Page 3 of 4 FirstFirst 1234 LastLast
Results 21 to 30 of 35

Thread: low dose naltrexone?

  1. #21
    Welcome, minnie60! How wonderful that LDN stopped your progression! What dose do you take?

  2. #22
    Senior Member
    Join Date
    Sep 2007
    Location
    Fithian, IL
    Posts
    1,967
    Why 4AP and not Ampyra Minnie? Just wondering and yes welcome to carecure.

  3. #23

    Responses

    Hello to both of you and thank you for the welcome.

    LDN dose is 3 mg, I do have allot of spasticity. Regarding 4AP there are a couple reasons. I have read several posts all over and for those who went off the compounded to the new, have found it less effective and many are going back. 2nd, cost is much more reasonable compounded.

    3rd, I am super sensitive to meds, from what I have read the quick release would be a better fit for me. Dosing is better controlled when using quick release.

    I am a person who can't handle 5 mg of baclofen. It knocks me out and legs feel too weighted, zanaflex doesn't work either. When I can't handle my spasticity I take 1 mg of valium and find I rarely use it because of sleepiness. But out of all the meds I have tried it is what I tolerate the best. I am hopeful 4AP will offer some relief for spasticity as well as the other positive effects. as some patients have reported it has reduced theirs.

    I think it was when I was on Skip's forum I saw listed under approved pain killers for LDN is DL-Phenylalanine DLPA, which it posts also enhances the effectiveness of LDN. It states it should be taken twice daily on an empty stomach in doses of 500 mg. I just ordered it yesterday. Am hopeful once I can try it it will reduce some of my pain. Pre LDN the only pain killer I could tolerate was tylonol 3 and is what I used after my carpel tunnel surgery. My body responds extremely well to very small amounts of help. But as you know with LDN any narcotics are out of the equasion.

    Have a great day.

  4. #24
    Minnie, thank you for this great information - it is all very, very helpful!

  5. #25
    Senior Member
    Join Date
    May 2006
    Location
    Central NJ
    Posts
    2,523
    Blog Entries
    1
    I've been taking 3 MG daily for a few years maybe, and have not noticed anything from it, either positive or negative. But I did not know there was any prohibition against narcotics with it. I'm sure I must have had some narcotics when I got injured again in 2009. But maybe I didn't have my other pills with me at the hospital.

    What are some common narcotics?

  6. #26

    Response to Random

    Hi Random,
    Will see if this will copy & paste. Lists ok and not ok drugs for LDN and LDN websites I go into them for allot of information. Didn't reference before because I hadn't researched the site well enough to see if they were already in here.

    Another informational site is Patientslikeme, it is a forum for MS, ALS etc.


    LINKS

    The official LDN website:

    http://www.ldninfo.org
    Diseases helped by LDN:

    http://tinyurl.com/ldn-responsive
    Drugs to avoid when taking LDN:
    http://tinyurl.com/drugs-to-avoid-on-ldn
    Side effects and dosing of LDN:
    http://tinyurl.com/ldn-side-effects
    How to obtain LDN:
    http://tinyurl.com/how-to-obtain-ldn
    LDN-related research:
    http://tinyurl.com/ldn-trials
    Dawn's Hashimoto's blog:

    http://tinyurl.com/4wszdl
    An LDN chat group for MS:
    http://groups.yahoo.com/group/spotlight_ldn
    The 1st U.S. LDN Conference:
    http://tinyurl.com/28e6be
    The 2nd U.S. LDN Conference:
    http://tinyurl.com/second-ldn-conf
    The 1st European LDN Conference:
    http://tinyurl.com/euro-ldn-conf-1
    Dr. Lawrence's advice on LDN and MS:
    http://tinyurl.com/2ejrdj
    LDN for FMS:
    http://tinyurl.com/ldn-for-fms
    A charity for LDN research:
    http://www.ldnresearchtrust.org
    LDN for Alzheimer's:
    http://tinyurl.com/ldn-for-alzheimers
    LDN for autism:
    http://tinyurl.com/ldn-for-autism
    LDN for cancer:

    http://tinyurl.com/ldn-for-cancer
    Bill's LDN and MS site:
    http://tinyurl.com/2b3zvt

    LDN for Crohn's:
    http://tinyurl.com/ldn-for-crohns
    Dr. Berkson on ALA and LDN:
    http://tinyurl.com/berkson-on-ala-and-ldn
    LDN for HIV/AIDS:
    http://tinyurl.com/ldn-for-hiv-aids
    Mary's LDN Radio Show:

    http://tinyurl.com/nnd2nq
    LDN for lupus:

    http://tinyurl.com/ldn-4-lupus
    LDN for rheumatoid arthritis:
    http://http://tinyurl.com/ldn-for-ra
    LDNNow:

    http://ldnnow.co.uk
    LDN for PD:
    http://tinyurl.com/ldn-for-parkinsons
    LDNAware:

    http://www.ldnaware.org
    An LDN-related article:
    http://tinyurl.com/nb4zee
    LDN-related video clips:

    http://tinyurl.com/mercola-on-ldn
    http://tinyurl.com/lwcar5
    http://tinyurl.com/9ean44
    http://tinyurl.com/4gwl6l
    LDN-related books:
    http://tinyurl.com/bk9m8c
    http://tinyurl.com/oz9wdg
    http://tinyurl.com/mk9c58
    http://tinyurl.com/ynkm4n
    http://tinyurl.com/34fxet
    http://tinyurl.com/43l6x2
    http://tinyurl.com/46ut4v http://tinyurl.com/6ouxyy
    Best Regards,
    Minnie

  7. #27
    OOPS, ONE MORE SITE: This is a person with health issues and it is her site I first learned about allot of things and further researched, internet is great once you have the terminology to look upsite


    Just google
    Crystal's MS,TM & LDN Website
    Best Regards,
    Minnie

  8. #28
    Senior Member
    Join Date
    May 2006
    Location
    Central NJ
    Posts
    2,523
    Blog Entries
    1
    Wow minnie, thanks!

  9. #29

    Knowledge is great!

    Your welcome and if anyone has others please share.
    Best Regards,
    Minnie

  10. #30

    LDN, I've been on it for over 7.5 years...

    The first thing you should know about LDN is that it is not a miracle cure. That being said you will likely see any symptoms 6months old or newer will not hang around. I do not plan (unless there is an MS cure) I do not plan to stop using LDN.

Similar Threads

  1. Replies: 0
    Last Post: 09-26-2009, 03:37 PM
  2. Naltrexone
    By singin_intherain in forum Tranverse Myelitis, Multiple Sclerosis, Non-traumatic SCI
    Replies: 2
    Last Post: 01-09-2006, 11:56 PM
  3. Low Dose Naltrexone Hypothesis published
    By SammyJo in forum Multiple Sclerosis Research
    Replies: 0
    Last Post: 02-19-2005, 12:55 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •