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Thread: Advocate for a cure - Reeve Foundation

  1. #1

    Advocate for a cure - Reeve Foundation
    I just received a survey today from the Reeve Foundation asking about my thoughts.

    Ask about their work towards a cure, and ask that they answer your concerns if you have any.

    Let's make sure that the Reeve Foundation knows that people are interested in a cure.

    I found it interesting that they put things in a care vs. cure paradigm. Make sure that you let them know that we think all their care work has been great, but it's now 2011 and it's time to move on and stop making cure sound like it's somehow unrelated to care.

    Dennis Tesolat

    "Change does not roll in on the wheels of inevitability, but comes through continuous struggle. And so we must straighten our backs and work for our freedom."
    Martin Luther King

  2. #2

    Sounds like someone has been listening to some of the threads on CC recently about their focus. Gotta love the tinterweb!

  3. #3
    I completed the survey today as well. Was honest about what I feel can be done better and areas of improvement. Hope you will all do the same, we need the Reeve Foundation behind us!

  4. #4
    Senior Member lunasicc42's Avatar
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  5. #5
    Done. Felt pretty good, too.

  6. #6
    Senior Member 0xSquidy's Avatar
    Join Date
    Dec 2009
    Barcelona (Spain)
    Done. Thanks for sharing.
    Don't ask what clinical trials can do for you, ask what you can do for clinical trials.

    Fenexy: Proyecto Volver a Caminar (soon in english too)

  7. #7
    Thanks for the link. They need our feedback.

  8. #8
    Senior Member JEAPOW's Avatar
    Join Date
    Jan 2011
    Just took the survey thanks for the link.
    JeAnNE L1Burst Fracture inc. 11/5/10

    Live Well--Laugh often

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