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Thread: nursing homes

  1. #11
    Quote Originally Posted by 73roadrunner View Post
    I'm a 32 year old incomplete quadriplegic. I currently reside in a nursing home in Daphne, AL and want to move to the Pensacola or Destin area. I currently have no other options but nursing homes but do have a degree in CIS and have worked as a quad. I want to go back to work in Florida but need to ensure a place of living before I can accept any job offers. One problem is that I have to be living in Florida to receive Medicaid there (apparantly I've used up Medicare) and am having a hard time finding any intermediary to pay for the nursing home while I'm in limbo. A second problem is that I've tried calling nursing homes, stating my age and condition, and asking to send my information over for them to review without receiving a negative response. If they do accept information I usually receive a response along the lines of: my medicine list is too long; they don't have activities for me (by law they must have activities for every resident--I can bring my own computer!); I'm not 55 or older (another constraint however can be fudged); they can't handle the level of care needed; and so on... I've tried using Aplaceformom.com to no avail. Does anyone know a different tactic in evoking nursing home acceptance?
    how did you use up medicare? are you on SSDI?

  2. #12
    Try to find the contact info for Florida CIL's (Centers for Independent Living or ILCs - Ind living Centers), one of their main advocacy roiles is to help disabled individuals live independently in the community. They may be able to unravel the red tape to make a nursing home trasnsfer possible or identify other community living options. If you don't have family in the area you identify you may want to widen your search through all of Florida as there may be better opportunities elsewhere in the state. If you are dependent on Medicaid you may wish to reconsider Florida as their governor is trying to make a name for himself in conservative circles and may not conform to national Medicaid guidelines.

  3. #13
    Quote Originally Posted by cass View Post
    how did you use up medicare? are you on SSDI?
    Medicare rarely pays for nursing home level care (most people mistakenly believe they do), and if they do, there is a lifetime limit of number of days they will cover. Apparently the OP has used these up.

    (KLD)

  4. #14
    Looks like a bullet to the head is the best answer when I can no longer take care of myself.

    Art
    Art

  5. #15
    Quote Originally Posted by SCI-Nurse View Post
    Medicare rarely pays for nursing home level care (most people mistakenly believe they do), and if they do, there is a lifetime limit of number of days they will cover. Apparently the OP has used these up.

    (KLD)
    ty. as always, you inform. i had no idea medicare had limit on nh care. and my dad was in one for last yrs of his life w/me handling finances. but, we were private care.

    so, what do ppl use? medicaid?

  6. #16
    Yes, the vast majority of nursing home care in the USA is paid by Medi-Caid, once people have been denied any/further Medicare coverage and they have exhausted their private resources enough to quality for Medi-Caid.

    (KLD)

  7. #17
    no wonder mom (who died first) said she worried about dad and finances. he had parkinsons, she had polycystic kidneys. my family is a lucky lot

    thx for info.

    btw kld, ty for everything. knew you first on another site and you put in a lot of time supporting us, sites and your mom. you are really amazing. thank you.

  8. #18
    I'm 33 quad, no arm use. Living in nursing home as well. sucks, i only leave my room to go outside if it is nice out. otherwise i sit here everyday on my computer 10-12 hours a day. not much of a life...

  9. #19

    Another option

    Quote Originally Posted by SCI-Nurse View Post
    Most states require at least 30 days residency to become Medi-Caid eligible. You might find a nursing home who would take you private pay if you have that kind of money (would probably run around $4500+ for a month) but I suspect you do not as otherwise you would not be Medi-Caid eligible.

    If there is anyway at all that you can do this move without going directly nursing home to nursing home, that should be your plan. Family who could go with you and provide your care until you can get Medicare waiver attendant funding might be an option, but my understanding is that this is extremely difficult to arrange and get approved for in Florida.

    I would recommend that you contact the ILC closest to where you plan to live and see if they have ideas or resources for you for getting out of an institutional living situation all together.

    Nursing homes rarely are eager to take people with SCI. Not only do they have fairly high care needs (they won't do intermittent cath, for example) but they also know that people with SCI are alert and oriented and have no problems advocating for themselves and complaining when they get poor care. In my experience, folks with SCI usually are doing the same for the other nursing home residents by about their 3rd day there, so they are seen overall as "trouble makers" by the powers that be.

    (KLD)
    In Florida the "Center for Independent living" is the major resource for disabled individuals if you go to their main website ishttp://www.ilru.org/html/publication...ory/index.html That would definitely be the way to start. But I also agree that for us to help you properly we have to know more about the statistics of your disability. If I can help in any other capacityplease send me a private message

  10. #20
    Quote Originally Posted by Art454 View Post
    Looks like a bullet to the head is the best answer when I can no longer take care of myself.

    Art
    My sentiment exactly.
    NH are horrible

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