction of the Christopher Reeve Paralysis Act of 2003

  1. #1
    Senior Member Max's Avatar
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    Millions of Americans Living With Paralysis Provided Hope with the Introduction of the Christopher Reeve Paralysis Act of 2003

    Millions of Americans Living With Paralysis Provided Hope with the
    Introduction of the Christopher Reeve Paralysis Act of 2003
    To: Assignment Desk, Daybooks
    Contact: Maggie Goldberg of the Christopher Reeve Paralysis
    Foundation, 800-225-0892
    Colleen Dermody of Witeck-Combs Communications,
    202-887-0500 ext. 18

    News Advisory:

    -- Millions of Americans Living With Paralysis Provided Hope
    With the Introduction of the Christopher Reeve Paralysis Act of
    2003

    -- First-ever Paralysis Legislation Will Fund Research,
    Rehabilitation and Quality of Life Programs at The National
    Institutes Of Health (NIH), the Centers for Disease Control and
    Prevention (CDC), and the Department of Veterans Affairs (VA)

    WHO:
    Christopher Reeve, Chairman, The Christopher Reeve Paralysis
    Foundation (CRPF)
    U.S. Congressman Michael Bilirakis (R-FL) (invited)
    U.S. Congressman Sherrod Brown (D-OH) (invited)
    U.S. Senator Arlen Specter (R-PA) (invited)
    U.S. Senator Tom Harkin (D-IA) (invited)
    The Honorable Tommy Thompson - Secretary, Health and Human
    Services (invited)
    The Honorable Anthony J. Principi - Secretary, Veterans Affairs
    (invited)
    Joined by other Members of Congress

    WHAT:
    News Conference to announce the introduction of the Christopher
    Reeve Paralysis Act of 2003. If enacted, this bi-partisan
    legislation would authorize additional funding for paralysis
    research at the National Institutes of Health (NIH) through the
    National Institutes of Neurological Disorders and Stroke (NINDS).
    The legislation would also expand rehabilitation research
    activities through the National Center for Medical Rehabilitation
    Research (NCMRR).

    In addition, the legislation would develop new research programs
    on paralysis within the Veterans Health Administration (VHA) and
    would authorize the CDC to identify projects to improve the quality
    of life and the long-term health of persons living with paralysis
    and other physical disabilities.

    WHEN:
    Wednesday, May 7, 2003
    2:30 p.m.

    WHERE:
    TBA

    ------
    The Christopher Reeve Paralysis Foundation (CRPF) is committed
    to funding research that develops treatments and cures for
    paralysis caused by spinal cord injury and other central nervous
    system disorders. The Foundation also vigorously works to improve
    the quality of life for people living with disabilities through its
    grants program, paralysis resource center, and advocacy efforts.
    For more information about CRPF, please contact CRPF at
    800-225-0292 or visit our website at http://www.christopherreeve.org.

    http://www.usnewswire.com
    -0-
    /U.S. Newswire 202-347-2770/
    04/24 13:48

    Copyright 2003, U.S. Newswire

    http://www.usnewswire.com/topnews/qt.../0424-132.html

  2. #2
    YESSSS!!!!

    The revised version is finally here!!!!

    The Christopher Reeve Paralysis Act bill is the first of its kind ever! The future of spinal cord injury research in the United States is riding on the passage of this legislation!

    I have already written Michael Bilirakis who is my district's Congressman. I'm glad to see that he was invited.

    For all of those who haven't contacted their representatives to support this bill, please do so immediately!

    For more information about this bill including how to contact your reps. and sample letters, please see the following topic:

    http://carecure.org/forum/showthread.php?t=17225

    http://carecure.org/forum/showthread.php?t=17319

    The passage of this bill will ensure that spinal cord injury research gets an additional 100 million dollars a year in NIH funding. Guys, this is our chance to make a difference!!!!

    [This message was edited by seneca on 04-25-03 at 10:45 PM.]

    [This message was edited by seneca on 04-26-03 at 11:20 PM.]

  3. #3
    Senior Member kate's Avatar
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    Send an email to your whole address book

    asking your friends and family for a few minute's time to contact their representatives on your behalf. The phone numbers are always listed in the blue pages of the phone book, and all they need to do is call and say they'd like to see this bill passed right now.

    These forums are always full of people arguing vigorously in favor of this or that position . . . support for this bill is a no-brainer! Nothing to dispute, but something to DO. Let's use the arguing time to raise our voices where it could do some good.

  4. #4
    Senior Member DA's Avatar
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    Millions of Americans Living With Paralysis


    millions???????????

  5. #5
    DA, Yes millions, remember all the "fuzzy math" during the elections ? As far as Bush needs to know, yes , millions are living with paralysis. 450,000 aren't worth fixin.

  6. #6
    Senior Member Jeff's Avatar
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    "Millions" I can believe.

    The Christopher Reeve Paralysis Foundation (CRPF) is committed
    to funding research that develops treatments and cures for
    paralysis caused by spinal cord injury and other central nervous
    system disorders.
    This will include Parkinson's, MS, ALS, TBI and stroke. So....millions is accurate.

    What is hard to believe is that "The passage of this bill will ensure that spinal cord injury research gets an additional 10 billion dollars a year in NIH funding." Ten billion dollars per year for SCI research? Man, I hope so. I had previously thought this bill was for a lousy three hundred million over three years. Significant, but not earth shattering. Ten billion per year, however, really is earth shattering. Even if it gets spread across all CNS conditions and not just SCI. That kind of money is what will definitely cure us. I really hope it's true.

    ~See you at the SCIWire-used-to-be-paralyzed Reunion ~

    [This message was edited by Jeff on 04-26-03 at 05:00 PM.]

  7. #7
    Senior Member Schmeky's Avatar
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    Is it 10 billion per year or 300 million over the next three years?

  8. #8
    I guess we'll have to wait until May 7th to know for sure. This years bill may include changes to the amount of money directed towards cure research but based on the 2002 bill, 100 million is probably a safe bet. According to Dr. Young:

    We should try to get the Christopher Reeve Paralysis Bill passed...in 2003.. If successful, this should provide approximately $100 million per year for paralysis research with an emphasis on spinal cord injury.
    It is asking for $300 million to support spinal cord injury research, rehabilitation, clinical trials, and education programs.
    [This message was edited by seneca on 04-27-03 at 12:09 AM.]

  9. #9
    Senior Member DA's Avatar
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    the easiest thing in the world is to fraud medicare. frauding nih should be easier. who will insure that the money goes toward real hard core research versus using millions toward painting smilely faces on a sliding board?

  10. #10
    The original bill was written after extensive negotiations and discussions with NICHD, NINDS, CDC, and the other federal agencies who are involved with the implementation of the bill. I have not seen the rewritten current draft of the legislation yet and therefore don't know what changes have been made. In the first bill, which was pulled last year, there was language and appropriations for the establishment of a clinical trial network, as well as consortia of laboratories that will work together. In preparation for the bill, I know that both NICHD and NINDS have been holding meetings and also organizing scientists and clinicians who might be potential applicants for grants.

    Wise.

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