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  1. #1
    Junior Member
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    Apr 2011
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    New Member

    Hey everyone... just joined. Found this website almost by accident, however became engrossed in reading it. Reason for joining - father has a spinal cord injury (th9 - ish) back in 1986. I was 13 going on 14 when it happened. He has since spent most of the past 25 years in and out of hospitals with other health issues. He has round the clock care and I live only a few blocks away... however, now that he's in his early 80's and health is naturally declining I end up worrying a lot more about him. He's tough as nails (my fiance and I joke around that he'll out live all of us), but getting frail... so I thought this might be a great resource for me to read up more on his health issues. Keep an eye out for information that might help... and who knows maybe get some advice if a problem should arise (or I think one may be pending...).

    From all that as an intro, that's why I decided to post here in the family section.

    Thanks,

    Ken

  2. #2
    Hi Ken, and welcome to the forum. I agree that CareCure could be quite helpful in your family situation, and I hope that your father will continue to do well overall.

  3. #3
    Hi Ken,
    It's a great resource. I am T-10 since 94 and have learned more here than from any DR I've seen in 17 years. Welcome to the forum.
    DFW TEXAS- T-10 since March 20th, 1994

  4. #4
    Senior Member anban's Avatar
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    Apr 2009
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    Gold Beach, Oregon
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    Welcome, Ken. Feel free to ask/read away. This site has several folks who are ''old-timers'' and have great advice and wisdom about ageing with a spinal cord injury.

  5. #5
    Welcome Ken, I trust any question you ask, someone here has gone thru the same challenge and will be of benefit.

  6. #6
    Junior Member
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    Thanks For The Welcome...

    Thanks to all the well wishers... already learning quite a bit just by reading through...

    I did notice there are some people in this forum with some form of SCI and thinking of having family... If you ever want my two cents for what it's worth I'm a child who's grown up in a house with just such a situation, so you're welcome to post or email me with any questions you may have...

    Ever wondered what the eventual outcome of growing up in an SCI household was... we were very patient with our father but also always encouraged him to do for himself... likewise that rubbed of on us... my sister and I are both stubbornly independent...

    So maybe I can also help by encouraging those who are thinking of having their own family...

    Thanks,

    Ken

  7. #7
    Hello Ken,
    Welcome to the Care Cure Community.
    You may be interested in this thread:
    http://sci.rutgers.edu/forum/showthread.php?t=134950 (in search of the oldest quad/para)
    I hope your father continues to be well.

    All the best,
    GJ

  8. #8
    Senior Member JEAPOW's Avatar
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    ARCHBOLD, OHIO
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    Welcome Ken, you sound like a caring son. On this site there are wonderful care givers here and plenty of us with disabilities.

    Your Dad must be proud of you, just love on him, that means alot.
    JeAnNE L1Burst Fracture inc. 11/5/10

    Live Well--Laugh often

  9. #9
    Quote Originally Posted by kenfie View Post
    Ever wondered what the eventual outcome of growing up in an SCI household was... we were very patient with our father but also always encouraged him to do for himself... likewise that rubbed of on us... my sister and I are both stubbornly independent...
    This is something I worry about quite a bit. My daughter was 4 when I got injured and now is almost 6. I worry about the other kids making fun of her because I am in a wheelchair, worry that I can't teach her sports like I would have if I was AB (I did play with her on a T-ball setup this weekend and it went pretty well), worry about pretty much everything. Any advice for a para parent?

  10. #10
    Senior Member JEAPOW's Avatar
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    showing

    Quote Originally Posted by t8burst View Post
    This is something I worry about quite a bit. My daughter was 4 when I got injured and now is almost 6. I worry about the other kids making fun of her because I am in a wheelchair, worry that I can't teach her sports like I would have if I was AB (I did play with her on a T-ball setup this weekend and it went pretty well), worry about pretty much everything. Any advice for a para parent?
    T8, in reading your post you have already shown the compassion of love you feel for your daughter. Do you know how many AB Dad just show up for activities or drop there kids off and do not participate. I think the fact that you in a chair does not have to mean you can't do this with her, with a little imagination you can do alot. Get a laundry basket and teach her to throw the ball in there I did that will my little league girls and it teaches them how hard or soft they need to throw, get her a little outside childrens BB hoop and u can show her how to play and chase her around in your chair. Heck, just throwing a rubber ball to each other can be fun, and she can chase the ball for you. A loving Father speaks volumes to her and others and she will be so proud her Daddy does things with her. I think once her friends see the fun loving Dad they won't notice the wheel chair for long, when people stare at me I smile back they don't know me, but I will take the time to share if they have it. I am taking my little 3 year old grandaughter to the movies Sat to see UP it is all about her and I can bring joy to both of us.

    I have 12 grandkids so if you need any more ideas just ask me. It's te joy of what you give her, the smiles, the hugs, and the time you spend with her she will remember.

    You have already begun, don't let the worry get you down, you are a bright star in her future..Make every day count even reading a book is nice or hey how are you at Barbies?? LOL
    JeAnNE L1Burst Fracture inc. 11/5/10

    Live Well--Laugh often

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