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Thread: The Mission of CareCure

  1. #1

    The Mission of CareCure

    In recent months, I have noticed that some people are posting ideas about how to use CareCure for this or that advocacy movement, even to collect funds. It might be useful for me to describe what the mission of CareCure is and what it is not.

    CareCure is an information web site. It is a place where people with spinal cord injury and related conditions can get together and discuss care, cure, and life and obtain the best and up-to-date information on these and related subjects. Over the years, we have added several other forums all aimed at facilitating communication and providing information to members.

    CareCure itself does not advocate particular points of view concerning care, cure, or life with spinal cord injury. Many members of course advocate their views on these and other subjects, such as politics, religion, food, music, literature, etc. These are views of the members, not CareCure.

    While advocacy movements have started within CareCure, the responsibility for these movements rests with the members and not CareCure itself. CareCure does not espouse any particular view on stem cells or other matters. I have discouraged attempts to collect money from carecure members in the same way we discourage advertising on this site.

    Let me explain why I decided that the mission of CareCure is information and not advocacy. Before I founded CareCure in July 2001, I had started Spinewire, the first interactive community forum. In 1999, I agreed to allow a company called Cando to take over Spinewire in hopes of generating revenues for spinal cord injury research.

    In 2001, Cando crashed along with the dot com industry. Cando took spinewire.com and cando.com into its grave. Even though I offered them $40,000 of my own money to purchase the spinewire/cando database from them, they sold the database and the remnants of Cando to some company for $200,000.

    When I formed CareCure, I decided not to allow CareCure be controlled by any organization again. From 2001-2006, we hosted CareCure on a commercial servers. It was expensive and we moved CareCure to Rutgers University. It continues to function with little or no interference from any organization. At the present, I am supporting the server with my donations. We have retained our independence.

    CareCure cannot itself be an advocacy site is because there is a tendency for advocates to attack and drive out people who don't agree with them. Advocates of all types are welcome here, except when they attack each other. That is why the first rule of the site is no attacks of other members. Unfortunately, many members break this rule all the time.

    It also is a human tendency to want to gather your friends around you and ban people that you don't like. We do not ban people because they hold unpopular views or are disliked. Over the years, we have banned relatively few people for egregiously attacking others and only after repeated warnings and refusal to comply.

    There is only one exception to this banning rule. Starting in 2007, spammers flooded our forum and many others. In order to survive, we ban spammers (i.e. people who post advertisements on our forums) on sight because they are not legitimate members of our community and are seeking to use our web site for commercial purposes.

    Thus, CareCure is an interactive information site for all people in the community, not only those who hold a particular point of view about care, cure, or life with spinal cord injury. We welcome all those who want to know about any aspect of spinal cord injury, who have information that they wish to share with others, and advocates of all view points.

    Wise.
    Last edited by Wise Young; 05-02-2010 at 09:18 PM. Reason: I clarified the advocacy paragraph (changes in red)

  2. #2
    I am grateful for the information. With the exception of excellent rehab,I have learned more here in a few months than I did in a year.

  3. #3
    Fair enough. Should be required reading for all members.
    - Richard

  4. #4
    Senior Member
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    Thanks Wise. I do hope everyone reads this and some of the dissension comes to a halt.

  5. #5
    Senior Member flicka's Avatar
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    Quote Originally Posted by Wise Young View Post
    At the present, I am supporting the server with my donations. We have retained our independence.
    Where can we go to donate, Wise?
    ____________________

    "We are the ones we've been waiting for. We are the change that we seek."
    - Barack Obama

  6. #6
    Thanks doc, for all you do. Your drive, humbleness and donating your valuable time is a reminder for me to do the same. Thank you for being you. 37yrs. post injury.

  7. #7
    Senior Member fishin'guy's Avatar
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    Ditto what patrick said, appreciate the time doc, thanks.

  8. #8
    Senior Member
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    Quote Originally Posted by Wise Young View Post
    In recent months, I have noticed that many people are posting ideas about how to use CareCure for this or that advocacy movement, even to collect funds. It might be useful for me to describe what the mission of CareCure is and what it is not.

    CareCure is an information web site. It is a place where people with spinal cord injury and related conditions can get together and discuss care, cure, and life and obtain the best and up-to-date information on these and related subjects. Over the years, we have added several other forums all aimed at facilitating communication and providing information to members.

    CareCure is not a site for advocating better care, cure, or life with spinal cord injury. Many members are of course advocates of particular views but they post information that advocate cure, care, or life endeavors. The site itself does not represent or espouse particular views concerning care, cure, or life with spinal cord injury.

    While advocacy movements have started within CareCure, the responsibility for these movements rests with the members and not CareCure itself. CareCure does not espouse any particular view on stem cells or other matters. I have discouraged attempts to collect money from carecure members in the same way we discourage advertising on this site.

    Let me explain why I decided that the mission of CareCure is information and not advocacy. Before I founded CareCure in July 2001, I had started Spinewire, the first interactive community forum. In 1999, I agreed to allow a company called Cando to take over Spinewire in hopes of generating revenues for spinal cord injury research.

    In 2001, Cando crashed along with the dot com industry. Cando took spinewire.com and cando.com into its grave. Even though I offered them $40,000 of my own money to purchase the spinewire/cando database from them, they sold the database and the remnants of Cando to some company for $200,000.

    When I formed CareCure, I decided not to allow CareCure be controlled by any organization again. From 2001-2006, we hosted CareCure on a commercial servers. It was expensive and we moved CareCure to Rutgers University. It continues to function with little or no interference from any organization. At the present, I am supporting the server with my donations. We have retained our independence.

    CareCure cannot itself be an advocacy site is because there is a tendency for advocates to attack and drive out people who don't agree with them. Advocates of all types are welcome here, except when they attack each other. That is why the first rule of the site is no attacks of other members. Unfortunately, many members break this rule all the time.

    It also is a human tendency to want to gather your friends around you and ban people that you don't like. We do not ban people because they hold unpopular views or are disliked. Over the years, we have banned relatively few people for egregiously attacking others and only after repeated warnings and refusal to comply.

    There is only one exception to this banning rule. Starting in 2007, spammers flooded our forum and many others. In order to survive, we ban spammers (i.e. people who post advertisements on our forums) on sight because they are not legitimate members of our community and are seeking to use our web site for commercial purposes.

    Thus, CareCure is an interactive information site for all people in the community, not only those who hold a particular point of view about care, cure, or life with spinal cord injury. We welcome all those who want to know about any aspect of spinal cord injury, who have information that they wish to share with others, and advocates of all view points.

    Wise.
    I appreciate everything you do and all of the value of CC, and if I violate the rules or their intent please let me know.

  9. #9
    Seem like the more things change, the more they stay the same. I'll never understand why advocating for a common goal is the breeding ground for violent rifts, but I've seen it enough times to know it's true.

    Thanks Wise, you are well-named.

  10. #10
    Sounds pretty straight forward to me.

    Thanks again Dr. Wise for all that you've done and continue to do for us.

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