Results 1 to 3 of 3

Thread: New to site questions and history about me

  1. #1

    New to site questions and history about me

    I was diagnosed with a syrinx c5to t11 in July 2009. I had an MRI of the brain(neg. for ACM),and cervical and thoraxic with and without contrast.(no tumors). My symptoms started in May 09 waking up with a stiff neck. I just thought I slept on it wrong. I am a hospice nurse so if I hurt myself pulling a patient up in bed I don't remember now and don't recall anything specific. I went out of town for 2 weeks in june and kept thinking I can't wait to get home to my own bed. I thought that was why I was having so much neck pain. In July I played kickball and slid into base colliding with someone. A few nights later I went to the ER at 3am in pain. They thought I had a herniated disc and found the syrinx. End of July I began having numbness in my arms and legs but thinking back I have had hand numbess at night for years(not sure if that was related). I started physical therapy in august and did that for 6 months. I also tried accupuncture and trigger point injections. I had an EMG on my lower arms and legs in JUly 09 and I am having one of my upper arms April 16th. My syrinx is 3.8mm at its widest point. I have so much pain that begins in my spine between my shoulder blades. If left untreated it goes up my neck and then my arms and legs ache really bad. I have been taking lyrica since July. I tried amitriptyline for 6 months but discontinued it for hypertention. Sorry this is getting so long. I just wanted to give you a history. I live in St.Louis, MO. I know My syrinx is too small for a shunt. I have not been told it is teathered and assume it is not or I would have been told that. Do you know what could be causing the CSF obstruction? I also have a bulging disc at c6/c7. I am not sure if that is related or not. And one other question if my pain is controlled and I continue to work as a nurse am I putting myself in greater danger of paralysis or progression of my syrinx because of it?

  2. #2
    Welcome.
    I don't know anything about the syrinx, but I had a horribly bulging disk at the same location & could hardly lift my arms & was in horrible pain. Surgery repaired this wonderfully, but I still have a weak left arm. Good luck!
    Last edited by Coleen; 04-03-2010 at 11:04 AM. Reason: STupid spelling, again

  3. #3
    i guess it will be hard for me to tell what the syrinx is causing and what the disc is causing.

Similar Threads

  1. SCI and History
    By GKTrader in forum Science, Medicine, & Technology
    Replies: 0
    Last Post: 07-15-2007, 01:37 PM
  2. Today in History May 16
    By jimmy mack in forum Life
    Replies: 1
    Last Post: 05-16-2003, 08:43 AM
  3. SCI and History
    By mkace in forum Care
    Replies: 11
    Last Post: 03-01-2002, 02:46 AM
  4. ABLEDATA web site - great site for assistive devices
    By Wise Young in forum Web Links
    Replies: 0
    Last Post: 10-02-2001, 05:04 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •