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Thread: Middle of the night and scared

  1. #21
    We think it must be some kind of Murphy's Law and multiple corollaries that these difficult and scary problems always occur on a weekend in the middle of the night.

    Hoping that you and Dave are doing better now.

    All the best,
    GJ & NL

  2. #22
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    Quote Originally Posted by LindaT View Post
    I tried calling there last night, but had no after hour number. I've got it on my fridge.
    I'm going to keep the number you gave me too Tom.
    Tomorrow I am calling to talk to someone at Craig for a back up plan Cheesecake.
    Hopefully they can give you a contact for after hours calls.

    Sounds like the tummy problem was some sort of bug now you are sick. Hope it is a quick one.
    T7-8 since Feb 2005

  3. #23
    Quote Originally Posted by Scaper1 View Post


    Linda, why does Dave use a cuffed trach? They're incredibly irritating.
    I really don't know-I thought you had to have an inflater on a vent. When he was at Craig they used the metal jacksons. He left there trach free, but had one a few months later after pneumonia.
    He had a Shiley with the inner canulas and the air syringe inflater, but was never able to tolerate the passey muir with it and the ENT here had no other suggestions.
    (Except to bring him back when he was "better" because he spasmed.)
    When we went back to Craig Nov 09 they had a specialist from a Denver voice clinic come to look. He suggested the Bovina 7 and was like a miracle tha the could use the passey muir and speak again even if a vocal cord is paralyzed-probably when re intubated 3 times.
    So I inflate (water syringes) only when I put him on the vent at night and bring it down in the morning when he comes off of it.
    I did really feel the Denver guy was good.

  4. #24
    Darth, If you lived next door I'd have been grateful.
    Apparently some 24 hour bug going around. I feel like crawling in a hole.
    Thankfully tomorrow night we have an overnight.

  5. #25
    Junior Member Ambisinister's Avatar
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    I use a cuffed trach as well, and I have vomited many times with it inflated and deflated and I haven't experienced any ill effects from it. I am two and half years post and was completely vent dependent for the first 14 months after which I slowly began to be able to breathe on my own during the day. I still sleep with the vent and the cuff inflated. I find it more irritating to use a trach without a cuff, but that is just me. I drop the cuff in the morning when I wake up and inflate it before going back on the vent. I absolutely hated the passey muir valve and would make family and caregivers read my lips (at least most of the time) rather than stick that thing in line with the vent. Since I have regained some ability to breathe I am very thankful that I don't have to use it anymore.

    Anyway as far as puking with the cuff inflated or deflated, I prefer to do it with the cuff inflated if I am on the vent. No medical backing behind this just what I have found to be easier. Hope it helps, and let me know if you have any other questions. I have been a lurker on this site for at least a year and have read many of your posts Linda and often felt guilty for not registering and throwing in my two cents. There aren't a whole lot of us high quads with trachs, and sharing information is invaluable.

    Hope you guys kick the bug and feel better soon.

  6. #26
    Thank you greatly for your personal experience. It is scarey when you think someone can die if you forget or make the wrong choice.
    We don't use the PM on the vent, that is reading lips and clicking.
    He does not have a voice without it and some days it is pretty quiet around here.

  7. #27
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    (((hugs Linda)))
    T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

    My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

  8. #28
    Senior Member kate's Avatar
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    Quote Originally Posted by Ambisinister View Post
    I use a cuffed trach as well, and I have vomited many times with it inflated and deflated and I haven't experienced any ill effects from it. I am two and half years post and was completely vent dependent for the first 14 months after which I slowly began to be able to breathe on my own during the day. I still sleep with the vent and the cuff inflated. I find it more irritating to use a trach without a cuff, but that is just me. I drop the cuff in the morning when I wake up and inflate it before going back on the vent. I absolutely hated the passey muir valve and would make family and caregivers read my lips (at least most of the time) rather than stick that thing in line with the vent. Since I have regained some ability to breathe I am very thankful that I don't have to use it anymore.

    Anyway as far as puking with the cuff inflated or deflated, I prefer to do it with the cuff inflated if I am on the vent. No medical backing behind this just what I have found to be easier. Hope it helps, and let me know if you have any other questions. I have been a lurker on this site for at least a year and have read many of your posts Linda and often felt guilty for not registering and throwing in my two cents. There aren't a whole lot of us high quads with trachs, and sharing information is invaluable.

    Hope you guys kick the bug and feel better soon.
    One of the kindest, most thoughtful & helpful posts I've ever read. Thanks so much for that . . . I know you've just helped more people than you can imagine.

    LindaT, geez. Really pushing good thoughts your way more or less constantly. Hang in.

  9. #29
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    Awww,wish I could have your back, but please know I send you endless empathy. Deb

  10. #30
    Senior Member zillazangel's Avatar
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    Linda - ask Joel (trainman) about trachs, he is vented and probably can help too.

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