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Thread: My brother

  1. #11
    Moderator jody's Avatar
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    welcome to care cure.
    please tell your brother he is invited to join care cure and that this place is full of good people who know what his challenges are.

    Also there is a dr here who is top notch, Dr Wise Young. ....if only we could clone him (kidding) and nurses who are wonderful and smart, as well to give advice, and make living more possibe and even enjoyable.

    I have some questions if you dont mind,
    when was your brother injured, and where did he go for care?
    Does he see a Dr who treats people with spinal cord injury? an sci dr?
    did he get any rehab, and last can he use a computer? there sip and puff computers, and voice programs so he can communicate easily even with low hand function.

    thank you so much for looking after your brother like you are doing. you're a good brother.

  2. #12
    Quote Originally Posted by jody View Post
    welcome to care cure.
    please tell your brother he is invited to join care cure and that this place is full of good people who know what his challenges are.

    Also there is a dr here who is top notch, Dr Wise Young. ....if only we could clone him (kidding) and nurses who are wonderful and smart, as well to give advice, and make living more possibe and even enjoyable.

    I have some questions if you dont mind,
    when was your brother injured, and where did he go for care?
    Does he see a Dr who treats people with spinal cord injury? an sci dr?
    did he get any rehab, and last can he use a computer? there sip and puff computers, and voice programs so he can communicate easily even with low hand function.

    thank you so much for looking after your brother like you are doing. you're a good brother.
    He was injured in 2008 after car accident. I was car that was following him. You know we were just teens and just driving around and we were going home after we went for a nice swim in the lake. This one driver basically hit him head on. Causing his truck to go off the road. Once I saw that they were going to hit I called 911 as fast as I could before it even happened. All I remember was help help. After that I couldn't tell you what happened. I believe he went somewhere in Philadelphia.

    We have a little family doctor we go to all the time. My uncle tries to work with him all the time. He can speak fine he can talk all the time. I think sip and puff would be the best option for him. He doesn't use a computer all that often. He has no triceps and basically no flexing in his arms. He can use his index finger, but he finds it really difficult to use a joystick. Especially if he is having muscle spasms in his arms.

  3. #13
    Moderator jody's Avatar
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    I would guess he was at jefferson, and people say that is the best place. I found it to be wonderful as far as good care and good Dr's go.

    I went there to be fitted for my braces, and other reasons.

    It may be good to get a referral from his regular Dr to see a physiatrist there.
    They will set it up in his Dr's office if you request it. then he can get set up with a sci doc that he should see every year or if he is having problems or changes. It's been a couple years since he was evaluated, and it really is important for him to be checked out by an sci doc once in a while.

    does he have caregivers who check his skin every day? for redness or any start of a problem? if not, you might do some research on preventing pressure sores and such.
    once a sore develops especially on the butt they are a pain to get rid of so careful prevention is important.

    You can ask the nurses here anything, they are very good at keeping people here healthy.
    I really hope you look in to getting your brother properly seated so he can get around as well as possible with his abilities.

    also look at what is happening in the stem cell research and trials, who knows he may qualify for a trial somewhere and if he did His having a sci Doctor would be important to that too.
    Last edited by jody; 12-21-2011 at 03:14 PM. Reason: terrible spelling

  4. #14
    He may need something like this. SCI_OTR Is our forums seating specialist. He can give you examples are all sorts of chairs for different levels of injury. Good luck getting it figured out
    C-5/6, 7-9-2000
    Scottsdale, AZ

    Make the best out of today because yesterday is gone and tomorrow may never come. Nobody knows that better than those of us that have almost died from spinal cord injury.

  5. #15
    Quote Originally Posted by rybread View Post
    He may need something like this. SCI_OTR Is our forums seating specialist. He can give you examples are all sorts of chairs for different levels of injury. Good luck getting it figured out
    Yes, I think that would be perfect. A lot of head support, good controls. He wouldn't really have to use the joystick then. Which is one of his biggest problems. I wonder if that foodrest could be moved or not like angled or something. Thats amazing.

    Quote Originally Posted by jody View Post
    I would guess he was at jefferson, and people say that is the best place. I found it to be wonderful as far as good care and good Dr's go.

    I went there to be fitted for my braces, and other reasons.

    It may be good to get a referral from his regular Dr to see a physiatrist there.
    They will set it up in his Dr's office if you request it. then he can get set up with a sci doc that he should see every year or if he is having problems or changes. It's been a couple years since he was evaluated, and it really is important for him to be checked out by an sci doc once in a while.

    does he have caregivers who check his skin every day? for redness or any start of a problem? if not, you might do some research on preventing pressure sores and such.
    once a sore develops especially on the butt they are a pain to get rid of so careful prevention is important.

    You can ask the nurses here anything, they are very good at keeping people here healthy.
    I really hope you look in to getting your brother properly seated so he can get around as well as possible with his abilities.

    also look at what is happening in the stem cell research and trials, who knows he may qualify for a trial somewhere and if he did His having a sci Doctor would be important to that too.
    His skin looks amazing. I mean I think it looks really good It is not red at all. I mean my brother can eat pretty well. I mean also, the biggest problem is his muscle spasms. I mean if he would have like a major spasms that would push him forward he would basically be stuck. I mean he has a lot of trouble holding and touching things. He told me also that sometimes he feels like his toes are moving, but they aren't.

  6. #16
    I'm sorry but I a having a difficult time believing you...a hospital would not just discharge a c4-5 spinal cord injured young man without a wheelchair, unless they might have put him in a manual and family decided, without understanding his needs, to put him in a chair he was not measured for...as for having a family doc, I would think a sci patient would be over his head, your brother is very, very lucky he has not had any skin issues, perhaps he could be admitted to a rehab hospital and take advantage of all they have to offer. Have not meant in any way to offend you, but this just sounds a bit far fetched...

  7. #17
    Quote Originally Posted by madmaddmother View Post
    I'm sorry but I a having a difficult time believing you...a hospital would not just discharge a c4-5 spinal cord injured young man without a wheelchair, unless they might have put him in a manual and family decided, without understanding his needs, to put him in a chair he was not measured for...as for having a family doc, I would think a sci patient would be over his head, your brother is very, very lucky he has not had any skin issues, perhaps he could be admitted to a rehab hospital and take advantage of all they have to offer. Have not meant in any way to offend you, but this just sounds a bit far fetched...
    He has a powerchair, but I am looking for one to fit his needs a bit more. I know what he needs and his chair is fine, the biggest problem is operating it. His skin looks just as good as mine and I am fully functional. It is the same color and everything. You didn't offend me at all. I am completely new with this, and trying to understand it a bit more. I just want what is best for my brother. Him and I were never really close, but we are getting a lot closer now.

  8. #18
    Or possibly this..

    http://sci.rutgers.edu/forum/showthread.php?t=142155




    How a sip-n-puff works is described in this thread.


  9. #19
    Moderator jody's Avatar
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    all the bellls and whistles that one.

  10. #20
    Quote Originally Posted by SCI_OTR View Post
    Or possibly this..

    http://sci.rutgers.edu/forum/showthread.php?t=142155




    How a sip-n-puff works is described in this thread.
    I know this perfect chair. How could I make something like this happen? Also, I was reading the thread several times I still don't know how the sip and puff really works still. I am still a bit confused and I have questions. Like how can it be hooked to the chair? Is it like a usb cord for a mouse to computer? Is it the same kind of concept?

    But, that chair would meet all of his needs.

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