I'm a fool. I new this wasn't going to work but I went along with it anyway !!
Some of you will know Bill has been struggling along with pressure sores for many years now. He's had flap surgery 3 times now - one subcutaneous and two rotation flaps. This last one looked good but for some reason they removed the drain the next day ..... I didn't think this was a good plan but for some reason I ignored the little voice in the back of my head and we went home as always .. optimistic and hopeful.
There wasn't alot of drainage initially but because Bill is up for for very brief periods of time during the course of the day to care for his ileostomy etc. it irritated the wound of course and now there is two stitches that have separated ... I poked a q-tip thru (and around) to clean the area .... and found that the tunnel and cavity are still there albeit not as big .. but I can't fathom that that it will fill in any quicker than if we had done nothing ...... I am so frustrated with our doctor and myself for not being more proactive about this procedure. When I re-dressed the wound ... as I gently kneaded the area to release any drainage it literally squirted out ...
I can't bear to tell Bill it isn't really any better than when we started .... his butt looks like a road map .... very similar to Ryebreads butt ..... he sleeps on a low air loss mattress we purchased 2 years ago thinking this would be the answer to a prayer but I don't know if it's even helped all that much.
I'm just really scared this time ..... I know he should be completely off that area of his body but aside from him going into the hospital until this thing heals I don't know how to make him understand ... he says his back gets sore from being on the same side all the time, it's hard for him to eat, he needs to sit upright to attend to his own care most of the time because I'm at work (ileostomy and cathing) ...... I just don't know what to do anymore! And to top it off he still has a small wound that refuses to close on his belly from his gall bladder surgery 5 years ago (caused by the mesh they used) that continues to leech out ... bit by bit ...... jesus mary and joseph ... how are we still sane !!!
I know you guys don't have the answers (although I know sci nurse is probably getting ready to let us have it ) I just had to air my vent !