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Thread: Syrinx

  1. #1
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    Syrinx

    Another syrinx question. I am 18 months post injury T4 complete and I just had my first MRI. Apparently I have "Abnormal morphology to the spinal cord with hemosiderian deposition. More distal to this level there is a long large syrinx extending almost to the tip of the conus medullaris." The syrinx measures maximally 8mm in thickness. Where should I go for follow up? I am furious at my surgeon because the MRI report stated the radiologist spoke with him on 9/7 and I didn't know anything until I got the report in the mail today. On a previous post The Miami Project and Craig Hospital were mentioned. Has anyone been treated there?

  2. #2
    Senior Member Prerun's Avatar
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    Craig Hospital is where I had mine taken care of twice. Dr. Falci is awesome.

  3. #3
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    Dont wait too long to get this dealt with. I was hurt June 21, 2008 (T4 complete) and before I was even out of the rehabilitation hospital I had my first Syrnix, finally got out and home first week of November. I was lucky as my specialist warned me about Syrnix's and to be very aware of your body and to trust yourself when you feel or notice changes. Even knowing that I kept second guessing myself with the new symptoms and pain ect. So I raced into the hospital a week later and got a MRI and was admitted right away and was operated on 3 days later. I am now a T1 on my left side and a T4 on my right, because of that last Syrinx. I got my second one 6 months to the day after my first. Looks like the second shunt they put in seems to be working and keeping it drained, as I have had a few follow up MRI's since.
    So my advice to you please DO NOT WAIT.

    I have seen all my MRI's and for those of you that dont know what a Syrnix is, some people call it a cyst. But what it really is, is water (spinal fluid) in your spine, a fluid filled cavity that can even extend all down your spine. What it ends up doing is adding pressure around the sides of your spine on different nerves and can affect them in different ways.

    Mooner

  4. #4
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    Mooner99 who did your surgury? I went to Foothills.

    My injury was June 30th 09, my syrinx was a couple weeks after that. Its a massive C4 to T10. Its worse on my right side just effecting my feeling like hot and cold. My surgon said to contact him if I noticed losing muscle function. He said shunts clog and we should just leave it till I noticed something. What did your doc say?
    Mark 9:23 - All things are possible for those who believe.

  5. #5
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    There is the possibility of shunts clogging as the diameter is extremely small and even a big protein can plug it. My surgeon is Dr Andrew Nataraj who I like very much. He did my first Syrinx surgery but he was away when my second one happened so I was opp orated on by DR Richard Fox. They cover off for each other and work in a few hospitals in Edmonton. Both my surgeries were performed at the Royal Alex.
    Dr. Fox is pretty amazing doctor I heard he has invented a lot of instruments for back surgery even some that you can use to operate from the front to work on the back. Very smart man think he has a mini metal shop in his garage!
    Problem with shunts and or operating in the hurt area you have a 5% chance in causing more damage then you are repairing, as they are poking the shunt in and hoping they hit the actual cavity where the fluid is built up.

    Mooner
    Last edited by Mooner99; 09-23-2010 at 07:39 PM.

  6. #6
    What all is involved in a shunt surgery? like an average time frame for hospital stay and recovery etc. I may have to see my neuro dr myself.
    I got up one morning and as if someone flipped the switch off, all the lower body sensation I had regained was gone!
    DIGG.

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    Everyone's help is greatly appreciated

  8. #8
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    Well usually the first thing they have to do is give you a MRI to see if you even have a Syrinx. Secondly the Neurosurgeon or your specialist needs to do the proper testing to see if you lost any ground in regards to your level of injury. After they do the surgery it is at least a few weeks in the hospital I guess depending on the quality of your home nurses and such. But as I say to anyone be VERY AWARE of your own body and don`t hesitate to at least go get a MRI done to eliminate a Syrinx as you dont want to ever lose levels.


    Mooner

  9. #9
    The surgery for the syrinx can be done at a few places here in the US. Craig and Miami are very good. So is Jefferson (in Philly) and Shepherd in Atlanta. I would feel comfortable sending anyone to the neurosurgeons in any of these places.

    Recovery time from the actual surgery is probably a weeks or so in the hospital. It is not uncommon to have a short stint in rehab to help bring back your strength, keep an eye on your neurologic issues and help to increase your independence again. That could be 2-4 weeks depending on how much muscle strength you lost.

    A syrinx is nothing to fool around with - so my recommendation is to get to a neurosurgeon as soon as you can. You may continue to lose function until you get it treated, and there is no guarantee that you will get all of your function back, especially if you wait awhile.

    CKF

  10. #10
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    Thank you again everyone for the information. I have an appointment in 2 weeks with a neurosurgeon that I used to work with out of Westchester County Medical Center. I know this is a far out question but, if one of the procedures works for restoring function for chronic sci, does a history of syrinx make you ineligible for treatment?

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