Thread: ChinaSCINet Update

  1. #2451
    Quote Originally Posted by taymas View Post
    Great news Jim... could we get ball-park figure? I've got a few buyers lined up for my kidneys... just kidding haha!

    Just a very loose approximation would be great, so I can start saving up and figuring out ways to make the money. Are we talking $30,000? $50,000? More?

    I'm already blowimg dust off the mic and writing a song so that when I inevitably become a rockstar I will be able to afford it

    Love you guys!
    To get a proper walking program you would have to go to China to do the actual kumming walking program try to pay for something like that here it be upwards of $200,000, honestly even if you had the money I don't see how youd do it. as for how much it would cost to get the program in China I don't know, unfortunately. I have been told that they have been doing a clinical trial there where your caregiving is included. The bio Ness is about 15,000 for both, if they are going to incorporate a vibration plate, one with a tilt table is 20,000. Personally I'd like to use something like the giger MD also as I've read an interesting case study about it where patients recovered and it also has biofeedback the device is just over 25 Thousand two years ago though. Keep in mind if you can't use the stuff yourself you have to have pay caregivers or a physiotherapist and you likely would need to do it every day to have the best possible chance of a positive outcome. Which will end up costing as much or more as all the devices combined (paras Count your fucking blessings lol,not to mention hand function will likely be one of the hardest things to return and will likely return nowhere near normal) ,Daily neuro physiotherapy six days a week three hours a day is over $80,000 a year in canada. I'd say to do it right you're going to be spending over 100 grand at least, and you want to have the money so you can be flexible to incorporate other "high-tech" technologies should they become available and/or you become aware of them. That's just my estimate as I've been trying to put something like this together

  2. #2452
    Why would anyone spend 10k + on a treatment plus 10k+ for months of extreme rehab to gain the ability to "walk" slowly with a roller, probably only with a knee brace, with no sensation of where their feet are? No ability to actually move their legs at will. No sensation of legs.

  3. #2453
    Quote Originally Posted by Nowhere Man View Post
    Why would anyone spend 10k + on a treatment plus 10k+ for months of extreme rehab to gain the ability to "walk" slowly with a roller, probably only with a knee brace, with no sensation of where their feet are? No ability to actually move their legs at will. No sensation of legs.
    I would, I would love to be able to go from the bed to the toilet to the shower. This would open up travel to me again, being able to stay in hotels or with friends and family.
    Lugging about a travel shower chair and having to get disabled rooms ruins the freedom.

  4. #2454
    Quote Originally Posted by niallel View Post
    I would, I would love to be able to go from the bed to the toilet to the shower. This would open up travel to me again, being able to stay in hotels or with friends and family.
    Lugging about a travel shower chair and having to get disabled rooms ruins the freedom.
    Then I hope you get compassionate use of such treatment. Might be rather dangerous (& bulky) using a roller near a wet shower when you can't feel your legs (assumption) or voluntarily move legs.

  5. #2455

    1

    Quote Originally Posted by JamesMcM View Post
    To get a proper walking program you would have to go to China to do the actual kumming walking program try to pay for something like that here it be upwards of $200,000, honestly even if you had the money I don't see how youd do it. as for how much it would cost to get the program in China I don't know, unfortunately. I have been told that they have been doing a clinical trial there where your caregiving is included. The bio Ness is about 15,000 for both, if they are going to incorporate a vibration plate, one with a tilt table is 20,000. Personally I'd like to use something like the giger MD also as I've read an interesting case study about it where patients recovered and it also has biofeedback the device is just over 25 Thousand two years ago though. Keep in mind if you can't use the stuff yourself you have to have pay caregivers or a physiotherapist and you likely would need to do it every day to have the best possible chance of a positive outcome. Which will end up costing as much or more as all the devices combined (paras Count your fucking blessings lol,not to mention hand function will likely be one of the hardest things to return and will likely return nowhere near normal) ,Daily neuro physiotherapy six days a week three hours a day is over $80,000 a year in canada. I'd say to do it right you're going to be spending over 100 grand at least, and you want to have the money so you can be flexible to incorporate other "high-tech" technologies should they become available and/or you become aware of them. That's just my estimate as I've been trying to put something like this together
    Ouch! Thanks for the insight James, but I'm way too poor to afford afford those figures I have no insurance but we have the NHS in the UK, and it will be a long time before we see this here, possibly never given budget cuts etc.

    I have an FES bike, standing frame, and I've seen walking frames some of us guys and gals have built! Do you reckon if I payed for just the stems cells, surgery and recovery that I could do the physio side of things at home? Or is that waaaay too optimistic lol. I do have friends and family that would be willing to help me do the 666 (6hours, 6 days a week, 6 months) thing.

    Would be great to hear from Jim as well in regards to cost, but I imagine it's too soon to run the numbers.

    Regards

  6. #2456
    Quote Originally Posted by taymas View Post
    Ouch! Thanks for the insight James, but I'm way too poor to afford afford those figures I have no insurance but we have the NHS in the UK, and it will be a long time before we see this here, possibly never given budget cuts etc.
    Regards
    I'd think there is almost zero chances of the NHS paying given the amount of physio needed. I'm vented and after discussing phrenic nerve stimulation with my chest consultant to get me off the vent ,we had all the figures for likely cost of the operation which would be factored against my CHC package and how much cheaper it would be with me off the vent. Needless to say it didn't reduce costs enough over my projected life expectancy so didn't go any further.

  7. #2457
    Quote Originally Posted by taymas View Post
    Ouch! Thanks for the insight James, but I'm way too poor to afford afford those figures I have no insurance but we have the NHS in the UK, and it will be a long time before we see this here, possibly never given budget cuts etc.

    I have an FES bike, standing frame, and I've seen walking frames some of us guys and gals have built! Do you reckon if I payed for just the stems cells, surgery and recovery that I could do the physio side of things at home? Or is that waaaay too optimistic lol. I do have friends and family that would be willing to help me do the 666 (6hours, 6 days a week, 6 months) thing.

    Would be great to hear from Jim as well in regards to cost, but I imagine it's too soon to run the numbers.

    Regards
    Are you genuinely planning on purchasing this therapy?

  8. #2458
    I agree to a certain extent.
    Just holding yourself up during the walking program would be activating numerous upper body muscles from the arms and upper back. The stimulation that you may be incorporating: Is similar to electric stimulation of Dr. Reggie Edgarton or more in the realm of FES?

  9. #2459
    As a followup, the money that was raised w/ the 'just a dollar a day' campaign. Was this earmarked or set aside for the upcoming US trials?
    After working and helping you on the past webs I know that there was a significant amount of money raised. Will there be a new campaign or will this be reinvigorated?

    I would like to share this news with all the people who I personally reached out for donations years ago and to let them know the results. Many have been asking for years and it's great to finally have some news.

    Thanks again Jim!

  10. #2460
    Quote Originally Posted by Fly_Pelican_Fly View Post
    Are you genuinely planning on purchasing this therapy?
    No - not until I see the results of IIb. And I'm not massively optimistic, just excited to see the ball rolling...

Similar Threads

  1. ChinaSCINET Update
    By Schmeky in forum Cure
    Replies: 11
    Last Post: 06-16-2008, 06:25 PM
  2. ChinaSCINET on Schedule?
    By Schmeky in forum Cure
    Replies: 11
    Last Post: 01-27-2008, 05:53 AM
  3. Dr. Young and ChinaSciNet
    By Imight in forum Cure
    Replies: 17
    Last Post: 01-14-2008, 12:51 AM
  4. ChinaSCINET Schedule
    By Schmeky in forum Cure
    Replies: 4
    Last Post: 07-11-2007, 04:30 AM
  5. ChinaSCINET, On Schedule?
    By Schmeky in forum Cure
    Replies: 56
    Last Post: 01-30-2007, 03:46 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •