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Thread: My brother

  1. #1

    My brother

    I am looking for some kind of powerchair for my brother will be 21 in June of 2012. He has a spinal cord injury. I think he is a C4/5. He suffered it about 3 years ago. He has a powerchair currently, but finds it difficult to use.

    He always complained of neck pain and usually likes to rest his neck. He can talk and speak fine not the best singer tho. Another problem he has is major muscle spasms and limited hand control ability making it very frustrating to use a joystick. Is there some kind of control system he could use that wouldn't involve using his hands? He usually likes to also have his phone with him, but has no were to really place it.

    I'm looking for the chair my of brother's dreams just to make his life a little bit easier. Do you have any suggestions for any kind of char that has tilt/recline that has all of the features I listed able?


    Thanks I hope you can help.

  2. #2
    What is your brother's insurance? I assume he is now on Medicare? If so, he needs to have a wheelchair evaluation by a PT or OT who is RESNA certified. They will determine what his specific needs are, and recommend a specific brand, model, and features. They will then write the medical letter of necessity for the wheelchair, which his physician must sign to submit to the insurance company for approval. Even if he has other insurance, many insurance companies use the same regulations as Medicare for durable medical equipment (DME).

    Only when it is approved should the chair actually be ordered. A chair like your brother needs could easily run $25,000 if you were to purchase it out of pocket.

    (KLD)

  3. #3
    Quote Originally Posted by SCI-Nurse View Post
    What is your brother's insurance? I assume he is now on Medicare? If so, he needs to have a wheelchair evaluation by a PT or OT who is RESNA certified. They will determine what his specific needs are, and recommend a specific brand, model, and features. They will then write the medical letter of necessity for the wheelchair, which his physician must sign to submit to the insurance company for approval. Even if he has other insurance, many insurance companies use the same regulations as Medicare for durable medical equipment (DME).

    Only when it is approved should the chair actually be ordered. A chair like your brother needs could easily run $25,000 if you were to purchase it out of pocket.

    (KLD)
    Oh wow that is a bit surprising. His old chair we just got off the market. I don't know for how much. I am not sure what kind of insurance he is on or any of that information. So he would have to go through all of this to get a chair at low cost? I am not saying cost is a concern I just want what is best for my bro. Another concern is I have is his how tall he is, he is over 6 feet.

  4. #4
    Moderator jody's Avatar
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    no that wont work getting one that hasnt been fitted for him especially. and it is really bad for his bottom in the long run.

    a chair made for him would be a easy for him to use, because his head will be supported right, and controls specific for his needs. they have sip and puff devices for people who cant use their hands at all, or my friend with Ms, has a set up that she uses only 2 fingers to control. her chair can raise up almost like she is standing, and it lays back so she can nap, or rest her bottom.

  5. #5
    Horse... then cart.

    Meaning, first thing your brother needs is a proper evaluation. There are many different types of driver controls out there. I wouldn't even begin to recommend one without doing a full evaluation on your brother.

    You are being vague on his funding. If he has insurance or medicare, your first step is to go to a seating clinic to be evaluated. If (for whatever reason) you are paying cash, I still recommend a proper evaluation. You could get a therapist or rehab specialist (on the side) to make their recommendations for less $$ then going to a facility.

    Post where you are in the country and ask for your neighbors to make recommendations where or who to go to. If you are anywhere near So. California, I would be happy to meet you

  6. #6
    Quote Originally Posted by jody View Post
    no that wont work getting one that hasnt been fitted for him especially. and it is really bad for his bottom in the long run.

    a chair made for him would be a easy for him to use, because his head will be supported right, and controls specific for his needs. they have sip and puff devices for people who cant use their hands at all, or my friend with Ms, has a set up that she uses only 2 fingers to control. her chair can raise up almost like she is standing, and it lays back so she can nap, or rest her bottom.
    Why would it be bad for his bottom in the long run and Yes, I have heard of the sip and puff before how that does that work? Also does it take a lot of energy to use? Also, how can you hook that up to a powerchair. I understand what you are saying and mean. What kind of chair does your friend have?

    As you can see I am pretty much clueless when it comes to this stuff.

    Quote Originally Posted by jakeyboy1 View Post
    Horse... then cart.

    Meaning, first thing your brother needs is a proper evaluation. There are many different types of driver controls out there. I wouldn't even begin to recommend one without doing a full evaluation on your brother.

    You are being vague on his funding. If he has insurance or medicare, your first step is to go to a seating clinic to be evaluated. If (for whatever reason) you are paying cash, I still recommend a proper evaluation. You could get a therapist or rehab specialist (on the side) to make their recommendations for less $$ then going to a facility.

    Post where you are in the country and ask for your neighbors to make recommendations where or who to go to. If you are anywhere near So. California, I would be happy to meet you
    Well, right now he has a joystick and he has some problems using it. He finds it a bit difficult to use when his hands aren't working right on a specific day. I mean we have good days and bad days. I suppose he should get evaluated then aswell. Also, we live in Pennsylvania.

  7. #7
    Moderator jody's Avatar
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    does he have medicare? he can get evaluated at jefferson magee. or Doylestown hospital has a good group of physiatrist, that is the kind of dr that prescribes equipment and such.

  8. #8
    Quote Originally Posted by jody View Post
    does he have medicare? he can get evaluated at jefferson magee. or Doylestown hospital has a good group of physiatrist, that is the kind of dr that prescribes equipment and such.
    I believe he does. I am not sure. I mean his current chair we just picked up online.

    Also, I have been looking at the Quickie Pulse 6, but it has joystick control.

  9. #9
    Moderator jody's Avatar
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    his bottom is especially vulnerable to pressure sores since simply because he has a spinal cord injury. he has no muscle to pad over the bones, a person with sci has delicate skin that can break down. so changing positions often pressure relief and special seating are very important as pressures sores are a threat to life.

    his chair will be paid for if it is prescribed by a proper Dr. What county do you live in? there are many here from pa, I lived there for 20 years until recently, so someone can offer suggestions to a good place for you to go.

  10. #10
    Quote Originally Posted by jody View Post
    his bottom is especially vulnerable to pressure sores since simply because he has a spinal cord injury. he has no muscle to pad over the bones, a person with sci has delicate skin that can break down. so changing positions often pressure relief and special seating are very important as pressures sores are a threat to life.

    his chair will be paid for if it is prescribed by a proper Dr. What county do you live in? there are many here from pa, I lived there for 20 years until recently, so someone can offer suggestions to a good place for you to go.
    He never really gets pressure sores. I mean his chair has tilt so it can recline maybe thats why? Also the only real that annoys him is his muscle spasms and that joystick.

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