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Thread: Calmare Pain Therapy Treatment for SCI Pain??

  1. #11

    Latest on Calmare

    My wife suffers from CRPS, which expresses as pain in both feet following failed back surgery. She underwent Calmare scrambler therapy in August. It markedly reduced her CRPS pain and also indicated that she had non-neuropathic pain as well caused by an entrapped sciatic nerve. Calmare won't fix the latter. We currently are working on the sciatic entrapment (piriformis syndrome) and when alleviated, she will again undergo Calmare therapy. This therapy is amazing in that electrodes are placed on the skin above and below the affected dermatome and electrical signatures of the non-pain nerves (Adelta and beta fibers) are input into the pain center in the brain via the C-fibers (pain fibers). The thought is that this causes the nerve bodies to recognize non-pain signals via neuroplasticity. To date, there are no systematic controlled studies on CRPS studies published, but there are published data on the effects of Calmare on other types of painful neuropathies caused by cancer chemotherapy as a result of toxicity of the chemotherapeutic drugs. As for my wife, her entrapped nerve pain is improving slowly, and once improved, she will have another round of the scrambler therapy. Some of these devices have been placed at Walter Reed Hospital and the returning wounded military personnel are seeing wonderful results for phantom pain and other types of neuropathic pain. The most current reference is for chemotherapy-induced neuropathic pain. This therapy is non-invasive and painless. I can give you a number to call in RI where this is performed on all types of conditions that involve neuropathic pain. This is definitely worth a shot.

    Check this ref out:


    J Pain Symptom Manage. 2010 Sep 1. [Epub ahead of print]
    Pilot Trial of a Patient-Specific Cutaneous Electrostimulation Device (MC5-A Calmare((R))) for Chemotherapy-Induced Peripheral Neuropathy.
    Smith TJ, Coyne PJ, Parker GL, Dodson P, Ramakrishnan V.

    Massey Cancer Center, Virginia Commonwealth University, Richmond, Virginia, USA.

    To the person who mentioned constipation with narcotics, take them with prune juice.

    Kind regards,
    Bill Hall

  2. #12
    Bill Hall

    I see I misunderstood the nature of Calmare. I assumed this was another of the implantable stim devices. Your description is of a cutaneous electrostimulation. Do you happen to know how this differs from TENS? Is it the frequency of the stim, the amperage that passes the skin. Some new electrode pattern?

    The article indicates the treatment is for peripheral neuropathy. Are you aware of any data advocating it for central neuropathic pain?

  3. #13
    Dej, all

    No data indicative of help for serious SCIs. my home town no one I know who tried it for more than what i consider minor pain, has had any success, try if you'd like but not hearing anything worth bothering. one fellow with a recurring by my standard minor ache got some relief. I'd like to see their clinical data, my docs put it below snake oil and they'll recommend trying virtually anyting to me based on my pain.
    Kindly,

    The Ketamine Kitty

    All the tears, all the pain, all the rage through the night (apolgies to the rewrite) RR

    Next time I die make sure I'm gone,
    don't leave 'em nothing to work on JT

    And I ain't nothin but a dream JM

  4. #14

    Calmare

    My understanding of TENS is that it activates opioid receptors resulting in pain relief. I do not know how long this relief lasts. Calmare has taken the electrical signature of peripheral nerves that don't transmit pain and place that signature in through the skin nerves that transmit pain to the brain (C-fibers) so that the neurons in the pain center of the brain no longer recognize the pain impulses. Thus, TENS inputs electrical blocking signals and Calmare inputs specific nerve signatures that change the recognition of the normal pain signals transmitted by the pain nerve fibers. This therapy is so new in this country (FDA approval Feb 2010, published data in previous response) that data are still being collected for various conditions for peripheral neuropathies. Will it work on SCI-related pain? I don't know, and I would suggest consulting an expert in this. You can find an expert on the www.calmarett.com web site.
    Quote Originally Posted by dejerine View Post
    Bill Hall

    "I see I misunderstood the nature of Calmare. I assumed this was another of the implantable stim devices. Your description is of a cutaneous electrostimulation. Do you happen to know how this differs from TENS? Is it the frequency of the stim, the amperage that passes the skin. Some new electrode pattern?

    The article indicates the treatment is for peripheral neuropathy. Are you aware of any data advocating it for central neuropathic pain?
    "

  5. #15

  6. #16
    Quote Originally Posted by t8burst View Post
    Yeah "wisonsonmom", live with my pain for a day and then see if you post things like "narcotics are harmful".
    constipation,, of my! what are we to do! not constipation,,oh no anything but that constipated froggy trying to bounce it out.
    sorry wisconsomom, you have no idea on what people deal with , due to pain here,
    cauda equina

  7. #17
    this doesn't sound too invasive, whic is good, there should be a real trial period to see if it works, not the bogus trial periods they use with the scs, where you come back after 3 or 4 days and say you don't think its working and they talk you into getting it implanted since the wire could have moved, yada yada i want to buy the new Acura next week yada.
    Alos the pm specialist will be labeling everything rsd or crps, since that is what it will be approved for. this is what happened to me with the scs implants, i may have crps psd, but the ass kicking pain that requires all the meds is cauda equna syndrome, and per the mri'i have a unstable spinre and bone on bone, so when i lean forward at the waist when on the toilet, i can go from no pain, meaning controlled by meds, to, total ass kicking , MF words cant describe breathtaking pain, that luckily passes in under a minutet, so far. i have nothing powerful enough to knock it down quick enough , and if it stayed, and i could open the meds and get them in my buccal area, i would probably OD trying to knock it down enough, it is well beyond a ambulance call, unless i knew the docs at the er knew my condition and knew how to treat it, which wont happen, especially now that my pain management doc is in nyc and i am in the suburbs, and i would not trust the hospitals to manage it , plus laying down for 8 hours can make it worse.
    i wish they had a brain scan , so they could see what was going on , i think it would be like fireworks or they would see jason from fri the 13th.or godzilla
    cauda equina

  8. #18
    ...the Calmare is a TENS device pure and simple...ALL of the claims made by the company that's trying to sell it about "scrambled signals" being sent along "artificial neurons" is just nonsense...I posted quite a bit of information in the comments section of these seekingalpha articles:

    seekingalpha.com/article/222195-competitive-technologies-short-squeeze-coming-or-another-leg-down

    seekingalpha.com/article/228645-competitive-technologies-more-frequent-sales-to-come

    ...in addition, you can visit the inventor's website where he claims he can also use electricity to cure cirrhosis, remove scars, and reverse the effects of aging:

    http://www.deltard.com/eng/leggi.php?id=1460&

    ....he'll even sell you a "limited edition" autographed fan he invented that'll be worth something as soon as he becomes famous:

    http://www.deltard.com/eng/tecnowind.php

  9. #19

    Calmare treatment

    Assuming that you do not believe anyone with a "works for me" post (which is fair -- it could be a company posting):
    1) It's non invasive.
    2) No side effects.
    3) You will know on the first treatment whether it works for you or not.
    4) Mayo Clinic (among other reputable organizations) thought Calmare had potential enough to conduct a clinical trial (google MC5 Mayo for details).
    5) If you try it and it works, the rest of your life will change for the better. If it doesn't work, you will be out of $____ (fill in your cost for one treatment). If you don't try it, well... it's your pain to live with.


  10. #20

    Please Note: rrtzmd is a shill with interests against Calmare

    First off, in the interest of complete disclosure, let me say that I am an investor in Competitive Technologies - the firm that has distribution rights to the Calmare Therapy device.

    I can't say whether Calmare will prove to be a breakthrough or not; I have invested in this firm because I am encouraged by the patient testimonials and the clinical tests currently under way by the Mayo Clinic and Veterans Administration. And I am in no way qualified to advocate the trial of this therapy.

    But I can tell you that the person who posts as 'rrtzmd' has been shown to have interests against CTTC, presumably "short" interest or is invested in a competitor. Despite his campaign to portray the Calmare device as a TENS unit, he has no basis for this fact; Quite the contrary - The Mayo Clinic and VA would not be investing time and effort into this therapy if it were not different than TENS. If you Google 'rrtzmd', you will see that he has waged a campaign against a number of technologies without revealing the source of his bias.

    The takeaway from this is that you should consider 'rrtzmd' as a person with interest in seeing Calmare fail and perform your own research.



    Quote Originally Posted by rrtzmd View Post
    ...the Calmare is a TENS device pure and simple...ALL of the claims made by the company that's trying to sell it about "scrambled signals" being sent along "artificial neurons" is just nonsense...I posted quite a bit of information in the comments section of these seekingalpha articles:

    seekingalpha.com/article/222195-competitive-technologies-short-squeeze-coming-or-another-leg-down

    seekingalpha.com/article/228645-competitive-technologies-more-frequent-sales-to-come

    ...in addition, you can visit the inventor's website where he claims he can also use electricity to cure cirrhosis, remove scars, and reverse the effects of aging:

    http://www.deltard.com/eng/leggi.php?id=1460&

    ....he'll even sell you a "limited edition" autographed fan he invented that'll be worth something as soon as he becomes famous:

    http://www.deltard.com/eng/tecnowind.php

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