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Thread: Pain issues with baclofen pump?

  1. #1

    Exclamation Pain issues with baclofen pump?

    I've had my baclofen pump since december 2010. Things had been going fine until a few weeks ago when my back started hurting something awful and my spasms started getting progressively worse. It's been about 3 weeks of pain and increased spasticity and nothing has helped.

    The laundry list of what I've tried so far:
    - PT (stretching, strengthening, etc)
    -Hot/cold packs
    -Different positioning
    -Tylenol, motrin, tramadol (my GP is a dick and won't give me any decent pain meds)
    -Massage

    Earlier tonight I felt a lump on my lower back. It's right around where my incision for the catheter (for the pump) is. Should I be concerned?

    Does anyone have any suggestions about what to do for the pain? Maybe go find a pain clinic? I'm getting so frustrated with nothing helping.

  2. #2
    Maggie -

    You could have a pump malfunction. I would recommend seeing the physician who put the pump in and manages it. I assume that would be your pain specialist but if you have to search for a pain clinic, that is confusing to me.

  3. #3
    Quote Originally Posted by arndog View Post
    Maggie -

    You could have a pump malfunction. I would recommend seeing the physician who put the pump in and manages it. I assume that would be your pain specialist but if you have to search for a pain clinic, that is confusing to me.
    I had a neurosurgeon put in my pump. I'm considering finding a pain specialist since none of my other doctors seem to be capable getting my pain under control. Sorry if that was confusing!

  4. #4
    Arndog is right - you need to see your pump doc ASAP, Maggie, and have him do x-rays and/or a fluoroscopy exam. A loose or dislodged catheter would likely cause all three of the symptoms you described (sudden increase in spasticity, new pain in your back, and a lump at your cath site).

    Best of luck - please let us know what you find out.

  5. #5
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    If you have a raised area where the cath is it may have come loose

    Quote Originally Posted by maggie~mae View Post
    I've had my baclofen pump since december 2010. Things had been going fine until a few weeks ago when my back started hurting something awful and my spasms started getting progressively worse. It's been about 3 weeks of pain and increased spasticity and nothing has helped.

    The laundry list of what I've tried so far:
    - PT (stretching, strengthening, etc)
    -Hot/cold packs
    -Different positioning
    -Tylenol, motrin, tramadol (my GP is a dick and won't give me any decent pain meds)
    -Massage

    Earlier tonight I felt a lump on my lower back. It's right around where my incision for the catheter (for the pump) is. Should I be concerned?

    Does anyone have any suggestions about what to do for the pain? Maybe go find a pain clinic? I'm getting so frustrated with nothing helping.
    Hi Verdana, I have a Medtronic Drug Infusion System implanted, nothing to do with back problems a botched surgery. First thing I would do is find a compadent pain doctor, they are few and far between. I would have the lump looked at there may be a leak in the cath. I had that happen to me 4 days after the cath was put in. Had to go back and get it done again. You should not be going to a GP if you have a pump. I go to a pain doctor he is the pits, every time he needs to change the pump setting he has to call in a Medtronic rep becasue he forgets how to do it. I have to find a new pain doctor becasue today the doctor has cut all his patients down to 30% of there pain meds, he is watching out for the feds and his reckless drug amounts he was giving in the past. But for back problems they put in a Medtronic electrial unit to block the pain when you push the button.

  6. #6
    I'm not sure about the pain but that lump can be one of the brackets that hold the baclofen pump catheter in place. I know I have a little one and have had it for years without any problems. Maybe the reason it's so prominent is it has become dislodged or something and that may be why you have so much pain.
    C-5/6, 7-9-2000
    Scottsdale, AZ

    Make the best out of today because yesterday is gone and tomorrow may never come. Nobody knows that better than those of us that have almost died from spinal cord injury.

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