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Thread: Lyrica - decided to try it

  1. #21
    Quote Originally Posted by smokymtn memories View Post
    Hope it helps you Cap'n. I'm on the gabapentin 800mg 4x's a day. Tried the Lyrica and for me it was'nt possible, I had swelling issues and blurry vision.

    I just started going to the pain clinic in Knoxville. They took me off fentynal patches and put me on mst morphine. Taking my hydrocodone only two times a day for break thru pain. I'm low at 15mg and it's not working much better than what I was taking, but they said they would go slow so I should be better next time around. I hope so, I go Friday for my next visit.
    I'm on the Fentynal Patch 50 mpg it works but not for the burning pain. I tried Lyrica 100 mg a day but they leave me dizzy and sleepy so I stopped. I've seen 6 pain specialists take Oxycodone, Tylenol, Ibuprofen, and the patch. nothing gets rid of all the pain. This is something that we will have to love with for the rest of our lives. I've had this pain for 22 years and am burned out how many years more can I do this.

    Gary Is
    Gary Is = L-1 Para for 34 years.....................
    ~~~~~~~~~~

  2. #22
    Senior Member CapnGimp's Avatar
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    Quote Originally Posted by november View Post
    I guess I won't state anything more because it's a different med. I'm just hoping you're as lucky. I held out for almost two years before trying something.
    If I am correct, lyrica was formulated as an improvement upon neurontin. I tried it in 2003 and it did nothing but give me a breast cancer scare.

    Ok a follow up on my lyrica trial. 50mg twice x day gave me a noticeable amount of relief. Mind you, I went back to my main med after a day or two, lol.
    So my newfound physiatrist, after he solved all my problems/queries AND got me a new chair and cushion on order....hooks me up with his new PA to see, I get oxy for my shoulder. HE is seeing me now and overseeing the lyrica also.

    OK, he says ramp up the dosage to 100mg 2x day. (ok, my antennae were pricklig then I had told him about swelling in my legs and he blew it off. POW ! This guy doesn't know SCI....

    So I have been juggling the dosage myself...100mg when I go to bed and still trouble with swelling, manageable tho. I just started riding my handcycle tho and HOPE it helps with the swelling issues. I WISH I could maintain the 100 mg 2x day as it had DONE AWAY with my most BOTHERSOME pain and I didn't realize it until I cut my dose.

    Anyone have that burning/pressure/gnawing pain in your midsection? It's hard to describe, sometimes the burn is worse than the pressure and vice-versa. It's ALWAYS there and even pot-which kills the being dipped in hot oil feeling, doesn't touch this. LYRICA killed it! THIS is what keeps me on Lyrica. I WAS going to stop. I just realized this midsection pain was the biggest one of all. With IT gone, life is pleasant again. Thank you LORD !

    SO far in 2010 I have found Vetericyn and hane no more uti/colonization and Lyrica so I have no more midsection pain/burn/pressure, also it alleviates most of the dipped in burning oil below injury pain. Not all of it, most of it. That is where potuwanna comes in, kills the burn. Not to mention all the pleasant side effects.... WHAT? ....You can say YOUR med has pleasant side effects? .... makes ya WHAT?.... hmmmm.... go nat-U-ral....can't beat natures pain killer, burning reliever....

    I did notice I would forget what tool I went for and had to double back to where I was working and see what I needed, lol. So there are forgetfulness-moments on 200mmg/day lyrica and swelling issues. But the pain relief I receive, I have determined to be worth the hassle. Just ignore my fussn cuss sessions when I'm forced to lay down or pop from the swelling. We will see if handcycling helps, it does the regular swelling issues.

    Lyrica 1
    Hot Oil torture treatments to poor John O <--that's a BIG PHATT zero
    no portly whiners or flamers...

  3. #23
    Hey Capt', Glad to hear Lyrica helping.
    Dave takes 150 3X. Sometimes I think it makes him forgetful or sleepy, but hard to tell if that is the reason.
    Be well!

  4. #24
    Senior Member CapnGimp's Avatar
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    Yeah, I forgot that part, lol...It is HARD to get out of bed in the morning unless I have something planned to do. If I have an OPEN day, I have a lotta those
    I just lay there and enjoy it(whilst the swelling goes ever so slowly down.

    I told my sis that I had never went so long w/o doing anything in my life. I knew this to be a side effect to be on the lookout for or I'd never notice. It will keep you inactive in lolly land unless you make a concerted effort to not let it happen. Hence the absence here and at my computer(15 yrs I use it in bed...

    I hadda stay away, lol. But with concious effort that can be beat. At >100mg/day it is a non-problem. Ok, outta here and off with the puter, day is wasting away.

  5. #25
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    Congrats CapnGimp!

    I just started on Lyrica last month, after being on gabapentin for about a year. Gaba definitely did help, but not as much as I had hoped it would. Insurance wouldn't cover lyrica until I had given Gaba a try, though, and the copay was way cheaper, so I gave it a healthy shot. I just was so sick of thrashing around all night trying to convince my feet that they were not being dipped in boiling water.

    Anyways, my experiences on Lyrica have been very similar to yours. That first night - WOW. Best nights sleep I'd had in ages! I'm on Lyrica 75mg 3x daily, and it's REALLY helping. I did notice an up-tick in the spasms I get in my hamstring, but my feet just DON'T HURT anymore. Once in a while I'll get a little zing, but it's a vast improvement.
    I have the munchies something fierce, though - I'll have to be careful about my weight for the first time in my life, I think.

    I know exactly what you mean about not wanting to get out of bed. I can actually lay still and relax when I wake up in the morning and be completely comfortable. So wonderful to be able to just be still and enjoy being warm, without the non-stop tossing, turning and squirming that I was so used to every morning.

    My big worry now is losing my insurance coverage - man, this stuff is expensive!! I'm capped at $50 a month with the plan I'm on, but if that changed...I'd hate to have to give this stuff up because of $$$

  6. #26
    TAZIAR

    Okay, I upped my dose today to what you are doing - Lyrica 75mg 3x daily. I had been taking two 75mg's a day.

    I tried several times to get off of it but the burning pains returns.

    I'm also on the Fentynal patch 50 mpg. 24/7. I use four Ibuprofuns, one Endocet and one Diazapam daily. Sometimes 2 Endocets.

    The patch, well, I HAVE to use it and it is expensive. My insurance co-pay is good I think, although I had to pay $1,900 in meds last year!!!!!! They paid $2,700 before I had to pay.
    Gary Is = L-1 Para for 34 years.....................
    ~~~~~~~~~~

  7. #27
    Lyrica helps with my NP. It keeps the big sudden "ZAPS" mostly gone. I still have the low level constant burn at some level pretty much 24/7 but if I try to come off the Lyrica the nasty stuff comes back. I take 75mg/3 a day.

    I definitely have memory issues, weight gain, sleepiness, and reduce motivation to get going. Plus difficulty concentrating and organizing things. I don't like the side effects of this drug but I don't want to hurt so I take it!!!!!!
    L1 Complete - Injury 3/12/06 - Grateful to be alive!!!!

  8. #28
    me too Grange, Gary and Taz - Lyrica 75mg three times a day. Plus 25 of elavil at night and Celebrex 200 twice a day.
    I still have burning every day but I do get through the day. Most nights the burning is bad when I lay down and the fires come to the forefront of my awareness. I will take an ambien and await to be transported to sleep. 90 percent of the mornings I awake and the burning isn't there , but as I fight gravity and corporeal weakness it returns to share the evening with me. Groundhog day...

  9. #29
    Quote Originally Posted by CapnGimp View Post

    Anyone have that burning/pressure/gnawing pain in your midsection? It's hard to describe, sometimes the burn is worse than the pressure and vice-versa. It's ALWAYS there and even pot-which kills the being dipped in hot oil feeling, doesn't touch this. LYRICA killed it! THIS is what keeps me on Lyrica. I WAS going to stop. I just realized this midsection pain was the biggest one of all. With IT gone, life is pleasant again. Thank you LORD !

    SO far in 2010 I have found Vetericyn and hane no more uti/colonization and Lyrica so I have no more midsection pain/burn/pressure, also it alleviates most of the dipped in burning oil below injury pain. Not all of it, most of it. That is where potuwanna comes in, kills the burn. Not to mention all the pleasant side effects.... WHAT? ....You can say YOUR med has pleasant side effects? .... makes ya WHAT?.... hmmmm.... go nat-U-ral....can't beat natures pain killer, burning reliever....

    Lyrica 1
    Hot Oil torture treatments to poor John O <--that's a BIG PHATT zero
    no portly whiners or flamers...
    Yes I have that midsection pain 24/7! And when it really flares it feels like not only have I been beaten by a baseball bat, but my insides are being squeezed and pulled. Does anyone with the midsection pain feel it externally. My abdomen is tender to touch even. Nothing really touches it although I think the neurontin did for awhile. You can give me pain pills and I puke and fall asleep but the pain is still there. My back and butt are sore and feel sunburnt.

    I enjoyed a mnth of less pain on neurontin but that is gone so have increased to 300 mg 2/day. No relief yet. I'll ramp up a bit more and if nothing changes towards the end of the mnth may switch to lyrica. I can take the burning and even a sore butt though it makes me paranoid about pressure issues and I wince sitting in certain chairs...but I cannot take the 24/7 abdominal pain. Luckily I can sleep at night. It's when I wake up that the real nightmare begins.

    Wondering if digestive issues make the neuropathic pain in ab worse? Like you feel everything times 100. Trying some fiber powder. FU NP! Waiting for this flare up to flare down. It has to.

    ETA: A positive note...I really don't have any pain above my injury or below my hips/thighs. It's that whole middle area that just needs relief.
    Last edited by november; 08-05-2010 at 01:40 PM.
    Aerodynamically, the bumble bee shouldn't be able to fly, but the bumble bee doesn't know that, so it goes on flying anyways--Mary Kay Ash

  10. #30
    I didn't notice any change in my pain while I was on it at 175mgs 3xa day. But since I've tried everything I'm going to try it again
    Mary

    Hey Gimp, how is the shoulder?
    Mary
    I want to Rock you Gypsy soul and together we will flow into the Mystic.
    Van Morrison

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