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Thread: Send a question to the new CEO of Rick Hansen Foundation

  1. #11
    Done and also sent it to my friends! Nobody must feel hurted about this question.
    About the answer, if we receive it will be good if we don't.....it is already an answer....

  2. #12
    Senior Member
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    Quote Originally Posted by StemCells&AtomBombs View Post
    You can send your email by visiting: http://stemcellsandatombombs.blogspo...tions-new.html

    We often argue on this site about the amount of money and attention given to central nervous system regeneration by Rick Hansen Foundation (RHF) and its offshoots Rick Hansen Institute and ICORD.

    We argue, but we often don't have the facts we need to ever end the discussion and move on. So today I have set it up so you can ask Mr. Art Reitmayer, the new CEO of RHF, a direct question as well as congratulate him on his appointment and RHF's 25 year anniversary.

    The question is:
    What percentage of funds from RHF go directly to a cure for spinal cord injury?

    You can go here to send the email: http://stemcellsandatombombs.blogspo...tions-new.html

    The more that ask, the better chance at an answer so we know where we stand (pun intended).

    Please pass it along to your friends and urge them to send this question.
    Done. Await the answer(s) with interest.
    2010 SCINet Clinical Trial Support Squad Member
    Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature.

  3. #13
    Any Spanish speaking friends? It's now sent to send in Spanish.

    http://celulasmadreybombasatomicas.b...-al-nuevo.html

    People have signed from Armenia, Australia, Canada, Cyprus, Italy (way in the lead), Japan, New Zealand, Norway, Spain, the Netherlands, the USA, and the UK.
    Dennis Tesolat
    www.StemCellsandAtomBombs.blogspot.com

    "Change does not roll in on the wheels of inevitability, but comes through continuous struggle. And so we must straighten our backs and work for our freedom."
    Martin Luther King

  4. #14

  5. #15
    I got a reply to my request. The only thing I don't understand is why have two organizations if one isn't going to be focusing purely on cure research and the other purely on quality of life research?

    "Dear Christopher,

    Thank you for your inquiry. We appreciate the opportunity to share further details with you about the nature of our work.


    The Rick Hansen Foundation (RHF) focuses its efforts on improving the daily lives of people with disabilities by creating more accessible and inclusive communities, and accelerating the search for a cure for spinal cord injury (SCI).


    As you know, SCI research is highly complex. The continuum of care – from point of injury, to rehabilitation and recovery – is extensive, and requires both financial and practical support at all stages to ensure people with SCI can continue to live as productive citizens in an inclusive and accessible society.

    Since 1988, RHF has generated $200M for SCI research and quality of life programs while helping to improve the prognosis for newly injured individuals, by directing funds to major research grants and charitable programs.


    Among the Foundation’s commitments to a cure for SCI, is the creation of the Rick Hansen Institute<http://www.rickhanseninstitute.org/> (RHI). This independent Institute is a Canada-wide collaboration dedicated to accelerating progress towards a cure and improving the quality of life for people who live with SCI and related-disabilities. RHI invests in and supports the most promising work in SCI translational research and the adoption of best practices, including supporting experts working in the promising field of stem cell research. They are also working towards solutions to improve the day-to-day quality of life for those living with SCI, hence their short term focus on reducing the severity of secondary complications associated with SCI.


    Leveraging a global network of like-minded individuals and organizations, RHI is doing everything possible within their means to help create a world without paralysis after spinal cord injury. Given their relative size and reach, and the work of others in basic and primary research around the world, their focus is on efforts to accelerate the translation of discoveries and best practices into improved treatments and quality of life for individuals with SCI.

    We hope this information clarifies the work of the Rick Hansen Foundation and the Rick Hansen Institute. Together, we form one component within a very large community of organizations around the world, dedicated to improving the quality of life of people with disabilities. Our long-term vision is a cure for paralysis after SCI and our continued dedication to this vision is anchored in the ongoing advances happening in the field of SCI research.

    We encourage you and others interested to visit our websites at www.rickhansen.com<http://www.rickhansen.com> and www.rickhanseninstitute.org<http://www.rickhanseninstitute.org> to learn more about how we are working towards our common goals.

    Regards,

    The Rick Hansen Foundation and The Rick Hansen Institute"

  6. #16
    Quote Originally Posted by Christopher Paddon View Post
    I got a reply to my request. The only thing I don't understand is why have two organizations if one isn't going to be focusing purely on cure research and the other purely on quality of life research?
    The only thing I don't understand is why won't they answer a simple question? (They sent out a full page cheerleading advertisement for their websites, but not once do they directly answer the one question you asked?) It appears you received nothing more than their mass standard form letter that's generated by the touch of one button.

    The question is:
    What percentage of funds from RHF go directly to a cure for spinal cord injury?
    Last edited by GRAMMY; 07-29-2011 at 04:11 AM.

  7. #17
    You can view the question and the answer side by side for an easy comparison.

    http://stemcellsandatombombs.blogspo...from-rick.html
    Dennis Tesolat
    www.StemCellsandAtomBombs.blogspot.com

    "Change does not roll in on the wheels of inevitability, but comes through continuous struggle. And so we must straighten our backs and work for our freedom."
    Martin Luther King

  8. #18
    I'm going to go away and think about what to do next, but in the meantime, I'd love to hear your ideas. Remember, there's 200 million at stake here.
    How do we get that going to REGENERATION?

    But first a little laugh.http://stemcellsandatombombs.blogspo...sh-to-art.html
    Dennis Tesolat
    www.StemCellsandAtomBombs.blogspot.com

    "Change does not roll in on the wheels of inevitability, but comes through continuous struggle. And so we must straighten our backs and work for our freedom."
    Martin Luther King

  9. #19
    Senior Member
    Join Date
    Oct 2010
    Location
    South Devon, UK
    Posts
    537
    Yes, I had a prompt reply. The wording appears to be identical, (a sort of e-proforma), with the name of the recipient and e-mail address put in. I still need to read the answer carefully.
    2010 SCINet Clinical Trial Support Squad Member
    Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature.

  10. #20
    Yes Grammy i think we all received the same "answer" = not answer.
    I find latest link of Dennis blog is fantastic....and unfortunatly real!
    Of course we have to go on and i am thinking too for any ideas about what to do next
    arcy

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