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Thread: When to switch to electric full time?

  1. #11
    Senior Member Katilea's Avatar
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    Thanks, I'm just thinking how useful it would be around the home cos of the lifting feature. With Ataxia my main falls are from trying to balance myself.

    Either to reach into cupboards with one arm (so only holding onto walker with one) trying to get down onto floor, or up from floor when doing exercises on mat or sitting on balance board. Its agony when I have pulled muscles in side trying to get back up off floor then cant exercise for a week.

    You can get standing frame for it too so could do like half an hour standing whilst doing wii tennis or something, so I'd still be able to do those things for longer I hope.

    It would need to fit through swing gate into park I take my dog nearly everyday as its nearest place to let her of when I'm not feeling too good, so that would be the first hurdle.

    I'm hoping to get a demo in September as they are made in Cambridge (other side of London from me) and I'm up in Yorkshire so almost other end of country, I was worried if that would mean repairs would take long and be costly so would probably keep old scooter as back up for dog walking just in case.

    The guy builds them himself he made first one for his daughter who was born with SMA. I'm hoping he has someone to carry on with repairs once he retires don't want to be stuck with chair i cant get parts for if they are only ones in country that makes and repairs them so that would be my only worry as well keeping my weight under 12 stone!

  2. #12
    It would need to fit through swing gate into park I take my dog nearly everyday as its nearest place to let her of when I'm not feeling too good, so that would be the first hurdle.

    Re: above quote
    Suggest you check that out with tape measure. If power chair won't fit contact park authorities and give them measurement you need, to see if they can adjust gate.

  3. #13
    Senior Member Katilea's Avatar
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    I forgot to update this post!

    The person insisted on coming in august so I test drove it the other week.

    I did blog on it if you want to see pics and stuff
    http://katilea.wordpress.com/2010/08/22/dragon-demo/

    However, it wasn't the right chair for me, it was good around house and could do the 90 degree turn from bedroom into lounge which my RWD can't do but outside I didn't feel safe in it. I don't think it would handle snow.

    I'm going to try an X5 Frontier next, but I'm going to wait until winter and see if I can get a test drive in snow so I can see for myself if it handles better where I wouldn't be able to get out in mine, as from you tube clips I've seen it will easily handle the terrain in good weather.

    I can get seat riser on this and tilt and indoor tyres if I needed it full time indoors later though at first it mainly be used for outdoors/larger indoor areas such as shopping centres/supermarkets.

    I'm thinking I'd keep it in kitchen (have big kitchen) so if i need the seat riser function to reach into cupboards I can use it for that and continue with manual chair/rollator throughout rest of house.

    In meantime, saving my pennies...and keeping fingers crossed it won't be too long for house, will fit through swing gate (see above blog for pics) and will get me out in snow so I can at least get to nearest shop for groceries and nearest field with dog!!

  4. #14
    That's a great blog entry and series of pictures - I was wondering what you'd decided about this chair. It's a great concept but I, too, would be concerned about its stability (especially in snow, as you say). Sounds like you have an excellent plan, going forward.

  5. #15
    Senior Member Timaru's Avatar
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    Hi Kati, this is the recommended kissing gate for manual wheelchair access - for power chairs the gap between the end of the gate to the back of the box should be increased from 1200mm to 1400mm, this should allow a powerchair through but not a motorcycle.



    Last edited by Timaru; 09-01-2010 at 05:22 PM.

  6. #16
    Hi Katilea I thought I had problems but you do seem to be going through the mill. I use to be a engineer working and selling disability products then I lost the movement in my legs and now I use these products myself. I receintly bought on ebay a Sunrise medical Quickie Groove M powerchair for use in my home this turned out to be a fantastic machine all I paid for it was £675 and it will lift and recline and has lasrge batterys (73ah) it was only 2 years old I took a gamble but it paid off if you know what you are looking at, such deals are posible. I would not be able to afford the prices that some of these firms charge it strickes me that when you are disabled it does seem that you become a victum to firms that love to rip us off. I try to keep myself as fit as I can and still take on heavy work on the wheelchairs that I build it is great fun if and when I can do it. My wife is fed up with all the bits and peices arround our small bunglow but still bless her she lets carry on. I gave the thought of use it or loose it a lot of thinking and decided not to leave it too long and now I am very glad I got use to using these chairs before I lost my legs completely. all the best Look after your self P

  7. #17
    Senior Member Katilea's Avatar
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    Hi

    I saw a quickie groove MWD on ebay recently. I'm not sure about regular MWD cos of size of front and rear castors and needing it to get around the park too.

    After an hectic 2 weeks with two injuries and then my dog been sick in the next village and trying to get her home to get to vets, I decided I need to keep the scooter even if its only for her walks (she be 10 next year). She can then ride on the footplate when the hills get too much for her which she cant do on a powerchair (if I got the X5)

    I have since demoed a Genie standing chair (for indoor use) and absolutely loved it!! It was first time in over 5 years I have been able to stand to do a job (made a cuppa for me and rep!).

    I wasn't sure if was too early for me to get this type of chair but after reading how some peoples standing chairs had helped person increase bone density they had lost it and leg muscle.. I thought surely if start early can prevent it happening in the first place and keep strength in legs for standing transfers at least?

    Due to the funding process taking absolutely ages over here, it would be next year before I got one if they did approve one and if not gives me time to save as remarkably its only £5,900 over here. (they do it in US too for alot cheaper than Permobil, Levo, Balders etc).

    I did a blog if anyone is interested with pics and few short video clips of going sit-to-stand and making tea! (the guy had flip camcorder sideways... dunno why.. lol!)

    http://katilea.wordpress.com/2010/10/07/genie-review/

    If you're interested in one here are their sites for more info

    US site: http://www.standingpowerchair.tv/index.html (has best videos!)

    UK site: http://www.easycareproducts.co.uk/
    Last edited by Katilea; 10-14-2010 at 08:47 AM. Reason: forgot reply to previous post!

  8. #18
    Wow, that chair looks great. I love your blog...so informative, and your videos are wonderful. I hope that you can get that chair, it sounds just about ideal, and as you say, its cost is surprisingly reasonable (compared to competitors).

  9. #19
    Senior Member Katilea's Avatar
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    Thank you. I was a bit sceptical thinking at that price it can't be that good but after reading about lady with MS who got her PCT to fund one for her and the benefits she has had from it, I decided I should at least take a look at one as all the other standing chairs are over £10,000 and way out of my budget.

    I was gonna spend about £6,000 anyway on one with seat riser and recline for around house but I think I will get more long-term health benefits from this one.

    Just waiting for patient advocacy service to email me back with details on who to contact and how to go about (maybe forms too to fill in and medical assessment probably, letters from Neuro etc) I'm sure it will be a long slow process even if I do eventually get a yes!! If they gave me NHS vouchers for at least half the cost it would help.

    Do these things take so long in US?

    Kati

  10. #20
    Quote Originally Posted by Katilea View Post
    Do these things take so long in US?
    Yes!! We have such a ridiculously hierarchical, tiered health care system that wait times vary, but for my pay grade and insurance coverage it can take many months for the paperwork to go through committees and inevitable post-denial appeals. It's a smoother process if a person has Medicare, I believe (at 60, I'm a few years too young to qualify ). But it's still a major headache.

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