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Thread: Who here has MS?

  1. #11
    Senior Member
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    Skippy don't wait, even if he doesn't have insurance, there are programs for that. He needs to be seen and started on a ms therapy asap. I truly believe if they would have started David in July maybe he wouldn't have had the other attack in October. I know its always guessing but still don't gamble with it.

    I am so glad to have started this thread, I have learned so much from this sight but really appreciate those of you who understand this horrible disease as well.

  2. #12
    Senior Member skippy13's Avatar
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    I really hope my son doesn't have it either. He complains that his eyes are bothering him too. He thought he needed a prescription change last time this happened, but like most of his symptoms, it went away.

    I'm not looking forward to the next few months. It is the time of year when I have most of my symptoms too. I call it summer fatigue. I stay in the house out of the heat in the summer, but each year from Sept to December I have most of my problems.

    My eyes have already started with the muscles not working together so I have occasional double vision. It get to be the worst in December after a gradual buildup. Lots of headaches.
    Anything worth doing, is worth doing to excess

  3. #13
    Heaven knows I'm not a doctor, Skippy, but based on my own history and research it sounds like you might have MS along with additional cord pathology, similar to mine. Your son's symptoms are pretty classic for MS, but I think that if he wants to go on one of the MS meds, he'll need a doctor's definite diagnosis. My very best wishes to both of you!

  4. #14
    Senior Member
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    Barging in here, but WOW am I glad I found this site. My husband has MS and it is just progressing and progressing. He's 40, completely wheelchair bound and unable to assist in transfers.

    Every time I feel like I have a "handle" on how he is, what he needs, etc. things change. That's MS for you.
    25bb03d5-f511-4009-8145-6a3f582673a2
    1.03.01
    Rebecca
    Wife and Caregiver, husband has Secondary Progressive MS, wheelchair bound, unable to work, MS still progressing.
    Mother of 2 active boys!

  5. #15
    Quote Originally Posted by Knight's Wife View Post
    Every time I feel like I have a "handle" on how he is, what he needs, etc. things change. That's MS for you.
    Yes, it sure is. Welcome to the forum, this is a great community and I'm glad you and your husband found your way here.

  6. #16
    Senior Member
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    Welcome Knights wife, my husband is 44, feel free to ask away, we are here to help or at least understand.
    Lisa

  7. #17
    First onset was the Summer of 1981. I have secondary progressive. Not taking any meds, except Vitamin D, 1000 IU's. I took Betaseron for 9 years. Wheelchair now for approx 15 years. I am retired.

  8. #18

    New and curious

    I do-am new- just discovered this site, which is ironically in my own neighborhood central NJ. Have had symptoms since childhood but never suspected MS until I suddenly went lame - had work up, MRI & diagnosed in '86. Worked FT (as RN) until '02, w/ severe MS exacerbation. now secondary progressive, use WC (bad falls). I was looking for information on SP tubes- have had one for a year now, & this site had most on this & other issues. I would like to hear from others in this area about where they go for MS treatment & if they have recommendations. Where is the most appropriate place to do that? Forum or private message? many thanks.

  9. #19
    Hello and welcome to the forum. As you have discovered, there is a wealth of information shared here. I'm sure you'll get some very good tips about treatment options where you live.

  10. #20
    Senior Member
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    Wheelz why did you quit taking the Beteseron? My husband has taken it since day one which is almost 5 years now.

    CBK, you can ask whatever you want here or send me a private message, my husband has had a suprapubic cath now for about 3 years. I will try to help in any way I can.

    We are located in Illinois and don't really have a MS specialist, David sees a nuerologist here locally but I don't recommend him. I mean he's good but alot of things I tell him he has never heard of..such as the Ampyra. We did at first go to Barnes Jewish Hospital in St. Louis, MO and they are good, Dr. Naismith is who he seen there, but with no new problems we haven't been back in over two years, just can't seem to find the time or energy or money to make the 3 hour drive one way.

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