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Thread: Myelomelacia

  1. #1

    Myelomelacia

    Can anyone give me a "real life" definition of Myelomelacia?
    As always,
    Thanks,
    Cathy

  2. #2
    Quote Originally Posted by cathy j View Post
    Can anyone give me a "real life" definition of Myelomelacia?
    As always,
    Thanks,
    Cathy
    In Latin, it means bad white matter. It is often diagnosed after spinal cord injury. In such cases and if it is not progressive, it is probably not harmful. However, if is progressive, suggesting that something is damaging the spinal cord, then it may be something to worry about. Causes of progressive myelomalacia are not well understood. Wise.

  3. #3
    Wise,

    I also have myelomalacia at about C5 post-discectomy and fusion of c5/6 and 6/7. Currently test positive (negative?) for clonus, hyperreflexia, balance issues. Also have stenosis in the area.

    My question is: How, over the next 3-6 months, do we track and/or determine if the myelomalacia is progressive? Repeated MRI's? Neurlogical testing? I just want to ensure that if this is progressive, that my husband and I are deciding on the right course of action to help slow the progression.

    Thanks!

  4. #4
    Hi,
    Repeat MRI would compare a current to any old MRI's to show progression of the extent of the myelomalacia and they are usually done no sooner than 6 months or so apart.

    If you are having any change in your neurologic status, such as weakness, loss of function,etc then you would want to let your docctor know, who would be doing comparative neurologic testing.

    AAD

  5. #5
    Quote Originally Posted by Wise Young View Post
    In Latin, it means bad white matter. It is often diagnosed after spinal cord injury. In such cases and if it is not progressive, it is probably not harmful. However, if is progressive, suggesting that something is damaging the spinal cord, then it may be something to worry about. Causes of progressive myelomalacia are not well understood. Wise.
    How do you know if it is progressive?

  6. #6
    Senior Member alan's Avatar
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    You are losing function, and/or losing sensation in areas above your level of injury.
    Alan

    Proofread carefully to see if you any words out.

  7. #7
    [QUOTE=alan;1560913]You are losing function, and/or losing sensation in areas above your level of injury.[/QUOTE

    I had a couple of finger tips go numb but Im only 1 1/2 years into my injury. My function has not changed. My neuro said its part of your injury and didnt make a big deal out of it. If it is progressing what is there to do. I cant really find to many people with the progressive type does it kill ya in a year? Thanks alan

  8. #8
    It happens to all nervous system areas that don't have the nerve supply- even in your brain. It is nothing to worry about- or do anything about, that is why your doctor wasn't worried. It should go along with your injury.
    No you won't die in a year or every from the myelomalacia from sci.
    CWO

  9. #9
    Quote Originally Posted by SCI-Nurse View Post
    It happens to all nervous system areas that don't have the nerve supply- even in your brain. It is nothing to worry about- or do anything about, that is why your doctor wasn't worried. It should go along with your injury.
    No you won't die in a year or every from the myelomalacia from sci.
    CWO
    Well Thank you SCI Nurse for the time to answer my question. You guys are wonderful !

  10. #10
    Quote Originally Posted by SCI-Nurse View Post
    It happens to all nervous system areas that don't have the nerve supply- even in your brain. It is nothing to worry about- or do anything about, that is why your doctor wasn't worried. It should go along with your injury.
    No you won't die in a year or every from the myelomalacia from sci.
    CWO
    One other question that I dont quite understand. Is loss of sensation above and below injury level something to be concerned about. I have a slight burning on the right side of my face and I have lost some sensation in 2 of my fingers on both hands. Thanks in advance oh I have an injury at c3 area
    Last edited by BillyG; 07-31-2012 at 10:49 AM. Reason: forgot something

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