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Thread: Is there any trial or treatment for our kind of injury?

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  1. #1
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    Is there any trial or treatment for our kind of injury?

    As i have compression fracture at L1 so can some one or Wise tell that if there is any trial of stem cell or something else forold lumbosacral injuries with compression?

    What is the future of Cure for old lumbosacral injuries with compression specially when patient like me is walking very well like normal person?

    Will decompression be needed before any treatment? How treatment will be managed?

  2. #2
    i wish they had something, i would settle for the pain reduction. I walk with a big limp and i leg is atrophied, but i was able to get rid of the AFO after 7 years and move down to an ankle brace, i still need the afo when it is snowy and icy as the ankle brace , even though it is the strongest type, my ankle and foot still collapse to the left. i found that out last week when i tried to walk in the snow with strong anti slip things strapped onto my boot.
    the pain and side effect are really ruining me.
    cauda equina

  3. #3
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    I had a L1 burst fracture. Same type of injury , I walk pretty well but still use crutches and chairs to get around. As far as I know and the research I have done we are too low of injury to be of any priority in research.

  4. #4
    Quote Originally Posted by medic1 View Post
    we are too low of injury to be of any priority in research.
    I wouldnt go that far. Lower lesions will likely benefit from the good work the ALS and SMA scientists are doing with regards to neuronal replacement. So all is not lost.

    I guess what we will be looking at is the convergence of therapies (CNS injury therapies and neuronal replacement therapies) which will then provide hope for lower lesions.

  5. #5
    Fly remember the similarites that Wise provided on all aillments; ms, als, cns, and spinal injuries. He clearly stated that cures or treatments for one will benefit others as well. So we must agree with your assessment. Als and acute trials are moving along nicely; we need to see positive outcomes. Slow, but cureently moving.

    keeping on

  6. #6
    Senior Member medic1's Avatar
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    Quote Originally Posted by Fly_Pelican_Fly View Post
    I wouldnt go that far. Lower lesions will likely benefit from the good work the ALS and SMA scientists are doing with regards to neuronal replacement. So all is not lost.

    I guess what we will be looking at is the convergence of therapies (CNS injury therapies and neuronal replacement therapies) which will then provide hope for lower lesions.
    I guess I was refering to therapy trials and stem cell research trials. Our injuries are so low and most have a fair amount of function that the priority is to get higher ups use of arms and hands so that they can live more independently. Therefore, most trials and experimental treaments are for higher ups. We will benefit from the research, its just that they look at us and figure we are pretty good the way we are.

  7. #7
    Senior Member Foolish Old's Avatar
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    Quote Originally Posted by medic1 View Post
    I guess I was refering to therapy trials and stem cell research trials. Our injuries are so low and most have a fair amount of function that the priority is to get higher ups use of arms and hands so that they can live more independently. Therefore, most trials and experimental treaments are for higher ups. We will benefit from the research, its just that they look at us and figure we are pretty good the way we are.
    Without convincing evidence to the contrary, I would strongly doubt that level of function (need?) plays much of a role in deciding what areas of research get the juice.
    Foolish

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  8. #8
    Senior Member medic1's Avatar
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    Quote Originally Posted by Foolish Old View Post
    Without convincing evidence to the contrary, I would strongly doubt that level of function (need?) plays much of a role in deciding what areas of research get the juice.
    Isnt the evidence in the fact that I have been unable to find a single clinical trail/experiment/research team, that has accepted a spinal cord injury that is low. They all seem to be cut off higher up than my injury. Not trying to argue just trying to figure things out. If there are any clinical trials etc for low level injuries I would love to hear of them!

  9. #9
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    I also have an L1 burst fracture. I walk with afo's on both legs brcause of drop feet, I can "walk" with help from walkers, arm crutches. My problem is balance. I was wondering since you said you walk pretty well, is how did you do it? I should also tell you, if you had'nt guess, I'm new on this site. I'd appreciate any feedback, thanks.

  10. #10
    Senior Member medic1's Avatar
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    Quote Originally Posted by kathyk View Post
    I also have an L1 burst fracture. I walk with afo's on both legs brcause of drop feet, I can "walk" with help from walkers, arm crutches. My problem is balance. I was wondering since you said you walk pretty well, is how did you do it? I should also tell you, if you had'nt guess, I'm new on this site. I'd appreciate any feedback, thanks.
    I usually get around the house without assistance. I have orthotics that help a lot. I use night splints at night. I use crutches out of the house along with my wheelchair for longer distances. I cant walk for long periods or stand for too long.

    My right side is weaker than my left so I tend to walk as if I have a bit of a limp. I wear an SI belt to stablize my hips. It helps tremendously with balance and pain from having weak hip extensors and flexors.

    I am thankful for all I have regained. Unfortuanetly, going on 8 years since injury, I can already feel my body breaking down. More pain, aches, more dependent on crutches and having to use my wheelchair more often.

    By the way Welcome kathyK, sorry u had to find us but glad that you did.

    I concentrate on doing my streches and make sure I get exercise. We have to try and keep moving to keep what we have. We also have to walk the line of not over doing because we will pay for it. If I over extend myself I will end up in bed for days in pain unable to move.

    If you have any specific questions feel free to message me.

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