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Thread: Calmare Pain Therapy Treatment for SCI Pain??

  1. #1

    Calmare Pain Therapy Treatment for SCI Pain??

    We have recently become aware of this new treatment for various types of neuropathic pain. Apparently it is most often used for cancer-related pain, but also for some other types of neuropathic pain that is non-responsive to pharmaceutical treatment, TENS, or implanted devices. Currently it is in use at only a few locations in the U.S. These include the cancer center at University Wisconsin, and, we are told, the Mayo Clinic, so this is not some kind of scam. Results have been excellent, the provider company says.
    This is a bio-physical rather than bio-chemical therapy that consists of 10 to 12 consecutive treatments, 5 days a week for two weeks. Results are said to be long-lasting. Question: has anyone tried this treatment for neuropathic pain caused by Spinal Cord Injury. If so, what was your experience with it? Our son, C 5/6, has severe neuropathic pain in a portion of one arm, and every treatment he's tried -- various drugs, surgery, acupuncture, TENS, and physical therapy-- have failed to stop this pain. We wonder if the Calmare Therapy might be the answer for him. Any opinions?

  2. #2
    Hi Wisconsinmom,
    Do you happen to know what these bio-physical therapies entail? I have not heard of them.
    arndog

  3. #3

    Website for info on Calmare Therapy

    Go to www.calmarett.com.
    This is the equipment company's site that explains the treatment and has a link to clinics offering it. (The company's name is actually Competitive Technologies, Inc., of Fairfield, Ct.)

  4. #4
    Thanks for the website. I hope it helps your son. I have trouble with their claims that 80% of patients treated had relief, but even if half that saw some relief it would be worth exploring. I also have trouble with them saying that narcotics are "harmful" but I know it is an advertisement. Good luck!

  5. #5

    Narcotics Are! Harmful

    For many people with SCI, taking narcotics cause constipation. The dose high enough to reduce the pain can also make the person addle-headed, which is especially bad if the person has a job or drives or for other reasons needs to remain clear-thinking.

  6. #6
    Quote Originally Posted by wisconsinmom View Post
    For many people with SCI, taking narcotics cause constipation. The dose high enough to reduce the pain can also make the person addle-headed, which is especially bad if the person has a job or drives or for other reasons needs to remain clear-thinking.
    Yeah "wisonsonmom", live with my pain for a day and then see if you post things like "narcotics are harmful".

  7. #7

    Bio-physical vs. bio-chemical pain treatment

    Sorry. I just meant that if an effective bio-physical therapy for neuropathic pain that doesn't have side effects has been or can be found, it would/ will have significant advantages over narcotics, which do have side-effects.

  8. #8
    Quote Originally Posted by wisconsinmom View Post
    Sorry. I just meant that if an effective bio-physical therapy for neuropathic pain that doesn't have side effects has been or can be found, it would/ will have significant advantages over narcotics, which do have side-effects.
    Very true, sorry pain makes me grumpy

  9. #9
    Wis mom

    I am not aware of any controlled study which shows biophysical treatment stops central pain. I am aware of some studies which show that some patients benefit from medicines injected by pump.

    I think it is unlikely any one company delivering current by wire is much different from other reputable companies. Pain relief is based on the idea that electrically causing a paresthesia, or "buzzing" will block pain. Although some reports have been encouraging, others have not.

    Pain reliefs are not measured by the institution which chooses to try them. Pain is no respecter of persons, or prestige. When I first got central pain, Mayo's did not know what it was. Collections of top specialists are good and Mayo's has since done some very good work on central pain, including the discovery that central pain patients display a palimpset of sensation which ordinary people do not display. This may indicate a shift in skill and emphasis since my experience with them. Hopefully they are just dazzlingly ahead and forging a new treatment. I have been down this road so many times, I am by habit skeptical. I am not of the opinion that institutions have sufficient means of measuring pain to know whether they have helped people or not. There is also a problem with followup. Few studies will keep tabs on patients for a full year or two to see whether things really panned out.

    I think we will stop central pain when we fund studies such as those by Kenneth Hargreaves to block or counter the neuroinflammatory chemicals produced by nerve injury. I do not expect to see a cure before money is devoted to such research. In the meantime, I expect a lot of dithering and reattempts at unsuccessful approaches, or new combinations of drugs which are not new, just patentable. I certainly hope I am wrong about this, but after so long, there seems to be a pattern. Sort of like "new" theories of child raising, which tend to revert to more traditional principles with time. If you are a skeptic, people don't want to hear it. I have learned to accept this. Nearly everything done to me has made me worse. Lets hope I get to eat my words. In the meantime, the pain is eating me. Obviously, I have learned to curb my enthusiasm.
    Last edited by dejerine; 12-03-2010 at 01:28 PM.

  10. #10
    Check out this page it has links to some data from Europe on Calmare Therapy.

    http://www.facebook.com/notes/crps-r...69550483070233

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