Results 1 to 6 of 6

Thread: burning - prickly type pain

  1. #1

    burning - prickly type pain

    Hi All,

    Haven't posted on boards in a long time. Hope this finds everyone in the least amount of pain possible. Sorry if this is long - but i really need to someone to who understands what i'm feeling.

    I had a acdf surgery in jun 09 due to spinal cord being compressed to 0.4 cm ~ cervical stenosis ~ cervical spondylotic myelopathy. Which surgery was to relieve the compression to stop the progression of the myelopathy ( I believe ?).

    However the last 4 wks the burning/tingling in my lower legs and lower arms has been insane then 2 wks ago the tingling changing to intense prickly and I also have this binding type feeling in the right lower arm and leg. It seems that these are getting worse instead of the same or better.

    I wear cut off yoga pants and tank tops cause i can't take the material on the skin, It starts getting worse if my legs get too warm and is alot worse if the air conditioner is too low. I don't get much sleep because it gets to where i just want to crawl out of my skin i'm usually up late trying to calm it down ~ with cold water which doesn't always work - last night I finally tried the compression stockings i had from the hospital which I was worried would aggravate it more because of the material but it calmed it down somewhat to where I could get a few hours of sleep.

    I've tried lyrica, cymbalta, gabapentin and a few other anti-depressants which all had horrible side effects. Is there something helps with this type of pain - i have a pain management appt on Sept 20th and I tried calling for an earlier appt - but no luck. It used to just happen more at night and was based on my activity level of the day but now it seems to be constant and is making me lose my mind....

    Also when i go into the sun it feels like it is really really burning the skin. I'm on morphine and hydrocodone for breakthrough pain. which neither really helps with any pain i have.

    Any suggestions would be appreciated.

    Thanks,
    Liz
    PrpleHarly08

    Was afraid I was losing my mind - So I asked the people behind my couch and they assured me I was still sane

  2. #2
    Sorry you are going through this.

    Have you been going to your spine surgeon / neurosurgeon for follow up? What do they have to say about your current symptoms? Have they done post operative xrays (or CT) to make sure you have healed well? I would want to first know anatomically if there is some new impingement or some thing mechanical going on. The surgeons would be best able to tell you that.

    A lot of people here on this site have the kind of symptoms that you are having but there is no medical cure for it, just 'management'. Maybe that will be your situation too, but being just a year out from surgery, I would want to know if there is something anatomical that is causing the symptoms.

    I see you have tried a number of meds. Have they been prescribed by a pain management doc or will this be your first appointment to him on Sept 20th? If so, who has been prescribing them? I wonder if you used a combination of those meds at lower doses, would you have less side effects.

    I don't know of any med prescribed for nerve pain that doesn't have side effects. There is no free lunch unfortunately. I look forward to learning more about your situation.

    I have been dealing with neuropathic pain for 8.5 years since my spinal cord injury (L1 burst fracture, incomplete para) and it has been a huge daily problem for me despite taking meds, Lyrica 75 three times a day, elavil 25 mg at night, celebrex and oxycodone. I am still looking for answers.

  3. #3
    Have you been going to your spine surgeon / neurosurgeon for follow up? I was seeing my neurosurgeon up until 7 months post surgery ~ I had 3 follow-up x-rays and a MRI which didn't show any impingement or anything.

    What do they have to say about your current symptoms? He did send me to a neurologist when symptoms were continuing to check for MS - Neurologist didn't suspect MS and felt that the Spinal cord is damaged from the compression (11 mnths that we are aware of = 5 months before they found it - 6 months before surgery cause I didn't have enough med leave to have surgery without losing my job which I went out on leave cause things were getting bad and ended up losing job anyway.)

    Have they done post operative xrays (or CT) to make sure you have healed well? also went to a 2nd Neurosurgeon who also said spinal cord damaged and nothing more could be done surgery wise. Who also did x-rays


    Have they been prescribed by a pain management doc or will this be your first appointment to him on Sept 20th? I've been seeing him since Feb 2010.

    who has been prescribing them? most of the meds I've tried were prior to surgery since I had the tingling prior to surgery ~ the burning pain is post surgery and has gotten worse about a month ago and the tingling has now changed to the prickly sensation. Tried to get in sooner then the 20th to the pain Dr but nothing available even tried to call the neurologist but the earliest with him was Sept 22nd.

    I don't know of any med prescribed for nerve pain that doesn't have side effects. There is no free lunch unfortunately. Yeah I understand there's no free lunch - I just don't tolerate meds very well and everything is a hit or miss with me. however somehow I am lucky that I didn't get any side effects form the hydro or morphine to help with the other pain just doesn't do anything for the neuro pain. I read somewhere that Topamax helps with Neuro pain I know it's for headaches and horrible headaches is one of the side effects from the other meds and I couldn't handle them - nothing I took to help would take them away and I use to get them real bad in my 30's and really don't want to cause them ~ I can't deal with headaches on top of everything else. So I was thinking if Topamax is for headaches but also helps with neuro pain that might be what I need. But how do you ask the pain Dr about it without them thinking your out looking for drugs.

    I have been dealing with neuropathic pain for 8.5 years since my spinal cord injury (L1 burst fracture, incomplete para) and it has been a huge daily problem for me despite taking meds, Lyrica 75 three times a day, elavil 25 mg at night, celebrex and oxycodone. I am still looking for answers. I'm sorry to hear about your pain and so wish (as I'm sure many here do too) that there was something that could help one deal with such pain cause it really can do a number on a persons emotions and sanity.

    Thanks for your reply once again and am so sorry that my post has become so long. Hope you have a great holiday weekend.
    PrpleHarly08

    Was afraid I was losing my mind - So I asked the people behind my couch and they assured me I was still sane

  4. #4
    PrpleHarly08 - you can ask your pain doc about Topomax. I think a few people have tried it for neuropain. I hope you make it for the 15 days till your visit with the pain specialist and hope he can find a regime that gives you some relief....

  5. #5
    Senior Member
    Join Date
    May 2006
    Location
    Somewhere in the Rocky Mountains
    Posts
    8,152
    I just started Topamax a couple of weeks ago too. Like Arndog I have a lower level injury T12-L3 and I am incomplete. I have a high tolerance and have avoided drugs for many years. However, it caught up with me and I had to do something.

    I hope you find some relief.
    T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

    My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

  6. #6

    Leib

    Did you evertry a combination of Neurontin and amitriptyline. I use the lowest dose of amitriptyline, together with Neurontin. Talk to your neurologist.

Similar Threads

  1. do you have a 'burning' pain...?
    By sankofa02 in forum Pain
    Replies: 18
    Last Post: 02-04-2009, 11:33 PM
  2. burning pain
    By chiquita1972 in forum Pain
    Replies: 17
    Last Post: 12-21-2008, 08:12 PM
  3. Intense Burning Pain
    By Shawn in forum Pain
    Replies: 8
    Last Post: 06-21-2006, 08:33 AM
  4. Burning Pain
    By mike in forum Pain
    Replies: 16
    Last Post: 08-04-2005, 04:40 PM
  5. Wise- BURNING PAIN
    By Webber in forum Pain
    Replies: 2
    Last Post: 03-22-2002, 10:19 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •