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Thread: Equipment for Kids

  1. #31
    thanks! we are doing ours on wed the 8th
    Aspergers,hypotonic CP, Autonomic Issues.

    Disney OBSESSED family

  2. #32
    Hi, Hopefully not too late for you but in general the one most used and recommended here is the handicare hippo and an even better one is the handicare rhino. However it is no longer available here in europe and only for US so you are in luck. It has tilt and goes up and down. It is often used with an x-panda seating system. Is an indoor/outdoor chair and really robust so kind of ticks all boxes. WE did come across a twister-cant remember proper brand and it lowered to the ground so child could play on grass. wish i had info at fingertips but don't. apologies for forgetting to send on info and good luck tomorrow.
    Not sure how your childs communication is like but the alex power chair which unfortunately appears to be adult can integrate a communication system into th.e controller. ( R.Net system compatible with omni plus communication system.
    Take care, Sonia.

  3. #33
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    Quote Originally Posted by noirin's mum View Post
    Hey Gordy, Havn't been on for a while, Loved the info about sit ski in scotland-very doable for us distance wise, glad you all loved it. and great idea about the scooter-i see your boy is a lot more confident than my girl-she still has anti-tippers-but they are going higher!

    Pity this forum didn't take off much-thought there were more of us out there.
    I've not been posting too much recently, but still reading lots!

    Scooter is still working really well. Managed to find a much better way of connecting the scooter to the footrest (a door hinge, as simple as that!). Now works really well on grass as well as tracks, and he can go scarily fast on sealed surfaces! I discovered someone else has a video on youtube using the same hinge mechanism...except he uses an even more powerful scooter!

    He does use anti-tippers, they are just tilted upwards when he uses the scooter (no danger of tipping when the weight of the scooter is attached!). Ti-lite's anti-tippers are pretty good at folding up out of the way really easily/quickly (which also helps if you want to put the chair in a car seat instead of the boot).

    Now looking into sit-skiing in real snow in New Zealand, hopefully this year...

    Also thinking about another chair (Icon looks interesting!), as he's growing far too quickly!

    And looking at getting some electric power added to his handcycle, now that I've realised how hard handcycling is (particularly uphill...).

    As for the forum not taking off, at least there is some info here for any new folk...I think we both know that the info would have been of some use had it been available for us when all this started...

    WCmom, sorry, but my experience with power chairs is nil (although my idea about the electrification of my son's handcycle could ideally be replicated on a wheelchair, but that's probably not a good recommendation for anyone else yet until I see if it will work!)...hope your assessment went well.
    Gordon, father of son who became t6 paraplegic at the age of 4 in 2007 as a result of surgery to remove a spinal tumour.

  4. #34
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    http://www.tricyclefetish.com/angele...ke-p-1535.html

    Small child's handcycle...might be useful for someone very young.

    More discussion here: http://sci.rutgers.edu/forum/showthread.php?t=201421
    Gordon, father of son who became t6 paraplegic at the age of 4 in 2007 as a result of surgery to remove a spinal tumour.

  5. #35
    Freedom Cycles are awesome. They have funding for those who need assistance
    For those who are handy, build a Universal Exercise Cage
    Adaptive rock climbing walls for kids are also easy to install and relatively cheap
    -PM me if you want to see pictures

  6. #36
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    As some of you already know, my son now has a Firefly electric attachment. I've been saying how good it is, but thought I needed to provide some video evidence, so here goes:

    http://youtu.be/IKC6co9bLvs
    http://youtu.be/fUky4vJj52s
    http://youtu.be/q8glvYwc4T8

    Enjoy...I've been having fun with a new GoPro camera...can you tell?!?
    Last edited by Gordy1; 04-14-2013 at 10:16 AM.
    Gordon, father of son who became t6 paraplegic at the age of 4 in 2007 as a result of surgery to remove a spinal tumour.

  7. #37
    Senior Member IsMaisin's Avatar
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    Hase is a German bicycle and tricycle company. They make hand cycles and trailers for kids, but one particularly interesting bike is a tandem bike with a front hand cycle and a rear pedal position so an AB parent can cycle together with a non-AB kid.
    Played with bombs- No SCI, Brain Damage enough that I require a chair and a caregiver.

  8. #38
    Senior Member elarson's Avatar
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    Great video's Gordy. He really does go fast on that and get around great. I can see why he might make you nervous sometimes. Also looks like you are enjoying your new camera. Thanks for posting.
    Partner of an incredible stroke survivor. Limitations: hemiparesis and neglect (functional paralysis and complete lack of awareness on one side). Equipment: TiLite ZRA 2 and 2GX, Spinergy ZX-1, RioMobility Firefly. Knowledge: relative newbie for high-level equipment (2012), but willing to try to help others who are new with similar limitations (definitely not a guru, but inquisitive).

  9. #39
    Any feedback? It has been recommended that my daughter, who is 9 and has UCMD, start using a power-assist wheelchair like the e-motion that I have linked to here. We have been using a medical stroller to get her around, but the time has come to make the full transition into a wheelchair, and the docs would like to see her in this, rather than a joystick-controlled chair. She still has a lot of upper body strength, and they want her to get some exercise by pushing herself around in a chair rather than just using a joystick. Does anyone have any experience with these or a similar product? Any input is appreciated...thanks!

    http://www.frankmobility.com/e-motion.php

  10. #40
    Many people here are e-Motion users. Just be aware that the wheels will weigh a lot with the e-Motions in place, and if the batteries die, pushing that chair manually will be VERY difficult, esp. for a 9 year old.

    What brand of manual chair does she have, or is she getting?

    Many people here (and many of my clients) like the Smart Drive better than the e-Motion for add-on power assist. You should take a look at that, and ideally have a trial of use, before you decide which way to go.

    http://max-mobility.com/

    It is also important that she be taught correct wheelchair pushing ergonomics, ideally by a therapist. There is a lot of evidence that wheelchair set up and learning the proper ergonomic techniques goes a long way to helping preserve shoulder integrity and prevent should pain long-term with wheelchair use. Here is an excellent resource on this:

    http://www.pva.org/atf/cf/%7BCA2A0FF...Upper_Limb.pdf

    (KLD)

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