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Thread: Paraplegic backing for stem cell trials in New Zealand

  1. #11
    Grammy, I assume you mean the researcher or doctor who made the statement; no I didn't. Any ideas?


    keeping on

  2. #12
    Quote Originally Posted by keeping on View Post
    Geoman and Fly, I read the aritcle yesterday and the same thing crossed my mind. This parasite of funding says he can't tell if funds should go for therapies for improvement in our lives or managin our lives as is. I oppose any thinking of this type. We need to let him and those who think like him out of the arena. We must belive in the new day that is upon us. We must advocate for our selves. We must enter into new therapioes that upon on. We shall overcome, we shall.

    keeping on
    Did you write a letter to "the parasite of funding" you refer to or make a call to him to discuss and advocate for your viewpoint?

    How are you letting him out of your arena if you don't contact him?

    How is "advocating for ourselves" accomplished if there's no action?

    It's nice to believe that a new day is upon us, and we shall overcome...
    I don't see the saints marching in just yet. Advocacy begins with Action. Action requires Funds. If you don't advocate for funds there's no action going to take place.

    ADVOCATE + FUNDS = ACTION (then you shall overcome)
    Last edited by GRAMMY; 01-24-2011 at 01:17 AM.

  3. #13
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    Quote Originally Posted by Geoman View Post
    klj, thanks for clarifying. So where does this guy from the NZ Spinal Trust get off telling us the money is better spent on care? I wonder if he's in a chair?

    Geoman
    I investigated further & the NZ Spinal Trust guy is in a chair (injured @ 18yrs in 1983).

    Not saying he is one, but I almost think that some out there almost have a vested interest there is no cure (nor progress towards this) as their roles would become obsolete. Making their view somewhat selfish. Maybe I'm wrong (I hope so) but it's a feeling I get from reading various articles & talking to rehab specialists etc over the years.
    The important thing in life is to have great aim, and the determination to attain it.

  4. #14
    Quote Originally Posted by klj View Post
    I investigated further & the NZ Spinal Trust guy is in a chair (injured @ 18yrs in 1983).

    Not saying he is one, but I almost think that some out there almost have a vested interest there is no cure (nor progress towards this) as their roles would become obsolete. Making their view somewhat selfish. Maybe I'm wrong (I hope so) but it's a feeling I get from reading various articles & talking to rehab specialists etc over the years.
    I cannot fathom someone paralyzed since 1983 having a vested interest in making sure no cure is ever found. That's beyond my comprehension.
    Last edited by GRAMMY; 01-24-2011 at 09:33 PM.

  5. #15
    Quote Originally Posted by GRAMMY View Post
    I cannot fathom someone paralyzed for 18 yrs having a vested interest in making sure no cure is ever found. That's beyond my comprehension.
    Maybe not a vested interest - but happy to provide enough practical cynicism for it to fail. Fathom it Grammy - it's true.

    Saying the word "Cure" at a spinal unit is the equivalent of saying "Bomb" at an airport. Fathom that!!!!

  6. #16
    Quote Originally Posted by Fly_Pelican_Fly View Post
    Maybe not a vested interest - but happy to provide enough practical cynicism for it to fail. Fathom it Grammy - it's true.

    Saying the word "Cure" at a spinal unit is the equivalent of saying "Bomb" at an airport. Fathom that!!!!
    So then you mean these folks in New Zealand have a conspiracy theory thing going on and actually don't want a cure found for SCI?

    Or, are you speaking about spinal units in London where you have had experience?
    Last edited by GRAMMY; 01-24-2011 at 11:51 AM.

  7. #17
    There are too many interests around spinal injuries. Way too much money envolved. Some companies are owned by chair users, do you think they sell their products at a fair price? Same goes to any other disability/disease. Humanity has a big defect called greed.

  8. #18
    Quote Originally Posted by herrlich View Post
    There are too many interests around spinal injuries. Way too much money envolved. Some companies are owned by chair users, do you think they sell their products at a fair price? Same goes to any other disability/disease. Humanity has a big defect called greed.
    Are these companies located just in Bethlehem where you are?
    Or, are they everywhere in the world?

  9. #19
    Quote Originally Posted by GRAMMY View Post
    So then you mean these folks in New Zealand have a conspiracy theory thing going on and actually don't want a cure found for SCI?
    No, my comment was more of a generalisation about Cure. ;-)

    I think the issue with this NZ story is that the three stakeholders - the scientists, the clinicians and the patient group are not talking to each other!

  10. #20
    Quote Originally Posted by Fly_Pelican_Fly View Post
    No, my comment was more of a generalisation about Cure. ;-)

    I think the issue with this NZ story is that the three stakeholders - the scientists, the clinicians and the patient group are not talking to each other!
    Humm...I didn't get that impression from the story.
    So which stakeholder poses the biggest problem for this clinical trial?
    Last edited by GRAMMY; 01-24-2011 at 03:24 PM.

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