Page 1 of 4 1234 LastLast
Results 1 to 10 of 38

Thread: AFO Recommendations

  1. #1
    Junior Member
    Join Date
    Feb 2010
    Location
    Atlanta, Georgia
    Posts
    6

    Smile AFO Recommendations

    My name is Ron Swann, I am new to the Care Cure Community
    I have Cauda Equina Syndrome and am 5 years post op.
    I am an athlete and very active (swim, bike, walk with poles)

    I am initiating the search for a new set of AFO's (my paralysis is bilateral and my primary motor summary is 0 Plantar Flexion, 3-4 Hamstrings, 3-4 Glutes, 5 Quads and 5 Dorsar)
    I've had a pair of Allard Blue Rockers (which I think are really designed for foot drop/weak dorsar flexors.) that I wear when riding a recumbent bike but are too uncomfortable for walking.

    I live in Atlanta and visited Atlanta O&P this past Thursday for a consultation. I have been impressed with their website, staff, and reputation but was surprised they are recommending a custom AFO with a hinge. I can't get my mind around how its going to work.

    I would love to hear thoughts and recommendations from AFO Wearers

  2. #2
    Moderator jody's Avatar
    Join Date
    Jan 2004
    Location
    east o the southern warren
    Posts
    8,530
    well recomendations from other wearers would be useless, since it is the physiatrist who makes the decision and script. I would rather have metal braces because I am very active out doors, and airflow would be nice. there are other threads about some of us who use them, so it would be better to look at those. everyone is different. I have cauda equina also though, and have been using afo's since I developed it. Hinges would not work for me since I would trip over my toes. maybe you are able to lift your toes some and that is why the hinge.
    Last edited by jody; 02-15-2010 at 11:13 PM.

  3. #3
    Moderator jody's Avatar
    Join Date
    Jan 2004
    Location
    east o the southern warren
    Posts
    8,530
    please fill in your profile. without it, you might be percieved as a devotee or a pretender, and less likely to get response to your post.

  4. #4
    Senior Member mr_coffee's Avatar
    Join Date
    Mar 2005
    Location
    San Francisco, CA
    Posts
    6,030
    Townsend makes amazing afos!
    Injured:10-16-04
    C7/C8, T1 incomplete;


    For stalkers convenience:
    Blog:
    http://www.ordealsonwheels.com/
    Facebook:
    http://www.facebook.com/#!/coryssanchez
    Progress:
    http://photobucket.com/albums/b290/swooty/
    My drawings:
    http://kanvases.com/sites/corysanchez/home

  5. #5
    I would check into custom carbon fiber. I do like the "off the self" carbon fiber (Allard Blue Rocker) but have had several problems with these models for individuals who are very active. I had 3 individuals who had to return the brace/braces after numerous stress fractures in the carbon fiber at or above the foot/ankle line. All the individuals understood the restrictions (stairs, bending....). In my opinion the brace can only handle a certain level of activity.
    “As the cast of villains in SCI is vast and collaborative, so too must be the chorus of hero's that rise to meet them” Ramer et al 2005

  6. #6
    Given that you have very good motor function in every muscle exept plantar flexion, I imagine you are pretty active. That can be a problem when wearing AFO's, since they do not accomodate a lot of movement, specially hip extension or the ankle angle necessary to go up hills, for example.

    I have used a plastic AFO's ( it broke after some extreme level of activity one summer), and then a carbon fiber brace in my right leg. I found both of them extremely restricting, and by blocking hip extension, did not allow recovery in hip muscles in that leg. Even though they were always custom made, I got a couple (actually 3) pressure ulcers, which were a big problem. Finally, two years ago, I got fed up and ditched the brace, getting some sport bandage thing that allowed hip flexion and some angle, but was not very good in clearing the foot when walking. It took a while to get used to walking without the brace, but my gait was eventually better. A year ago I found a company in the UK produces a silicone brace called a SAFO ( silicone ankle-foot orthosis) and got one. You can find it here:

    http://www.dorset-ortho.com/product-safo.php

    It is available in the USA too, but not sure where. It is more expensive, but for me, it is worth it. The advantages of it are:

    - it is soft and does not cause any friction with the skin, yet it holds the foot in a clearing position when walking.

    - it allows some degree of hip extension and bending of the ankle when needed.

    - it is very small compared it an AFO, so you can wear almost "normal" shoes and it does not show through clothing.

    - This is my FAVORITE: you can wear it on the beach, for water sports or when going to the pool, so that it is safer to participate in these activities without the risk of falling. They can also match the color of the brace to your skin, so that it is not very noticeable.


    Hope you find an alternative to rigid braces. If you can, avoid them.

  7. #7
    Junior Member
    Join Date
    Feb 2010
    Location
    Atlanta, Georgia
    Posts
    6
    Thanks Jody, I just updated my profile. I'm new to forums and such and wasn't even aware of the term 'pretender'.

  8. #8
    Townsend does make good afo's and kafo's. My orthotist, Wade Bader, at Bader Orthotics and Prosthetics makes great kevlar/graphite ones too. I think I like his ankle joints better than Townsend's. Wade has a website something like kenetic reseach.com He works with other othotists too on a wholesale basis.

  9. #9
    Here is my AFO made by a local Orthotist in my home town. It is rigid plastic. I have no motor function below the knee. I like white and not mannequin color that never matches my skin. Trust me, watching me lurch around, no one will think I have a AB leg. Jasper is checking out the AFO too.

  10. #10
    Senior Member mr_coffee's Avatar
    Join Date
    Mar 2005
    Location
    San Francisco, CA
    Posts
    6,030
    Here's my townsend:

    it was an kafo, cut down to an afo:





    I wear it all day and no issues. Took FOREVER to get it right.
    Injured:10-16-04
    C7/C8, T1 incomplete;


    For stalkers convenience:
    Blog:
    http://www.ordealsonwheels.com/
    Facebook:
    http://www.facebook.com/#!/coryssanchez
    Progress:
    http://photobucket.com/albums/b290/swooty/
    My drawings:
    http://kanvases.com/sites/corysanchez/home

Similar Threads

  1. Webcam recommendations
    By GoTWHeeLs in forum Computers
    Replies: 1
    Last Post: 03-02-2008, 10:01 PM
  2. Movie Recommendations - should I go see...
    By Beth29 in forum Movies & Music
    Replies: 16
    Last Post: 01-25-2008, 12:41 AM
  3. Hoyer recommendations?
    By rtr in forum Equipment
    Replies: 8
    Last Post: 01-12-2008, 10:33 PM
  4. Chair recommendations please!!!
    By Broknwing in forum Equipment
    Replies: 15
    Last Post: 03-14-2005, 08:35 AM
  5. Recommendations please!
    By Diamond Downs in forum Computers
    Replies: 6
    Last Post: 01-21-2005, 11:02 AM

Tags for this Thread

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •