Hi. I have had to use catheters for over 10 years, due to my genetic defect and SCI. In 2006, I had a mitrofanoff done and over the past couple of years, have had trouble with bladder accidents. I have been on EVERY bladder medicine on the market (currently on Toviaz), and have started to get Botox injections in my bladder.
The Botox injections were working great up until the last round I got in early September. Ever since then, I have had accidents and constantly feel like I have a UTI (constant urgency, abdominal pressure, accidents, only cathing out a tiny bit every 5 minutes, even though i feel like I have to go very badly). I have never had a problem with the Botox before, until now.
My urologist told me that he was going to have me stop taking my Toviaz for 10 days and go back on it to see if that helped, but if it didn't, I would probably have to have the Botox injections done over again, because it might have been a bad batch.
Is it common for Botox to work for a year and then suddenly stop working? I get the injections every 6-8 months. My uro told me that if the Botox didn't work the next time, then we'd have to resort to surgery, and most likely that would be a permanent urostomy. He doesn't want to do an augmentation, due to the risk of short bowel syndrome, since I had a total colectomy back on 2008. I don't want more surgery, but don't know what else to do about the bladder accidents.