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Thread: Send a question to the new CEO of Rick Hansen Foundation

  1. #71
    Quote Originally Posted by Reed-edm View Post
    ^^This! Come on over Paolo! You too Stemcells! I bet you can meet Rick in Vancouver.. After all, it seems to me that you want this CANADIAN organsation to cure SCI the least you can do is spend a couple bucks here.
    Sure I am seriously considering that.

    At the moment my best hope/dream is that Rick Hansen can attend W2W Oct. 16-18 in Washington DC and to meet him there.

    I see you are from Edmonton. I have a super dear friend who lives in Edmonton...
    In God we trust; all others bring data. - Edwards Deming

  2. #72
    Quote Originally Posted by canuck View Post
    Hopefully once we get a answer another organisation can be hammered on, you know the other ones "that don't care about sci cure" like Miami Project, Reeve etc, hey maybe even question a few european organizations.

    Yeah I'm grumpy but I'm getting tired of one organization always getting hammered. I know "can't hit them all" but honestly why are a bunch of Europeans putting RHI in their crosshairs as the target of opportunity? If you're going to question one question all the organisations and all the major scientists, how much of the money raised for Keirsted sp? Wise et all is spent directly on research? vs. how much is spent on admin, none reasearch related salaries.
    Canuck,

    please see this:

    http://sci.rutgers.edu/forum/showpos...40&postcount=6

    Also this, especially the links included in my post:

    http://sci.rutgers.edu/forum/showpos...3&postcount=26

    ...and please pay more attention to my posts as I don't have enough time for all the deistracted guys like you
    In God we trust; all others bring data. - Edwards Deming

  3. #73
    Quote Originally Posted by Tara View Post
    Hey guys, I am a reporter with the CBC.... and follow this site a lot as a T4 incomplete.
    I'll poke around... and send me any info as well.
    But it's a little touchy -- the Rick Hansen foundation has done a lot for Canadians and awareness around the world. Let me see what I can pull.
    Well I think that Rick may have been screwed by people around him...

    I have a few names in mind..

    Paolo
    Last edited by paolocipolla; 08-02-2011 at 06:43 PM.
    In God we trust; all others bring data. - Edwards Deming

  4. #74
    Senior Member lunasicc42's Avatar
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    secretism about this hurts the cause.... No good reason in letting information not flow and keeping it within a small circle... Expose all info to help the cause
    "That's not smog! It's SMUG!! " - randy marsh, southpark

    "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


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  5. #75
    Quote Originally Posted by lunasicc42 View Post
    secretism about this hurts the cause.... No good reason in letting information not flow and keeping it within a small circle... Expose all info to help the cause
    You are right here, but consider also that if you have just one shoot you want to make sure you use it at the best possible time..
    In God we trust; all others bring data. - Edwards Deming

  6. #76
    Senior Member lunasicc42's Avatar
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    OK then, I hope you are right but i stand by my original point, still
    "That's not smog! It's SMUG!! " - randy marsh, southpark

    "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


    2010 SCINet Clinical Trial Support Squad Member
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  7. #77
    Senior Member canuck's Avatar
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    I get it you don't have time to hit them all but I still don't see a specific reason why you're targeting RHI specifically all the time. How many european organizations have you asked the same questions of and what was there answer.

  8. #78
    Quote Originally Posted by canuck View Post
    I get it you don't have time to hit them all but I still don't see a specific reason why you're targeting RHI specifically all the time. How many european organizations have you asked the same questions of and what was there answer.
    I agree. We need to ask all. One at a time.
    I think though that the organizations that we can ask this to is limited, but when any group raises money for Cure but are also involved in other useful activities, like Rick Hansen Foundation, we need to ask clearly how much goes where and for what?

    I can think of this question being asked to CDRF. Can people think of others that we should also be asking.
    Dennis Tesolat
    www.StemCellsandAtomBombs.blogspot.com

    "Change does not roll in on the wheels of inevitability, but comes through continuous struggle. And so we must straighten our backs and work for our freedom."
    Martin Luther King

  9. #79
    Quote Originally Posted by canuck View Post
    I get it you don't have time to hit them all but I still don't see a specific reason why you're targeting RHI specifically all the time. How many european organizations have you asked the same questions of and what was there answer.
    OK, I see you didn't read my posts with attention.

    Did you see that I have questioned CDRF more than a year ago and they come up with numbers in a few days? Since I don't think they are transparent enough I plan to question them again soon.

    About european foundation I have questioned a few, other I will.

    Wings For life & Spinal Research give 100% to SCI research to cure SCI and you can see on their site what research project they have funded.

    So far no one is as difensive as RHF. Common sense would suggest they have something to hide.... but common sense is not very common you know.

    Did you ask the question to RHF new CEO?

    If they were saying that are spending money for quality of life program but you would see thay are actually spending all the income just on SCI research would you be happy with it or you would question what they are doing.

    I think 50% care and 50% cure would be reasonable, don't you think?

    But from what I understand they spend 100% on quality of life. If that is not correct they should just answer the question.

    Does that make any sense to you?
    Last edited by paolocipolla; 08-03-2011 at 05:06 AM.
    In God we trust; all others bring data. - Edwards Deming

  10. #80
    Maybe we should simply back the people we know are supporting cure research. It's unlikely that we can change the current strategy of the Rick Hansen organizations - I think some of these institutions actually see an advantage with keeping us in our chairs so we are not likely to get much sympathy for a cure.

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