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  • I did not get more functional recovery 3 or more years after injury.

    68 46.90%
  • I had a "complete" spinal cord injury at 24 hours and had no voluntary movement or sensation more than 2 segments below the injury site but recovered additional motor and/or sensory function 3 or more years after injury

    19 13.10%
  • I was an ASIA A at 24 hours and recovered additional function 3 or more years after injury

    29 20.00%
  • I was ASIA B at 24 hours and recovered additional function 3 or more years after injury

    22 15.17%
  • I was ASIA C at 24 hours and recovered additional function 3 or more years after injury

    7 4.83%
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Thread: Do people who were ASIA A, B, C at 24 hours after injury recover function 3 or more years after injury?

  1. #71
    sydneyjo, its okay. Let me try to answer Sherman as to why this kind of information is important.

    1. The dogma is that recovery is limited to the first one or two years after injury. It is this kind of information that allows us to judge whether recovery is due to a treatment or not. For example, several clinical trials have shown some recovery that they claim is very unusual. This poll suggests that, least in this small sample set, as much as third of people with so-called ASIA A or "complete" loss of neurological function more than 2 segments below the injury level at 24 hours will get some sensation and motor recovery three or more years after injury. It may not that unusual.

    2. It raises the question of the mechanism of such delayed recovery. Is it due to spontaneous regeneration? Remyelination? Why is this important? It is important for interpreting clinical trial data. I also think that it is important to know whether there is spontaneous regeneration (albeit very limited) or remyelination in chronic spinal cord injury that is returning function.

    3. I have this theory that the spinal cord continually tries to regenerate for many years after injury. If true, this really changes our thinking about the possibility of therapies designed accelerating or maximizing spontaneous regeneration with therapies. Don't you think that it would change your thinking as well?

    Wise.

  2. #72
    Didn't reply to this poll when it was first posted as I wasn't over three years post. I'm now at about 3-1/2 years, and I have experienced recovery in the last six months. I was ASIA B at 24 hours.

    I spent almost three months at the U of Florida doing locomotor training (I have a thread in Exercise about this). I went there in April walking with lofstrand crutches and a right AFO, and now walk with a cane and no AFO. By losing the AFO, I was able to get return in the muscles of my lower right leg. my dorsiflexion is much stronger and my ankle feels more stable. The peroneus muscles, which, before the training were non-functional, have started working as well. The overall muscle mass increase is very noticable.

    The other thing I've noticed is that my lower body feels better. It's subjective, as My ASIA sensory score didn't change significantly, but I really think something is different. So I'll see where I go from here.

    - Bruce

  3. #73
    Member
    Join Date
    Aug 2004
    Location
    cobourg, on. ca.
    Posts
    57
    I am a c6/c7 injury. 24hrs after accident after lamectomy I had movement in one toe, no sensation to hot cold sharp or dull. After 6 months in sunnybrook hospital I walked out and continued my carreer in the Air Force and retired in 1972. I took a job as a gas company meter reader for the next 13 years, walking on average 10 miles daily.
    From the date of my injury (1956 until well into the late 70's early 80's I continued to improve. During this time I can say that my condition did not hinder me in becoming an excellent curler, 5 pin bowler (228 average) and a fair tennis player. Although the body sensation did not improve and the bowel and bladder problems were there to a degree I still had a marvelous revovery until age 52, at which time my condition changed direction. I am now 68 years old(48 years post injury and can barely walk and very weak. They call this SCI and aging. Olly

    olly

  4. #74
    Then you started to get worse 32 years post. That is excactly like me. But I have never been so good walking like you.

    Why do the doctors know so little about it?

    TH 12 incomplete 12-12-69.

  5. #75
    Senior Member KDK513's Avatar
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    Aug 2001
    Location
    Cincinnati, Ohio, USA
    Posts
    392
    My husband was injured December 23, 1999. We were told his injury was complete at T4, his ASIA was A. Two days later he could feel the pinprick on his big toe, but that was all. As of 14 months ago his level had dropped to T7, ASIA B-. Yesterday his Doctor was shocked, not having seen him during the past 14 months to find his level is now T10, ASIA D. His doctor was very encouraged and believes his swimming 2-3 miles a week, nautilaus training and PT has contributed to this improvement. He wants him to step it up even more and walk as much as possible. I was wondering if the program Bruce participated in would be viable for my husband. We are very excited at his continued improvement.

  6. #76
    KDK, it sounds like your husband would benefit from locomotor training. The trial I was in at UF is over and they don't have funding for additional studies at present. I heard that SUNY Upstate Medical University in Syracuse was doing something; I'll see if I can find contact info about that. There is starting to be more locomotor training available in clinical settings, and some places like Project Walk in San Diego and SCI-Step in Ohio may offer it as well.

  7. #77
    Senior Member KDK513's Avatar
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    Aug 2001
    Location
    Cincinnati, Ohio, USA
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    392
    thanks Bruce, I think SCI Step may be right here in Cincy

  8. #78
    Junior Member Quality53's Avatar
    Join Date
    May 2005
    Location
    Simpsonville, SC, USA
    Posts
    3
    My son's 17 year old brother-in-law crashed on an ATV 12 days ago and is T8/9.(Terms I did not know 12 days ago) He is like a son to my wife and I and we are trying everything to help him. He had a tear in his thorasic duct which cost him a chance to try the Procord study, could not be transported to Shephard) (Dr's are mute as to how this happen, but his lung was collaped when he entered the hospital.) I have been on the web day and night since this happened and was amazed at the lack of knowledge that the Dr.'s showed about some of the research going on. I am an engineer and research is what I do for a living, but I would expect that specializes in the care of people with spinal issues would be up todate on what is going on in their field. I am really taken aback by the lack of options that are available for those with spinal cord injuries. You would think that giving the times we live in that there would be much more that they could do. Boy was I dumb!! I have sent word to the Dr's on several treatments that I have found, (not cures, but lessing of the damage to the spinal cord) and they respond by telling me that they will have to research that!!! Hell, I thought you guys were specialists in spinal care. Some of these treatments were conducted at Harvard!!! Don't these guys read????

  9. #79
    Quality53, I have copied your post to the New SCI Forum and responded there. Wise.

  10. #80

    sister of sci patient

    hi young wise

    my brother is C7-C7 in complete sensory maybe complete motor he was injured march 05 he has normal arm range and movement very good wrist movement but very poor hand and finger movement he has movement in his hips he is on a bowel program every other day while he has no problem in hospital when he comes home at weekends it does not work so well is there any hope of him he control of the bladder or bowel. we are still in the dark about sci just found this site today any information or advice will be greatly appreciated

    thank you
    marie

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