Thanks, I bookmarked the the links. I've pretty much been left to my own devices to try to make sense of it and yeah you're right, speculating isn't something that's getting me anywhere. It hasn't helped there's no plan, it's not like my dr has said to me ok we're going to do this, then onto that, or even told me what the process is. I'm still reeling from go for this test, see this specialist, I think it might be this and next week about face and it might be something else, I've got no idea where this is taking me.

I might ask a friend who works in healthcare if she can recomend a doctor and maybe if she can come with me for support, I always come away from appointments feeling deflated.