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Thread: Worsening nerve pain

  1. #1

    Worsening nerve pain

    Hey guys/gals.
    I'm about 4 months since my accident and my nerve pain seems to be getting worse. I'm a t8 complete and some days the nerve pain across my stomach is just unbearable. I find putting pressure on the painful area seems to help, but that is only sometimes.
    What kind of tricks and tips do you guys have?

    I am on gabapentin 3x300mg per day

    Any help is appreciated,

    Thanks

  2. #2
    Hi Kdog,
    I am sorry that you are having worsening nerve pain. Hopefully you are being seen by a physiatrist who specializes in SCI or a Pain Management Physician. They can help with medication management. Many people will take increasing amounts of gabapentin up to 4 grams a day whereas you are at .9 grams/day. The next step that some people use is to go on a 'tricyclic antidepressant' like Elavil at a low dose, 25 to 50 mg at night and that seems to help.
    Some people switch to Lyrica and find it more effective than Neurontin. I am one of those people. The best thing to have is a good pain management specialist who can help you find a regime that can help you. All the drugs have side effects and it is a balancing act to find a regime that helps and that the side effects don't outweigh the benefits.
    Pain management includes other modalities other than medications. Finding the triggers of neuro pain and trying to avoid them. Limitation of stress, exercise, getting good sleep, biofeedback, psychotherapy/counseling, .

  3. #3
    I actually have an appointment with my physiatrist on Monday. I wasn't sure if my gabapentin dosage was high/low avg. But good to know I'm on the lower side. I will also try and keep an eye out for triggers to the increased nerve pain and try to avoid them. Thanks for your help

  4. #4
    I think you are experiencing Visceral pain. Mine started a few months after my injury, I'm 25 years post and still have it. I haven't found any meds that help. I have noticed a reduction in pain after bowel movements. I think gas build up and slower moving bowels can cause some of the pain. My pain usually gets worse in the evening. I don't pass much gas when sitting in my chair but do once I lay down. The next morning my stomach isn't as bloated. I take Phazyme(gas reducer) and try to avoid gassy foods.

    Here's an article that explains pain caused by a spinal cord injury; http://sci.washington.edu/info/pamphlets/pain_sci.asp
    Last edited by sreneet; 11-12-2010 at 02:07 AM. Reason: forgot something
    Renee

  5. #5
    yes your dosage can be upped . I was on 2700 mg a day . If you dont mind weight gain. I now take Keppra , they use it for nerve pain now,
    SM/ACM Surgery in 1999

    When the world says "give up"; hope whispers "try one more time"
    -anonymous

  6. #6
    Quote Originally Posted by razzle51 View Post
    yes your dosage can be upped . I was on 2700 mg a day . If you dont mind weight gain. I now take Keppra , they use it for nerve pain now,
    I thi k I will have a hard time with weight gain! Im already struggling with the parabelly as is.

    How are you finding the keppra? I'm going to see my physiatrist today. I'll talk with him some more and I will mention the keppra.

  7. #7
    Just an update,
    Doc prescribed me an increase in the gabapentin for pain, only 300 mg

    So far it hasn't helped. Although my wife was in the pharmacy and came across an otc topical oil by the name of neuragen

    It has been wonderful for me so far, within 5-10 minutes it eliminates the pain almost completely. It usually provides relief for 3-4 hours. Although it does have a strong herbal smell to it. Sorta like patchouli

    I don't know what is worse the nerve pain or smelling like a hippy.



    Thanks for all your help, hopefully this will help others also
    Last edited by K-dog; 11-17-2010 at 10:18 PM. Reason: More content

  8. #8
    Quote Originally Posted by K-dog View Post
    ...my wife was in the pharmacy and came across an otc topical oil by the name of neuragen

    It has been wonderful for me so far, within 5-10 minutes it eliminates the pain almost completely. It usually provides relief for 3-4 hours.
    I saw Neuragen advertised in the AARP magazine, with a $5 off coupon...it's expensive ($25 after the coupon), but it's homeopathic and you can mix a few drops with olive oil to make the small bottle last longer. I haven't tried it myself, but my husband has neuropathy in his feet and it seems to help him a lot at night.

  9. #9
    Quote Originally Posted by Bonnette View Post
    I saw Neuragen advertised in the AARP magazine, with a $5 off coupon...it's expensive ($25 after the coupon), but it's homeopathic and you can mix a few drops with olive oil to make the small bottle last longer. I haven't tried it myself, but my husband has neuropathy in his feet and it seems to help him a lot at night.
    Up here in Canada it's sold for the low low price of only 59.99 for 15ml

  10. #10
    Wow...our $25 bottle (normally $30) is only .5ml.
    Last edited by Bonnette; 11-18-2010 at 02:04 AM. Reason: correction

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