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Thread: Paralyzed and Pregnant: Four Years Later

  1. #11
    Quote Originally Posted by KiranA View Post
    these dizzy spells?? Is there no specialist, anywhere in the world, who would know what is causing these spells? This woman is forced to stay in bed, almost 24 hours a day! How can this be possible
    And has no doctor mentioned that bed rest is incredibly unhealthy? It causes low BP! It screws with your immune system, can create pressure sores, weaken muscles, slow your digestive system... I would think the worst thing you could do for chronic low BP is stay laying flat in bed most of the time.

    C.

  2. #12
    We were wondering what her oxygen levels were when she was getting dizzy, passing out. If that's a problem why not supplemenat oxygen. The one time a bp was mentioned during the show it seemed well within normal range. As she seemed to explain it her UTIs and C Diff triggered AD which was the cause of fainting. I do strongly agree that the excessive bedrest has to be a bad thing, she could use an extensive inpatient workup in a really good rehab hospital with lots of sci expertise.

    My wife has had apparent success with getting a really persistant bout of C Diff under control. While hospitalized, flagyl was largely ineffective. They then tried vancomicin and when her bouts of diarrhea subsided did a taper by decreasing doses from 4 times daily to 3 daily for one week, then down to 2 per day for a week, etc. She had a recurrence about one week after full taper concluded. She is now home and stronger but sent home taking 3 doses of vancocin daily. Her new gp had just attended a seminar on C Diff and rather than tapering her by reducing doses weekly he had her stop the vanco for several days then resume again. This was done 4 or 5 times. His rationale was that this method allowed the C Diff spores to germinate then resuming vanco would kill them. This process was repeated over and over until apparently the spores raise the white flag. My wife has completed the taper and now has 2 weeks without a recurrence. Needless to say our fingers are firmly crossed.

  3. #13
    low blood pressure caused my son to black out several times(dizzy spells every time he tried to sit up) in inpatient rehab.mitodrine helped,as well as sudafed.the one thing that has done the most is stim bike sessions putting muscle back on his legs.staying in bed all day will only make the problem worse.

  4. #14
    I watched it and tried my best not to shout at the tv a few times. She said she found an online community and I was like "Yes! Carecure" then she said something like devo dating. /sigh. I agree! These shows are often edited but she needs evaluated by a sci center or physiatrist. Interesting also that she was using her child kind of like an abd binder. I really think this website could help her.

  5. #15
    im afraid she needs a psychiatrist more than a physiatrist right now.

  6. #16
    where can it be watched. its not repeating
    Bike-on.com rep
    John@bike-on.com
    c4/5 inc funtioning c6. 28 yrs post.
    sponsored handcycle racer

  7. #17
    Thinking back to my rehab at Rusk in 1970 I remember being on a tilt table numerous times to adjust to sitting/standing position. I became faint several times during adjustment and was lowered down. Obviously, she has a more serious and complicated problem, really needs inpatient at sci center.

    Fuentes, any chance you can check the TLC wesite for rebroadcast times, it is well worth it - this show will have you shaking your head in amazement and probably angry too.

  8. #18
    Quote Originally Posted by ancientgimp View Post
    Thinking back to my rehab at Rusk in 1970 I remember being on a tilt table numerous times to adjust to sitting/standing position. I became faint several times during adjustment and was lowered down. Obviously, she has a more serious and complicated problem, really needs inpatient at sci center.

    Fuentes, any chance you can check the TLC wesite for rebroadcast times, it is well worth it - this show will have you shaking your head in amazement and probably angry too.
    i did, none
    Bike-on.com rep
    John@bike-on.com
    c4/5 inc funtioning c6. 28 yrs post.
    sponsored handcycle racer

  9. #19
    I haven't seen the update, but the original episode scared me enough to think twice about whether I want to get pregnant. I know women here who have had healthy pregnancies, so I wonder how many SCI women actually have these difficulties.
    If there is light
    it will find
    you

    --Charles Bukowski

  10. #20
    I think it's selfish to have a child without being positive you start planning in good health, have a good relationship, financial means, a supportive family and the ability to hire outside help. I worry some of these children will grow to be caregivers. This woman seems depressed. She has to really work hard to get stronger. She has a beautiful child to give her the incentive. I know nobody knows what the future will bring. Some problems can be avoided and bringing a child into the world should be a priveledge. I feel the same about anyone having a child.


    Ancientgimp, I was in Rusk from mid April till Just before Chriatmas of 1970.

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