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Thread: We All Need to be Aware, Because Out of Sight Shouldn’t Mean Out of Mind…

  1. #1

    We All Need to be Aware, Because Out of Sight Shouldn’t Mean Out of Mind…

    We All Need to be Aware, Because Out of Sight Shouldn’t Mean Out of Mind…
    By lorilaws On November 27, 2011 · Leave a Comment · In adversity, compassion, disability, humility, persevere, suffering


    I was so glad I read this. It makes me thank God for the most basic things in life we take for granted. This is from Facebook…
    PLEASE READ THIS AND CONSIDER WHAT A QUADRIPLEGIC HAS TO ENDURE EVERYDAY, NEXT TIME YOU MEET WITH SUCH A PERSON KEEP IN MIND LIFE FOR THEM IS NOT ALWAYS A BED OF ROSES, GIVE UNDERSTANDING AND LOVE IN ABUNDANCE !!!

    Pain in The Butt

    I haven’t been feeling well for a while now. My tolerance for sitting up in my chair has been decreasing, ever since I had that pressure sore on my thigh a couple of years ago. I used to be able to tolerate sitting eight hours (or more) every day. Now I typically feel wiped out after only four hours. Even though I’m paralyzed, with hardly any sensation, my body compensates by presenting me with certain signals: chills, cold sweat, profuse sweating on only one side of my face, tingling sensations, fever and tightness in my chest. The signals are called autonomic dysreflexia (common for people with high injuries like mine), and are my body’s way of alerting me to a problem. The bad thing, is the fact that dysreflexic symptoms are secondary symptoms and I have no real way of knowing what the cause is. I tend to go down a mental checklist and try and rule out common possibilities: blocked catheter, wrinkle in clothing, a pressure area, my feet, bowel issues and my position. It’s normally one of the things on the list and once it is resolved, the dysreflexic symptoms go away.

    Most of the time, dysreflexia is only a minor discomfort, that I’ve learned to deal with. However, there are rare occasions when we (my caregiver and I) can’t figure out the cause or I know the cause, but don’t have help nearby. It is especially frustrating when there is nothing to pin it on and I end up feeling sick for long periods of time. In many cases, I think it is caused by urinary tract infections or indigestion. I try to avoid taking antibiotics at all costs, because they reek havoc with my bowels and sometimes cause nausea.The dangerous and/or scary part aboutdysreflexia is the fact that the majority of the symptoms are caused by my blood pressure rising. Since I can’t feel the pain my body feels, it elevates my blood pressure and that’s what causes the secondary symptoms. If the problem causing the pain or discomfort isn’t found, then my pressure will continuously rise and I risk having a stroke. When it gets very high I feel as though I have a vice grip around my ribs, squeezing me and an immense heaviness where my ribcage meets. If you’ve ever had pneumonia, you are familiar with the feeling, although in my case it has nothing to do with my lungs. I do run low grade fevers quite often; always starting in the late afternoon, after I’ve been sitting a while. I can tell as soon as they come on, because I begin to feel very lethargic.Thankfully, I haven’t had any high fevers in a long time. The first year after my accident I had a few potentially lethal fevers, that hit 106 degrees Fahrenheit or more.


    continue...

    http://lorilawspersevere.com/2011/11...n-out-of-mind/

  2. #2
    This blog is everything my son deals with on a daily basis.
    Thank you for posting, I know I will be forwarding the link on.

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