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Thread: Chance to walk again

  1. #1

    Chance to walk again

    I wish she can come here so we can ask her a few questions.


    Chance to walk again
    Brigid O'Connell
    From: Sunday Herald Sun
    March 06, 2011 12:00AM

    RHIANNON Tracey was told she would never walk again after breaking her neck and three vertebrae on a horror Bali trip.
    But 18 months after inadvertently diving headfirst into a hotel pool, the quadriplegic has taken her first steps again.

    Her incredible progress, however, has come at a massive cost for her Eltham family, who have spent more than $300,000 on physical therapy and specialised help from two trips to an American spinal rehabilitation centre.

    Rhiannon's family is now pleading for corporate support and government backing as they join about 30 other Victorian families to open a franchise of the US centre, Project Walk.

    "Basically I was told there was no point in moving anything that wasn't already moving," Rhiannon said.

    "Every time I had someone with me they were either massaging my hands or legs, but the nurses would say there's no point in doing that.

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    "They should never say never, because that puts you in a really dark place."

    read...

    http://www.heraldsun.com.au/news/vic...-1226016409135
    Last edited by manouli; 03-07-2011 at 04:52 PM.

  2. #2
    Manouli

    She is actually a member of CC.... I will PM her and see if she wants to post.


    Eric Harness, CSCS
    Founder/President
    Neuro Ex, Inc
    Adaptive Performance and Neuro Recovery

  3. #3

    Smile

    Quote Originally Posted by Snowman View Post
    Manouli

    She is actually a member of CC.... I will PM her and see if she wants to post.
    Really! It will be great! Thank you Snowman.

  4. #4
    hey manouli!
    Thanks for reading the article, it has stirred up a bit of comotion in our sci hosipitals in aus!
    Anything you wanna ask, fire away!

    Rhiannon

  5. #5
    Dear Rhiannon,
    You look beautiful in the picture. I hope I'll see that same look of triumph on my son's face one day soon.
    Can you tell us more about your story and how you achieved what you did? How did you start at Project Walk? What were the first things you did there? What were your milestones? How did you feel during the whole process?
    Would love to hear more -- am looking for options for my son (C 6 incomplete).
    Thanks in advance and I'm so, so happy for you!

  6. #6

    Smile

    Quote Originally Posted by rannie View Post
    hey manouli!
    Thanks for reading the article, it has stirred up a bit of comotion in our sci hosipitals in aus!
    Anything you wanna ask, fire away!

    Rhiannon
    Thank you very much Rhiannon, you are a very beautiful young lady and I am so very happy that you did recover and you are walking again. I am sure doctors will learn a lot from you. I will like to ask you regarding your level of your injury, was it complete? How much daily exercise you did, and when did you know that something was happening. details please.

    Wishing you a perpetual progress, and thank you for your generous time,

    manouli.

  7. #7
    hmmm... where do i start? Here it is no BS

    On the 19th of September 2009 I dived into a swimming pool in Bali, hitting my head on the bottom and breaking my c5,c6 and T1.
    Due to Bali's horrific medical system the surgery that was preformed to stabilize the fracture failed and when the nurses from my travel insurance company flew over to prepare me for my trip home, i was on my last breath we two collapsed lungs!

    When i returned to Australia i was admitted to the Austin hospital and had to have 2 surgerys to fix the failed ones from bali, each time being more and more at risk of further damage to my cord as bali had wired me up with stainless steel which the surgeons then had to cut away trying to avoid flickers of steel onto my spine.

    I was diagnosed a C5 COMPLETE Quad, with Asia A Sensation.
    I was told by the docters that I would be lucky to feed myself and walking wasn't even a option.

    Well life in a chair wasn't an option for me! My family and I set out to find anything that could show even the slightest improvement in my body.
    This ment massaging every limb and stimulating every nerve in any possible way!

    We spent hours researching our options as the hospital was adement that i needed to accept my fate and work on being independant in my chair! We constantly were arguing with staff and nurses as whenever we were told we couldn't do something, we made it our goal to do it! My mum even took me from the Talbot to an outside physio as we were only offered 45 minutes of physio a day with at least half of that spent on adjusting my wheelchair!
    Luckily 2 months before i was discharged i got a great physio in the hospital that actually believed i could improve and even, possibly walk again!

    I spent 6 months in total in Royal Talbot and left as a C7-C8 ASIA D QUAD and i had just started standing and could move my left foot


    Within 9 days of my hospital discharge, and after numerous fundraisers, my mother and I flew to carlsbad, san diego and spent 2 months at this incredible center!
    I didnt have too many expectations but i did believe i would return home somewhat better then i was when i left.
    I didnt even imagine what this place would do for me mentally as well as physially.

    I set a goal for myself! I would walk into Talbot upon my return home.... and i did with the help of a walking frame

    Although not everbody walks after a SCI, this place gets you up out of your chair and gets your body active again! The trainers treat you like a normal person and by that i mean THEY KICK UR ASS but at the same time, they become your friend and even help you get out into the world and have fun again!!

    All you have to do for inspiration is look around and see what is being acheived by people that have been told the same thing over and over again.

    I returned to Project Walk in October last year for a 3 month stint, when i left, i could now take unaided steps and my walking overall and strength has improved immensly!

    Although I spend most of my time up and about i still have my bad days where i have to go back to the chair but i am determined to BURN IT!

    I attend a neuro physio 3-4 times a week and also continue my Project Walk training in the gym i have set up at home.

    I am now also dedicating a lot of focus into opening a center in Melbourne, Australia and hope to help people acheive what I have acheived and also make people aware that there are options out there for us!

    The power of postive thinking can get you anywhere and thats been the greatest lesson learnt throughout this whole experience, i still have a long where to go...but ill get there!

    I hope this helps... check out STEP BY STEP on facebook as there is heaps of info, videos etc

  8. #8
    Senior Member
    Join Date
    Oct 2010
    Location
    South Devon, UK
    Posts
    537
    Rannie, it's really wonderful to read your account. It goes to show that "medical wisdom" is not so very wise. You have totally bucked the system, albeit at a very large expenditure on physio. Unfortunately, money appears in the equation, but with someone of your age, you have probably saved many times that cost in care alone, over several decades for a cervical complete.

    Enjoy enjoying the rest of your life.
    2010 SCINet Clinical Trial Support Squad Member
    Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature.

  9. #9
    Money unfortunately does play a big part in your recovery. Due to my accident happening in Bali I was not compensated in anyway. Although I did have travel insurance which I believed saved my life, this only covered costs of treatment in Bali. I also had health insurance back in Aus but no insurance covers this type of injury as our government doesn't recognize it like they should! My family began selling everything! My mum sold her car and anything else that was worth anything. The community held fundraisers and a local radio station donated ten thousand dollars to help get me to project walk!
    Unfortunately the costs don't end, and we feel it isnt right to continue fundraising what with all the natural disasters going on.
    We are paying for Physio which is $110 an hour 3-4 days a week. Catheters which are $100 a box and everything else that goes on with this injury.

    But as far as it goes.. We can't put a price on life and a recovery? But this is why we need to draw awareness! So our health systems start helping out!

    One day things will change!

  10. #10

    Smile

    Quote Originally Posted by rannie View Post
    hmmm... where do i start? Here it is no BS

    On the 19th of September 2009 I dived into a swimming pool in Bali, hitting my head on the bottom and breaking my c5,c6 and T1.
    Due to Bali's horrific medical system the surgery that was preformed to stabilize the fracture failed and when the nurses from my travel insurance company flew over to prepare me for my trip home, i was on my last breath we two collapsed lungs!

    When i returned to Australia i was admitted to the Austin hospital and had to have 2 surgerys to fix the failed ones from bali, each time being more and more at risk of further damage to my cord as bali had wired me up with stainless steel which the surgeons then had to cut away trying to avoid flickers of steel onto my spine.

    I was diagnosed a C5 COMPLETE Quad, with Asia A Sensation.
    I was told by the docters that I would be lucky to feed myself and walking wasn't even a option.

    Well life in a chair wasn't an option for me! My family and I set out to find anything that could show even the slightest improvement in my body.
    This ment massaging every limb and stimulating every nerve in any possible way!

    We spent hours researching our options as the hospital was adement that i needed to accept my fate and work on being independant in my chair! We constantly were arguing with staff and nurses as whenever we were told we couldn't do something, we made it our goal to do it! My mum even took me from the Talbot to an outside physio as we were only offered 45 minutes of physio a day with at least half of that spent on adjusting my wheelchair!
    Luckily 2 months before i was discharged i got a great physio in the hospital that actually believed i could improve and even, possibly walk again!

    I spent 6 months in total in Royal Talbot and left as a C7-C8 ASIA D QUAD and i had just started standing and could move my left foot


    Within 9 days of my hospital discharge, and after numerous fundraisers, my mother and I flew to carlsbad, san diego and spent 2 months at this incredible center!
    I didnt have too many expectations but i did believe i would return home somewhat better then i was when i left.
    I didnt even imagine what this place would do for me mentally as well as physially.

    I set a goal for myself! I would walk into Talbot upon my return home.... and i did with the help of a walking frame

    Although not everbody walks after a SCI, this place gets you up out of your chair and gets your body active again! The trainers treat you like a normal person and by that i mean THEY KICK UR ASS but at the same time, they become your friend and even help you get out into the world and have fun again!!

    All you have to do for inspiration is look around and see what is being acheived by people that have been told the same thing over and over again.

    I returned to Project Walk in October last year for a 3 month stint, when i left, i could now take unaided steps and my walking overall and strength has improved immensly!

    Although I spend most of my time up and about i still have my bad days where i have to go back to the chair but i am determined to BURN IT!

    I attend a neuro physio 3-4 times a week and also continue my Project Walk training in the gym i have set up at home.

    I am now also dedicating a lot of focus into opening a center in Melbourne, Australia and hope to help people acheive what I have acheived and also make people aware that there are options out there for us!

    The power of postive thinking can get you anywhere and thats been the greatest lesson learnt throughout this whole experience, i still have a long where to go...but ill get there!

    I hope this helps... check out STEP BY STEP on facebook as there is heaps of info, videos etc


    Wow! What a story! Thank you so much for chairing it with us, you don't know how much help and hope you are giving to all of us and to all of those that are getting spinal cord injury today and tomorrow. Your story is very informative, and very valuable.

    Wish you the best, manouli.

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