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Thread: Autonomic Dysreflexia -- need help

  1. #1

    Autonomic Dysreflexia -- need help

    What causes someone with an SCI to have their blood pressure go too high then too low? It has been going on for a few days now. Is this a result of AD? If a person is taken to a hospital emergency room can they treat it there or does the person need to be admitted to the hospital? Any and all help is greatly appreciated.

  2. #2
    Quote Originally Posted by Darryl View Post
    What causes someone with an SCI to have their blood pressure go too high then too low? It has been going on for a few days now. Is this a result of AD? If a person is taken to a hospital emergency room can they treat it there or does the person need to be admitted to the hospital? Any and all help is greatly appreciated.
    Well I think that all depends on what causing the AD. Do go to the ER, and get checked out.
    Hope u feel better soon.
    My mouth is like a magician's hat, never know what might come out of it.

  3. #3
    Thank you, macska. Her bladder was overextended two days ago but that has bin remedied. I have researched a lot about AD and it really scares me. I've talked to her about having atropine at her bedside but she hasn't done it yet. I am really scared for her.

  4. #4
    Hi Darryl,
    She absolutely needs to have a autonomia kit either at the bedside or bathroom and in a purse or pack on her wheelchair. There are some threads on this website outlining what needs to be in the kit, including a medical alert card that describes autonomia, symptoms and what to do for it.
    Some people prefer a paste over pills. Search this site for complete information.

    All the best,
    GJ

  5. #5
    Thank you, gjnl.

  6. #6
    Senior Member TomRL's Avatar
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    I use nitropaste to subdue symptoms while we search for causes. If you go to an ER, and I would if you can't find an obvious problem, carry some info on AD with you . Not all ERs are familiar with the condition.

    This might be helpful:

    http://www.sci-info-pages.com/ad.html
    Last edited by TomRL; 05-22-2011 at 04:07 PM. Reason: dumb typos
    Tom

    "Blessed are the pessimists, for they hath made backups." Exasperated 20:12

  7. #7
    Quote Originally Posted by TomRL View Post
    I use nitropaste to subdue symptoms while we search for causes. If you go to an ER, and I would if you can't find an obvious problem, carry some info on AD with you . Not all ERs are familiar with the condition.

    This might be helpful:

    http://www.sci-info-pages.com/ad.html
    Thank you, TomRL. She's bin using a paste -- thanks. "Not all ERs are familiar with the condition." This is what I am afraid of. Thank you for the link, TomRL.

  8. #8
    Senior Member Tim C.'s Avatar
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    What MD is going to write a script for nitro paste?

    Quote Originally Posted by gjnl View Post
    Hi Darryl,
    She absolutely needs to have a autonomia kit either at the bedside or bathroom and in a purse or pack on her wheelchair. There are some threads on this website outlining what needs to be in the kit, including a medical alert card that describes autonomia, symptoms and what to do for it.
    Some people prefer a paste over pills. Search this site for complete information.

    All the best,
    GJ
    When I was in Kessler rehab I was told that under no circumstances should a non medical professional be administering nitro paste. In fact, while I was interred there and experiencing AD at night, the resident had to be summoned just for my nurse (a rehab-trained nurse that was infinitely familiar with AD) to apply the paste, and record Bp readings every 3 mins. Post rehab, we were instructed to try our luck at the local ER.
    That was nine yrs ago.
    Was I mis-directed?

  9. #9
    I gave our AD alert card (from Craig) to the doc at ER once and he looked at me like I was an idiot.

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