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Thread: From Vent to Diaphragmatic Pacing System (DPS)...

  1. #151
    Excellent news nancygail! Keep us posted.

  2. #152
    Glad to hear you're doing well with it Nancygail. I found that I was extra sensitive to a lot of smells the first few months. Keep up the time off the vent and let us know how it goes.
    C2/3 quad since February 20, 1985.

  3. #153
    That's great news NancyGail!

    Like Linda and Trainman, I too would like to know how you progress.

    God bless!
    Wheelchair users -- even high-level quads... WANNA BOWL?

    I'm a C1-2 with a legit 255 high bowling game.

  4. #154
    Senior Member Leila's Avatar
    Join Date
    Oct 2008
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    Eureka, Caifornia
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    441
    It's good to know you are doing well! I was a bit worried for a time there. I'm back on Facebook, but I can't seem to find you. I think this is my link, and you can befriend me, or let me know how I can find you via pm.

    http://www.facebook.com/profile.php?...00000532232573

    Much love,

    Susanne

  5. #155
    Senior Member
    Join Date
    May 2009
    Location
    portland oregon
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    Thank You...you guys are awesome.If i hadn't found this forum I don't think I would've heard about the pacer.

    I love the results so far.I can go about 3-4 hrs off the vent and when i go back to the vent I'm only needing a little bit of pressure support(level 9).I can't wait to increase the stim level next week.

    I'm also pleasantly surprised at how small and compact the connector on my chest is.
    It sits on my right upper chest.It doesn't interfere with dressing ,bathing or transfers.I hardly know its there.

    I was admitted to the hospital at 1 monday and was discharged home by 1 on tuesday.I has some discomfort in my l shoulder after the procedure.There was no discomfort around my abdomen or chest.I had a alot of intense spasms through out my body during the first trails.So,my md decided to keep the stim at a low level for a week before increasing the stim.But as i said before even as this low level I can feel a difference.There is more oomph when i take a breath.

    The carecure community has been a great resource for information and support.

    THANK YOU!!!!!!!!!!

  6. #156
    NancyGail, I'm glad you're having success! You've been injured 28 years -- I'm glad newer technology is helping to improve your quality of life. That's a blessing... thank you God!

    Bill
    Wheelchair users -- even high-level quads... WANNA BOWL?

    I'm a C1-2 with a legit 255 high bowling game.

  7. #157
    Senior Member
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    May 2009
    Location
    portland oregon
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    I upped my stim level at the oregon clinic yesterday.All is going well.My pressure support is now at 8 with excellent volumes and I'm able to go off the vent.Next week I'll start doing 4 sessions a day for 1hour 10min. off the vent and I'll be returing to the oregon clinic in a couple of weeks to increase my stim level again.

    It's great working with the staff at the oregon clinic and Jeff from synapse.

  8. #158
    Great news! It's a life-changer, no doubt.

    Have you noticed any improvements in taste and smell? Speech?

  9. #159
    Glad to hear Nancygail, you're at a big advantage being able to get adjustments easily. Is Jeff there every time you are? I was under the impression he mainly assisted with the implants and repair if needed. If my insurance approves, I'll be seeing him, or someone, for some maintenance soon.

    Personally, speech quality decreased for me, but hopefully Nancygail's experience won't be the same.
    C2/3 quad since February 20, 1985.

  10. #160
    Senior Member
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    May 2009
    Location
    portland oregon
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    128
    Hey Joel,

    Jeff assisted via a phonecall with Angie from the oregon clinic,while i was in the office.I would give them feedback and Jeff would advise Angie on the pacer adjustments over the phone.It went very smoothly I was in and out of the clinic in about 30 min.

    Before i got the pacer I could barley talk on a pressure support of 10.Now i can talk easily at a pressure support of 8 and I'm maintaining good volumes 400-700cc.

    Thanks again for all your advice.I've learned so much from you and Bill.There is no way this would've happened if I hadn't found you guys.......Thank You!

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