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Thread: Rick Hansen doesn't dream to cure SCI

  1. #111
    Quote Originally Posted by lynnifer View Post
    http://en.wikipedia.org/wiki/Schwann_cell

    I thought Schwann cells only existed within the spinal cord ... how did they get them from the skin or is that a typo or am I mistaken?
    lynnifer, Schwann cells are in peripheral nerves. There normally should be no Schwann cells in the central nervous system. Wise.

  2. #112
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    Here is what you can do as a individual if you want to

    Quote Originally Posted by woman from Europe View Post
    It is terrible. They are carrying children in wheelchairs in and out of the school and they can't get out in the breaks. And I am not the first parent either. Why can't they find a nice ramp at least? I have one but it is not for 10 steps. I have been inside but I was fighting for a ramp for seven years and I know the other parent had been fighting for 10 years before I started.

    Now my small one is in new school, that building is from 1750, but I can get inside in the first floor because it is only one step. But I can't see where he is living and the classrooms. So when it is a meeting we have to have it a different place than the other parents.

    I haven't seen my daughter get her papers as a nurse either. It was in the cityhall, the big building besides Aker Brygge where you were eating when you was here.
    Hi WFE,

    Okay, since this cure thread has gone haywire let’s discuss accessibility in Oslo and what you can do.

    Here are a few tips and links for you to consider if you really want to get engaged. Some of these tips requires some more work than the other tips, but if you spend some time on these tips instead of complaining on an American forum on these issues you might be able to help yourself and others too. You also probably know most of what I write below, but I‘d like to mention it for you anyway:

    First of all, in Norway there are two major umbrella independent living organizations working on accessibility, but not limited to that. These are the Norwegian Association of Disabled (NAD) http://www.nhf.no/index.asp?id=61240 and the Norwegian Federation of Organisations of Disabled People (FFO) http://www.ffo.no/en-gb/ . Here you have two options and these are; a) you can bring your case to them for them to take actions on, or b) you can get directly involved in these organizations and work more broader on all disabled issues including accessibility, these organizations also btw now during the late spring will have their annual meetings where board members are elected for their executive boards. These are democratic organized organizations and if you are interested in board work in either of these organizations you might want to contact their respective election committees and show you’re interest. Both of these organizations have their main offices in Oslo. These umbrella organizations also have member associations whom are defined as diagnosis associations, such as the NSCIA, thus these associations are more focusing on the different diagnosis itself, but not limited to that, these also work on accessibility and so on in collaboration with the two major umbrella organizations mentioned above.

    Secondly, these organization also have several local chapters. NAD for example has also a local chapter in Oslo
    http://www.nhf.no/index.asp?id=65685 and here you can also do as suggested in a) and b) above. Btw I can also see that this local chapter currently are looking for an employer to work on disabled issues. Why not apply for this position as well?

    Thirdly, the Norwegian Spinal Cord Injuries Association (NSCIA) - which is a member association of NAD - also has a local chapter in Oslo
    http://www.regioner.nhf.no/index.asp?id=55138 and here you can also do as suggested in a) and b) above.

    Fourth, as for accessibility and possible breach on the disabled discrimination laws you can address you’re case directly to Likestillings- og diskrimineringsombudet (LDO)
    http://www.ldo.no/en/ or if you don’t want to have the focus on yourself by doing so you can contact the umbrella organizations mentioned above to have them to address you’re case on behalf of them.

    Fifth, you have also in Oslo a lot of media channels and press whom loves to address cases as you mentions above. You know how to contact them if you want so I will not link information here on that.
    There are several other options too for you to take action on if you like, but I think the above should be plenty for keeping you busy for a couple of days.

    Good luck and if you like let me know if you need any more information, oh and please post you’re progress on this important work of yours here on CC for others to learn from and follow.


  3. #113
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    Quote Originally Posted by lynnifer View Post
    http://en.wikipedia.org/wiki/Schwann_cell

    I thought Schwann cells only existed within the spinal cord ... how did they get them from the skin or is that a typo or am I mistaken?
    Oligodendrocytes are cells that coat axons in the central nervous system (CNS). Schwann cells provide myelination to axons in the peripheral nervous system.

  4. #114
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    Quote Originally Posted by woman from Europe View Post
    It is terrible. They are carrying children in wheelchairs in and out of the school and they can't get out in the breaks. And I am not the first parent either. Why can't they find a nice ramp at least? I have one but it is not for 10 steps. I have been inside but I was fighting for a ramp for seven years and I know the other parent had been fighting for 10 years before I started.

    Now my small one is in new school, that building is from 1750, but I can get inside in the first floor because it is only one step. But I can't see where he is living and the classrooms. So when it is a meeting we have to have it a different place than the other parents.

    I haven't seen my daughter get her papers as a nurse either. It was in the cityhall, the big building besides Aker Brygge where you were eating when you was here.
    Typical, -a total silence when the meat meets the bone (sending me hate pm’s don’t help WFE).

  5. #115
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    WFE - above I sincerely tried to help you, then you send me a hate private message, Why?

  6. #116
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    Quote Originally Posted by lynnifer View Post
    http://en.wikipedia.org/wiki/Schwann_cell

    I thought Schwann cells only existed within the spinal cord ... how did they get them from the skin or is that a typo or am I mistaken?
    Hi, do you think it is okay as per CC rules as for baiting to have signatures like you have?

  7. #117
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    Quote Originally Posted by Leif View Post
    Hi, do you think it is okay as per CC rules as for baiting to have signatures like you have?
    Don't feed the troll.
    Don't ask what clinical trials can do for you, ask what you can do for clinical trials.

    Fenexy: Proyecto Volver a Caminar

    http://www.fenexy.org (soon in english too)

  8. #118
    Rick mentioned on TV here while visiting the Royal Talbot Rehab in Melbourne that he thought a cure would take 10yrs for acute 25yrs for chronic!! God I hope he's being pessimistic and not realistic.. I don't want to wait 25 fucking yrs!!!!!!!

  9. #119

    Cool

    there will be an effective therapy(i didn't say full cure) for both acute and chronics way before 10 or 25 yrs, hopefully within 3-5 yrs in my opinion. once we have something solid to build on, the spotlight, microphones, video cameras will start to leave hansen........it will hurt his ego. its not to late to put some of that money into labs that on working to fix sci sooner than later.

  10. #120
    Ineedmyelin, thanks mate, I'm sorry for being negative as I read these posts all the time and like the positive stuff. I was having a bad day and the last thing I needed was to hear I could be looking at 25 more yrs of this sentence..

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