Page 3 of 4 FirstFirst 1234 LastLast
Results 21 to 30 of 38

Thread: Is there any trial or treatment for our kind of injury?

  1. #21
    Senior Member
    Join Date
    Jun 2005
    Location
    Norway
    Posts
    17,427
    Btw, some thoracic mid sci injuries also most likely will require motoneuron transplantations, or other ways to create such. For example; my sci will, -dead motoneurons in the bulls eye centre of the cord is a 100 % damaged (my case), not only allocated to axons. Guess, although I have a thoracic mid injury, will be way back in the cure queue - but that is fine, more than fine, since I’m not into all this for me, never have been btw. I just love science that has the possibility to help. -We really need to try to help sci science in this early start of trials and so on to try to se where we all can help out to try to help science and the clinicians, -just one little index finger working better on a quad, would have made my day and joys of days forever. We as a sci community - the ones of us that can - should more be much more empathetic and also work for these of us that can not (althogh some quads here on cc are doing much more as for this than many paras)- since we all know sci more or less - to help the field and hopefully all of us.

  2. #22
    Thanks Leif, I appreciate it. Will wait for you to see the PTEN video that rjames posted. It appeared from the video that they were indeed including the low lumbar injuries. So, that's kinda where my question mark was. (I know you're not a doc, but I'm always interested in everyones take on various research results and where they may fit into future therapies). Thanks for your posts!

  3. #23
    Moderator jody's Avatar
    Join Date
    Jan 2004
    Location
    east o the southern warren
    Posts
    8,527
    there was mention of how if you inject stem cells into the spinal cord that they would just fall into the cauda equina. I have had that on my mind since then. wouldnt it be good to get stem cells there if that is where you are injured? im interested in seeing if the cells do actually fall into the cauda equina, and what the effects would be for someone injured there.

  4. #24
    Senior Member
    Join Date
    Jun 2005
    Location
    Norway
    Posts
    17,427
    Quote Originally Posted by jody View Post
    there was mention of how if you inject stem cells into the spinal cord that they would just fall into the cauda equina. I have had that on my mind since then. wouldnt it be good to get stem cells there if that is where you are injured? im interested in seeing if the cells do actually fall into the cauda equina, and what the effects would be for someone injured there.
    Jody, I agree, and I believe what you might be thinking of is the Kerr D. study http://www.hopkins-ice.org/neuro/int/kerr.html a complicated animal study, involving several arrays of; hESC, growth factors, ‘luring chemicals’ to attract nerve growth in/from the bigger muscles on lab animals hind limbs. This combination study in fact - as I see it - plowed the cure understanding of combination therapies on sci - pity though, none lab’s seams capable on replicating this or focusing on it (very complicated and expensive, few can do this), although most scientists probably deep down think it is cool. But then again, what is cool sci efforts?

  5. #25
    Junior Member
    Join Date
    Feb 2011
    Location
    flagler beach fl.
    Posts
    2
    I also have an L1 burst fracture. I walk with afo's on both legs brcause of drop feet, I can "walk" with help from walkers, arm crutches. My problem is balance. I was wondering since you said you walk pretty well, is how did you do it? I should also tell you, if you had'nt guess, I'm new on this site. I'd appreciate any feedback, thanks.

  6. #26
    Senior Member medic1's Avatar
    Join Date
    Feb 2005
    Location
    New London, WI USA
    Posts
    1,125
    Quote Originally Posted by kathyk View Post
    I also have an L1 burst fracture. I walk with afo's on both legs brcause of drop feet, I can "walk" with help from walkers, arm crutches. My problem is balance. I was wondering since you said you walk pretty well, is how did you do it? I should also tell you, if you had'nt guess, I'm new on this site. I'd appreciate any feedback, thanks.
    I usually get around the house without assistance. I have orthotics that help a lot. I use night splints at night. I use crutches out of the house along with my wheelchair for longer distances. I cant walk for long periods or stand for too long.

    My right side is weaker than my left so I tend to walk as if I have a bit of a limp. I wear an SI belt to stablize my hips. It helps tremendously with balance and pain from having weak hip extensors and flexors.

    I am thankful for all I have regained. Unfortuanetly, going on 8 years since injury, I can already feel my body breaking down. More pain, aches, more dependent on crutches and having to use my wheelchair more often.

    By the way Welcome kathyK, sorry u had to find us but glad that you did.

    I concentrate on doing my streches and make sure I get exercise. We have to try and keep moving to keep what we have. We also have to walk the line of not over doing because we will pay for it. If I over extend myself I will end up in bed for days in pain unable to move.

    If you have any specific questions feel free to message me.

  7. #27
    Senior Member
    Join Date
    Jun 2005
    Location
    Norway
    Posts
    17,427
    medic1. I wish more would focus on injuries like thath. I was in a government arranged neurological advisory board not long ago, and there I addressed such of you’re concerns. To be included. To be included/part of sci - is sci.

  8. #28
    Quote Originally Posted by medic1 View Post
    I wear an SI belt to stablize my hips. It helps tremendously with balance and pain from having weak hip extensors and flexors.
    I'm curious on this.... I have very weak glutes which is the main reason my walking is crap and painful (walk with one AFO, one walking stick). What does a SI belt do?

  9. #29
    Senior Member
    Join Date
    May 2005
    Location
    Pakistan
    Posts
    1,129
    Thank u so much all friends for discussing this issue.

    Being L1 compression patient i can walk very easily like normal person but have lost bladder bowel and sexual function.

    Dont know what doctors or researchers will do with compression injuries?

  10. #30
    Moderator jody's Avatar
    Join Date
    Jan 2004
    Location
    east o the southern warren
    Posts
    8,527
    Quote Originally Posted by medic1 View Post
    I usually get around the house without assistance. I have orthotics that help a lot. I use night splints at night. I use crutches out of the house along with my wheelchair for longer distances. I cant walk for long periods or stand for too long.

    My right side is weaker than my left so I tend to walk as if I have a bit of a limp. I wear an SI belt to stablize my hips. It helps tremendously with balance and pain from having weak hip extensors and flexors.

    I am thankful for all I have regained. Unfortuanetly, going on 8 years since injury, I can already feel my body breaking down. More pain, aches, more dependent on crutches and having to use my wheelchair more often.

    By the way Welcome kathyK, sorry u had to find us but glad that you did.

    I concentrate on doing my streches and make sure I get exercise. We have to try and keep moving to keep what we have. We also have to walk the line of not over doing because we will pay for it. If I over extend myself I will end up in bed for days in pain unable to move.

    If you have any specific questions feel free to message me.
    medic1, what is this si belt? balance is an issue for me also due to one sided weakness.
    its the entire side, 1
    hand too, so gripping crutches and canes is difficult. I use the heftier trekking poles with the wide loops that go over your hands. I have stability probs at the waist though, spasticity, and spasms that affect balance. I ask though because my si ligaments were torn on one side and there is movement in my pelvis that cause some balance issues. I google, but see nothing. is there a brand?

Similar Threads

  1. Replies: 8
    Last Post: 08-30-2006, 06:01 PM
  2. Replies: 0
    Last Post: 02-07-2005, 10:09 AM
  3. Replies: 5
    Last Post: 09-24-2003, 04:16 PM
  4. Replies: 0
    Last Post: 07-28-2002, 03:42 PM
  5. CRASH Trial: Methylprednisolone treatment of Head Injury
    By Wise Young in forum Clinical Trials
    Replies: 0
    Last Post: 10-02-2001, 04:25 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •