Thread: ChinaSCINet Update

  1. #1791
    The Kunmimg walking programme may cause some bad problems like that: "Because the injury was not initially diagnosed or treated correctly, my leg has healed in a permanently deformed position, a condition known in the orthopedic world as Genu Recurvatum … http://en.wikipedia.org/wiki/Genu_recurvatum.
    It is not yet clear how or even if this leg could be surgically repaired, because the ligaments have been so hyper-extended that they may not be able to return to their original size and shape. Here’s what my broken leg looks like today:"
    http://chinaquaddiaries.org/

    If they can't even fix a fracture properly I wouldn't go there.. and maybe the walking program they use is not the best approach for people with chronic SCI.

    Paolo

  2. #1792
    Paolo ,
    this is some very interesting stuff! Thanks for sharing!

    KK11

  3. #1793
    Super Moderator Sue Pendleton's Avatar
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    I could not find where she was or even agreement over when she broke her leg. The one orthopedic surgeon says it is new but with no tendon/ligament problems and she thinks the fixed malformation is from Genu Recurvatum. Maybe she knows she has Ehlors-Danlos Syndrome but finds it not worth commenting on or she really is not fully aware of when the break took place. Looking at both the pictures and the xrays I'd say she broke her leg but the ligament issues are separate. No I am not a doctor.
    The walking I saw would not cause hyper extension but a fast collapse with the knees bending normally on the way down. Yes,such falls could break bones but not in a reverse extension movement. I've been up there in such rolling walkers and none of these subjects appeared to be flaccid where hyperextension is more common.
    Nice blog. Thanks for the link.

  4. #1794
    Paolo, you are jumping to conclusions when you don't know the facts. Just because someone posted something in a blog doesn't mean it is factually accurate.

  5. #1795
    Super Moderator Sue Pendleton's Avatar
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    Paolo, the bloog is confusing. The broken leg is Ali's not the woman from England. Look at the top and read About Me. She was in Miami when she broke her leg. It seems she may have also continued past her elbows ability to keep her upright and that was why she broke her leg. She's reporting this in August with the break assumed to have happened in June. You don't need to be a doctor to know that a deformed knee like that did not happen from a "non-displaced fracture" of either bone. I think there are a few facts being left out. But it does tell us she was still working out in Miami when the "wonky knee" developed.

  6. #1796
    Quote Originally Posted by Jim
    Paolo, you are jumping to conclusions when you don't know the facts. Just because someone posted something in a blog doesn't mean it is factually accurate.
    Jim, I am sorry if it seems I jumped to conclusions, The picture of the leg was striking for me and what I posted was just how I personally felt and I did not intend to jump to any conclusion.

    You may remember Wise has posted before about Ali, he knows her and her father, so perhaps he could find out what has happened more precisely.

    If you have time to read the whole blog you will see that Ali seems to have been very accurate in reporting all she did including the surgery. That doesn't mean that all she has posted is correct. People can read the blog and come to their own conclusions.

    Paolo

  7. #1797
    Paolo, a fracture is not a cause of genu recurvatum. That condition results from people not using their legs for long times and the ligaments have become stretched and loose. Many doctors, including the doctors in Kunming, are concerned with walking with hyperextended knees. The solution, as Ali describes, is a brace for the knee to prevent the hyperextension without limiting other movements of the knee. I hope that the brace solves the problem for Ali.

    I had spoken to Ali and her doctors. It is not clear when her leg fracture occurred. It was of course discovered in Kunming when they took an x-ray of her leg. The family showed the x-ray to a doctor in Miami, who opined that the fracture is less than 3 months old and that he would have fixed (presumably by putting pins in and stabilizing the fracture). The doctors in Tongren Hospital believe that it is an old fracture but I understand that they had recommended to Ali that she should not walk on it.

    Wise.

  8. #1798
    If it is TRUE that 75 % of chronic ASIA A patients are walkin as a FACT then why in the HELL is there not a facebook page of all of this ? As big as facebook is that is all it would take to receive all the $ in the world for the trials. Christ something STUPID can get 100,000 likes in a matter of a couple hours. Imagine the familys that have to put up with the bullshit of living with SCI. How many is there in a year all over the world ? It just dont make any since to me ? If this is all true than why in the f*** isnt it on the news, spacebook, a website , somewhere ? I know for a fact I raised 18,000$ in my community for my benefit , just to help out a little with the bills etc , etc , . Show my community that I COULD WALK AGAIN & I bet I would raise 100,000$
    I am not a hatter of dr wise or any of the scientist working towards a cure I really actually appreciate the hell out of them !!! & I mean that , I just dont understand. I am not one to sit here & pity my life neither so dont think that is why I get so PISSED its just that it all seems to good to be true without any public announcement .

  9. #1799
    Dr Young,
    what about walking recovery and age?
    Thanks. Best wishes.

  10. #1800
    There is no significant difference in walking recovery relating to age. Both young and old subjects seem to improve with the treatment and training. Wise.

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