Suzanne,
First of all, I just want to say, how wonderful are you! I'm 25 years old and recently suffered a SCI. It is a life changing event but it is possible for him to tolerate it because of you. My father has been there for me every day since I got out of the hospital and he saves my life and my mind every day. It is because of our families that we are willing to fight to get our lives back..even though they may be different. Since i'm new, I don't have much advice to give yet but one piece that I can offer is believe in miracles and don't ever stop. Good luck to you and your son