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Thread: pressure/bed sore healing facility recommendation in nj??..

  1. #71
    Senior Member lynnifer's Avatar
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    I have no experience with a bone biopsy ... but I wish you had been on IV antibiotics right after that rehab doc disturbed an infectious bone area. Jeezus.

    Careful with transfers on Cipro ... it can cause tendon ruptures so no awkward or high transfers. I'm on it myself at the moment (along with Clindamycin) and doing the yogurt thing! lol

    Hope you take multi-vitamins! If not, good time to start! Congrats on making a commitment to at least half your smoking habit - hope you stick with it!
    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

  2. #72
    Member juras's Avatar
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    Quote Originally Posted by lynnifer View Post
    ....Careful with transfers on Cipro ... it can cause tendon ruptures so no awkward or high transfers. I'm on it myself at the moment (along with Clindamycin) and doing the yogurt thing! lol...Hope you take multi-vitamins!..... Congrats on making a commitment to at least half your smoking habit...
    damn, didn't know about the 'tendon rupturing' side effect of cipro...that can screw up my world even further...problem is, all my transfers these days are awkward and rather hard...my legs,hips and torso have deformed so much from their previous state, from all this bed dwelling while i was on a 'vac', that currently as soon as i'm in a non-standard reclining position on my side, i spasm violently from my upper back to feet; and there are 2 sorts of spasms which happen simultaneously...
    one is the typical flaying, flapping and shaking of my extremities...the other type [actually still the same type of a spasm just manifests itself outwardly in a very different way] is the 'locking' up of my body, joints and extremities forcibly in a state of high tension and often stretched out, which usually ends with a huge throw of my body backwards or to the side and i've flipped over in my wheelchair from that already...

    the spasms are triggered by any smallest stimuli of my body, such as a slight shift of position or even a light touch somewhere upon my body...thus, nearly every transfer, even a very mild one, now results in a violent series of spasms as i transfer into/fro my chair and i'm actually fighting very hard against my own body to simply move in any way....so my transfers now are highly forceful and not fluid at all...i have to often use all my arm/shoulder strength just to make one these days and i have to throw myself over asap, in between those spasms, so i hopefully won't get one in mid-transfer....
    'guess i'll just have to hope to be lucky and keep my tendons intact....

    hmm, what if i'd start to regularly but very lightly work out again, with a say light 5 lb wrist weight, and do some arm/shoulder stretching before that?...would that offset the chance of damaging my tendons during transfers??...
    not too sure it would though and might have just the opposite effect, as i have painfully injured my shoulders a few times due to heavy weight workouts on my smith machine....every bloody thing is a chain reaction....grrrrrr....ya take some drug or action to alleviate one symptom [or a set of] only to set off a bunch of different ones as a side effect....what's the bloody point hehe....

    i know, should be used to it by now but apart from the acute n/p pain and some broken bones a few times, mainly due to my negligence, overall i think i've been quite lucky as most quadriplegics go [at least when comparing my quad life to some horror stories from sci forum], up until this bloody pressure sore got out of control...hell, up until i've crashed head on into the tree in my pick up back in 2003, i actually still retained my waist size [28-29"] from pre-injury life and it stayed so for over a decade, which made some doctors wonder how that's possible for a quad not to have a buddha belly hehe...i suppose, now's time to finally get really familiar with all those other wonderful things quads [especially higher c level] usually deal with much earlier than i 've been....


    aye, i've been taking one-a-day since time immemorial...and quitting smoking will be the toughest thing for me...we'll just see....
    };->
    wherever you go there you are...

  3. #73
    Member juras's Avatar
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    hey jenn, what about your own health status quo bambina??...i was only able to glean from your facebook posts that you're kinda in a shitty way yourself and need more surgeries, etc...what is that all about??....you've been helping me out here, along with sci-nurse and others, with my problems but you yourself likely need some good help/advice....perhaps it's time to seek such out for yourself and forget about mine...i feel crappy about perhaps appearing so egotistical here by only concentrating on my situation...even if that's what i've started this thread here for and have already received a lot of very useful help and info...

    so what about that surgery you'll apparently need soon....how serious is it potentially and factually????....
    wherever you go there you are...

  4. #74
    Senior Member lynnifer's Avatar
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    Foot: Not serious, caught early. Bracing will probably fix to take pressure from a pronating foot. My wound care doc and I are all over it.

    Hysterectomy: No idea. Have currently lost all bowel/bladder control that I had (well never really had but I used crede/valsalva) and am not sure about my future care in that area. I think that surgery will be a bit major as my uterus has to come out, there may be a problem with a left ovary and bladder/bowel need to be suspended. It is really starting to hurt when I wheel and cause some problems catching my breath but I've been preparing for this since the beginning of this year. Uro and Uro-gyne are discussing a surgical date and both are female which is ultra-bonus.

    Goal: Back to work by November???

    My only complaint is that I'm completely out of shape and stamina from being sick on/off the past two years and spending a lot of time in bed. I had just returned to work March 2010 and was off again by July (I fell during a car transfer when we switched to 12hr shifts and I could not keep up - I was exhausted!) I went back in November and had to stop by mid-January.

    After the hysterectomy I'll be in a short-term rehab facility for 3-4 weeks? I hope to see a PT (my first in 26yrs!) before I try going back to work this time so I can build up my stamina and strength.

    I get more out of helping others when I've been there .. always have.

    I can't help with the spasms ... I'm completely flaccid. I can't even imagine what that must be like. I can see why the doc and nurse were discussing your para/quad dilemma - your arms are very muscular.

    I'm not sure I'd participate in heavy exercise right now if I were you ... I made that mistake with my first bone infection and ended up with cellulitis by the end of that week. Gentle stretching maybe like the nurse advised earlier?

    Full of good news I am! LOL
    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

  5. #75
    Hi...just wanted to say I wish you the best! Take care!

    Teena

  6. #76
    Member juras's Avatar
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    Quote Originally Posted by lynnifer View Post
    Foot: Not serious...My wound care doc and I are all over it....Hysterectomy: No idea. Have currently lost all bowel/bladder control that I had....My only complaint is that I'm completely out of shape and stamina from being sick on/off the past two years and spending a lot of time in bed....I get more out of helping others when I've been there....I'm not sure I'd participate in heavy exercise right now if I were you ... I made that mistake with my first bone infection and ended up with cellulitis by the end of that week. Gentle stretching maybe like the nurse advised earlier?...Full of good news I am! LOL
    damn, hysterectomy must be a biggie surgery for a woman as it is, psychologically not just from the physical aspect...and all the additional problems in your case....hope it'll go splendidly and without any resulting unpleasant side effects jenn...

    bowel/bladder control is huge for me....i get quite angry and depressed when an accident happens out of my ordinary bm/ic regimen....that i can somewhat relate to...

    i can also relate to the exhaustion/lack of energy....sucks a big donkey's... well, ya know hehe.....i make plans to meet people then reality hits and i have to cancel all that optimistic schedule due to lack of energy to stay in my chair or n-pain...and others don't get it despite knowing me for a time...likely think i'm letting myself go that way out of some egoistical sob trip hehe...

    ya don't seem to mind the planned rehab stay for a month or so...that's grand...i, myself however, hate having to be anywhere but my own place where i'm the bloody boss of everything hehe...if ya like the idea of having ot/pt though that's definitely the right outlook to have when faced with that prospect...

    as far as my arms, well, they're thinner than in my profile photo because i've lost about 25lbs due to all that 'bed rest' in the past several months...i have a quad belly but not much fat, so arm muscles and my ugly face are the first to go and shrink/thin considerably whenever i lose weight...plus any person working in medical field for several years should be able to tell a quad from a para just through a quick glance at the forearms/hands...that's where the difference is almost always immediately apparent....notwithstanding the fact that if i show up at a facility stating that i'm a c5-7 quad since 1990 due to a broken neck in a diving accident, one would think that after 21 years being in a bloody wheelchair, i'd know whether i'm a para or a quad hehehe...i mean, this was somewhhat surrealistic and bizarre whenn i heard him say that to the nurse....in my mind immediately have started to question their competence/professional level after such a weird experience...


    aye, i'll pass on the arms/shoulders exercise...i'll try to remember to do some light arm stretching prior to any transfers...

    well, keep me abreast of your sit-rep regarding the surgeries...i'll be reading your fb page for updates....
    };->
    Last edited by juras; 06-30-2011 at 03:41 AM.
    wherever you go there you are...

  7. #77
    Member juras's Avatar
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    Quote Originally Posted by teena View Post
    Hi...just wanted to say I wish you the best! Take care!

    Teena
    i'm assuming that was specifically directed towards jenn...jenn's already been a big help, a veritable sesame of good advice/info and a staunch cheerleader for me hehehe...very nice of ya to stop by teena and convey your wishes...i second that of course and i have a feeling she'd put me to shame at present as far as being a real trooper goes....
    };->
    wherever you go there you are...

  8. #78
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    Juras,
    Hey man, I was recovering from surgery myself but jumped back on here to check on you. Sorry that doc was such a 'yahoo" (my polite word for a string of four letter words that i really think of him) It sounds like moorestown may be better. But trust your gut. Sorry you're hurting too! Keep keepin us posted though. Maybe at least the imeediate bone biopsy willl tell you something. They won't do flap surgery again without clearing the bone infection first though. I think you got a bit of a wait bro.
    Liza R. McCollum

  9. #79
    Member juras's Avatar
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    Quote Originally Posted by mcco5543 View Post
    Juras,
    Hey man, I was recovering from surgery myself but jumped back on here to check on you....Keep keepin us posted though....I think you got a bit of a wait bro.
    hiya liza,

    hmm, most of the docs i meet lately seem to be yahoos and/or megalomaniacs...the higher the specialty [surgery, etc.] the larger the ego factor it seems...i had a cool, relatively young surgeon who did a good job on my legs following that 2003 pickup/tree wreck...we were both into cars too...the surgeons/physicians i meet at present seem to be a very elitist clique, not really concerned with my health status and certainly seem to think i'm too plebeian for them to be even given a time of day; never mind some good solid intel on my status quo...

    so ya've been under the knife recently as well, eh?...what was that all about??...damn, seems like i've found regular bleedin' purgatory of crippled souls and bodies by stepping into this forum haha...but i suppose that the ones without any serious problems don't need to visit such portals, much like i haven't up until now....

    ok, i also have some important updates with regards to my own crap...a few hours ago, i received a phone call from the morristown, nj [that's the 'new' place i've visited for the first time this past monday, just in case anyone might be getting confused hehe] infectious disease specialist/doctor and he said that he'd like me on the operating table by sometime next week...apparently, even though i didn't get to see him at that appointment, he's been informed quite thoroughly about my history following my visit and i finally see some real desire for action...at least on his part...
    he suggested that since it's the july 4th long holiday weekend coming up tomorrow, it'll be best to wait until the beginning of the next week to start the ball rolling because i'd just be languishing at the hospital without any meaningful treatment over the weekend...my feelings exactly and he told me to call him on tuesday if i don't hear back from him by 10 am on that day...

    apparently, they won't even have me on antibiotic iv for more than a few days [he said i'd likely spend only 3-5 days at the hospital for the surgery] prior to the surgery and maybe won't even require me to quit smoking completely at once...
    according to our conversation, i'd have to be on antibiotic iv for a few weeks post-surgery but that would be at my place, unless medicare decides not to pay for that 'picc line' thang...
    maybe i'll even be still able to hit the next wednesday's kool car show locally before hitting the surgery table...i haven't been to a single one yet this year and i don't think they'd admit me on tuesday or wednesday...more likely thursday or so...unless some other issue shall rear its ugly head and there'll be another case of 'hurry up and wait'....

    i'm still not certain about most of what will actually take place next week with regards to above news, as i have only that conversation today with him to go by, and based on my experience things of such nature usually can sway very rapidly from the initial plans... but things are seeming to be suddenly picking up and cogs are slowly starting to turn....

    will update as soon as i'll know more....thanks...
    };->
    Last edited by juras; 07-01-2011 at 12:43 AM.
    wherever you go there you are...

  10. #80
    Senior Member lynnifer's Avatar
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    Now that's more like it!

    Teena was talking to you - she's our resident cheerleader
    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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